I know that there is a spectrum here with symptoms ppl experience but does anyone get acute lower abdominal cramping followed by simultaneous vomiting and diarrhea? Thanks....
Aha. That does sound a little fishy. Sorry, Leslie, if it isn't....
So that was a spammer? Confused......
No lifestyle changes other than taking Xifaxan. And it really seemed to help the problem. Immediately after the first round, and then more of a gradual "oh, I haven't had gut issues in a while" after...
Hi, everyone. I think I introduced myself a couple of years ago, but I'll start again as I've not been very active on this forum. I've had episodes of acute cramping and diarrhea since I was a teen....
I know this is an old thread, but as I am the OP, I figure I have rights to resurrect it. :) I have taken Xifaxan twice now, and been nearly problem free since January. I feel that is well worth it....
Hi, Sorry it took me so long to respond. How are things? Have you had any further testing done? I have not been to a rheumatologist but I know they do a lot of testing and good ones are very...
I only tested out of range for one antibody, anti-cbir1. And even that was not grossly out of range at 28.3 where reference was less than 21 EU/mL. My other values even if detected were all in range....
Hi, Everyone, Last year, after years of self-dxing myself with IBS-D I went to the doctor after one of my episodes caused me to faint. Anyhow, after several tests, and mostly ruling out any sort of...
Thanks for the tips. I will be making an appointment next week....
here is the whole story: the pill cam showed narrowing of the duodenum. that was the GI doc's finding, and that it needed to be evaluated with EGD. so she calls me and tells me that my pill cam...
Hmmm...I guess that's the only true "fix." Is that the Nissen thing? Or something else......
Wow, I'll have to get some tums to keep around. Are you better now? It's ridiculous the stuff that reflux can cause/contribute to. Who would have thought?...
So then you all recommend an ENT vs a GI? Yeah, I will talk to my PCP. She's really great. I like her a lot. She seems more on-the-ball with the stuff my GI tests came up with than my GI was. For...
Hi, Everyone, Background info - Last year after going some time with untreated lower digestive problems, I got referred to a GI, got scoped top to bottom after a weird blood test suggested the...
They took Osmoprep off the market? When did that happen? I just took that stuff in March for a c-scope. Well, here's to hoping I never need another scope....
I had my test done during the week my GI was on vacation. But I would say that I had my test results back by 2 weeks after I ingested the pill - basically a week's time to get the results. So I also...
You are not the first I've heard of whose test came back negative. I was specifically wondering about false positives, which are always more rare than false negatives....
I thought it was a foregone conclusion that many with crohn's have arthritis. so why would having arthritis indicate that it's not Crohn's if the meds helped your GI symptoms? Is it possible that you...
Oh, wow! You know, it's funny you mention that - I've heard a lot of people say that their pillcam results are being called into question lately - has there been some sort of backlash against that...
Okay, so I have another endo question. Is the only way to get diagnosed to have surgery? That kindof stinks...I mean, what are the odds of my GYN doing anything just b/c I have what I think may be...
Holy flip that's expensive. You're in the US? I wonder if the insurance companies balk at the cost and prefer that they do CT scans and radiate us to death instead. :) I guess I'm just trying to...
Oh, and Jeanneac I forgot - my GP gave me hyomax as an anti-spasmodic and i just take immodium if i am having d and have to go somewhere or am already out and it starts. sometimes the hyomax works...
Yeah, I know at least two people who got diagnosed through MRI. On one girl's it saw strictures in her small bowel. I know the scopes would be top notch for ulcers and inflammation but didn't know...
Wow, I thought Mayo was top notch for stuff like this. Must be like any place else, depends on what doc you get. So scopes often do not show what CT scans show? I heard someone on another forum said...
I know of two other people on another forum who had it come back as their first positive anything. Of course, I guess if anyone were truly a false positive, they wouldn't be hanging around in these...
Interesting. Yeah, my GI keeps saying, "you may develop crohns down the line." Didn't know how true that was, like if the test had any kind of predictive value. He said some people dont like to use...
Has anyone had any experience with only having this test come back positive (IBD Serology 7)? As in, no other test showed anything at the time, only to discover you had Crohns a few years down the...
I am uncomfortable with the spiritistic aspect of hypnotism. And while it may not seem overtly "spiritistic" to many, personally I would never be comfortable doing it. So if the Xifaxan does anything...
Thanks for the links. I have personal hang-ups with hypnotherapy, so I won't be trying that. But thanks anyway. I'm on day 6 of Xifaxan, and by day 3 had no cramping. I haven't gone yet today, so I...
Check this out. Bristol Stool Scale. http://en.wikipedia.org/wiki/Bristol_Stool_Scale Illustrations and everything. :)...
I was just wondering this too. Hope she is feeling alright....
That's what my un-medically educated self would seem to think as well. When I google "crohns lymphoid nodules, " I find stuff like this online:...
When whatever is wrong with me started in earnest, I was pregnant with my 2nd child, and I had very similar issues. I would feel the need to go in a bad way, but couldn't go right away and would sit...
Heh, I shouldn't have made him sound so bad. I actually am starting to like him. I have a hard time getting comfortable with a young, not bad-looking butt doc. :) I was just summing things up for the...
@Claudine: I don't know the answers to those questions, as the only bloodwork my GI did was the IBD serology. My GP did some bloodwork - on my paperwork it says "general health panel" and then a test...
@Shawn12: I don't know what my actual dx is, if any. I know that the upper GI inflammation isn't characteristic of IBS, but I don't know that those two things would cause lower GI symptoms, which is...
jeanneac said...Interesting about your blood test. Which one was positive, do you know? My ASCA was positive but I have inflammation in my colon but the biopsies have not said crohn's. I think they...
Just that my Prometheus IBD serology came back positive for Crohns. That's all. No ulcers, just inflammation of my stomach (gastritis) and my esophagus but the pathology never showed anything like...
That was good. Enjoyed it. Thanks, Shawn....
I don't know if I am officially dxed as "IBS" but that's how my doc is proceeding. He keeps telling me that I may develop Crohns later (think he is trying to cover his you-know-what:)) Typically,...
I don't know if I am officially dxed as "IBS" but that's how my doc is proceeding. Typically, over the last several years, I will have a very acute episode of cramping and diarrhea that typically...
Insomnia? I don't know if I have the textbook definition of insomnia, but whenever I miss out on sleep which I would think would be inconsequential, it screws me up, I know. And I have two small...
Yeah he didn't offer me any tests for SIBO. I'm not too worried about it. I'll give the script a try to see if it helps at all. If it helps, it helps, if not, then it doesn't. I almost hope it...
This is a good thread, b/c I've wondered about this. My "attacks" come on usually w/in an hour after eating, so there's no way what I've just eaten has made it to my colon. Good to know that the mere...
Thanks for the tips. I will do my best to hold out until the end of the course. I take Align daily as well. I will also check out that diet, when I get half a second. I have two young children and a...
So after 4 months of searching for Crohns, my GI has decided to proceed as if my periodic bouts of horrific cramping and D is IBS after all. Whew. Today, he talked to me about trying a 2 week round...
I haven't been dxed with Crohns. I doubt I will at this point...so far nothing, other than IBD serology, has shown anything other than chronic gastritis and esophagitis, but I think I have to stop...
I have been having fairly regular, moderately painful lower back-pain lately. It's identical to the pain I felt during my second pregnancy. It comes and goes, but it's almost to the point where I...
I requested a copy of my c-scope pathology report from March. I had gotten a nice form letter/checklist thingy from my GI, but wished to have a copy of the actual report. The only thing that wasn't...