after I stopped taking zelnorm I am malnourished and have missed 3 periods. My doctors don't seem to care. There seems to be nothing they can do. I even went to the Mayo clinic. I am scared. Does...
I had the same thing after surgery. It is permanent for me. Zelnorm was the only thing that worked....
Amitiza stopped working for me. It worked better if I was on a complete veggie juice diet but then it stopped working altogether. I cannot handle 2 a day because of the side effects. You might want...
I wish I could have surgery. All of the GI doctors I have seen are concerned about making things worse. I have had a lot of nerve damage from previous surgeries. This is how it probably started in...
Just a thought here. Do you get acid reflux? Sometimes it can feel much worse; an anxious feeling. It is horrible. I didn't know I had it because I couldn't feel it but it was getting into my chest....
Gracies mom, this is hungry - I also have gastroperesis. It is horrible. I was fine on Zelnorm though. I just thought I'd share with you what I am doing to cope. I was also an athlete for most of my...
Please, everyone reading this contact the FDA to get Zelnorm back. Surgery is not an option for everyone. Some people, like me are deteriorating. I've been to the Mayo clinic and there is nothing...
They always deny you the first time. They will do it again and again. Don't give up. It took me at least a year....
Since Zelnorm, there is really no substitute for me. I take mirilax, amitiza, sennecot, magnesium and prevacid. I also do daily enemas and stick to a liquid diet. I have been to 3 GI doctors and one...
I get the same thing except mine is a panic like chest pressure. It is really horrible. Before I was diagnosed, my doctors and ER doctors always called it a panic attack but I was told by several GI...
I have the same thing. My doctor said that it can also be caused by pressure hitting the nerves. I have had some relief from having someone massage my center back on either side of the spine and also...
One of my friends just suggested this. Has anyone tried it?...
thanks from hungry - is motillum domperidone? My doctors also told me to get this. Isn't it expensive too? Where do you get yours? My doctor filled out an IND for Zelnorm but I have been waiting and...
hi this is hungry, I am 35 with severe ibs-c, gastroperesis, acid reflux and vomiting. I am taking a lot of meds for this but none of them work. Basically, I can't have a BM....w/o this process I...
Hi this is hungry, I heard from a doctor from the FDA today about Zelnorm and she told me she would check into the status of the IND's and e-mail me back. My doctor is trying to arrange for me to be...
thanks sunshine323 I think I will be giving you an e-mail soon. I am pretty scared....
My gosh is this painful. How many do people do? I am worried I do this too much. Even though I only have liquids it is still very painful and it takes hours. Does anyone have suggestions?...
hi, this is hungry. I have been off of zelnorm for a while now. I am trying to get it from other countries for now because otherwise I will be in the hospital. Call the FDA. Call Novartis. I call...
hi, its hungry again, I actually can't keep anything except small amounts of liquid or I just throw up. My doctor said that people with gastroperesis cannot tolerate fiber. I've lost 18 pounds and...
i am on Amitiza but thanks...
I hope I am doing this right so I don't mess up again. I am new to this forum, Listen to yourself. If you are hurting, see another doctor or specialist. Have you thought about a pain clinic with a...
I just spoke with my doctor about that horrible lump. He expained to me that mucus can get stuck in the throat in conjuntion with the acid from your stomach. It mixes together making an uncomfortable...
This is from hungry, I have had a million tests done at the Mayo clinic and University of Minnesota. I have IBS-C and gastroperesis. I am losing weight because I cannot eat anymore. It has been...
Does anyone have this? What helps you cope after Zelnorm? Any responses would be great....
These are some that helped my friend with IBS-D Primal defense 2-3 a day -sometimes up to 5 kefir ( from the natural food area) sour kraut ( raw) 1 T 2x a day avoid sugar (use honey instead) Breaking...
Is anyone on this medication for IBS-C and or Gastroperesis? I am on it because Zelnorm is off the market. I am worried about side -effects. Last time I was on it I has severe migraines and...
Zelnorm worked for me, though, I still had to watch my diet. I have been off of Zelnorm for a month. I am really struggling but this is what has been prescribed for me. amitiza 2x daily ( I can only...
I am on so many scary medications right now. One even said on the label that it could increase risk of heart attack!! So what is the difference here?? I think the zelnorm issue is a labeling issue....
that sounds like me. Have you ever tried primal defense? It sounds really crazy but it helped my boyfriend so much. He is also on a specific carbohydrate diet- I know you can't eat though but maybe...
I'm off of zelnorm and I don't know what to do. My doctors have given me 17 medications and they are not helping. I keep going to the emergency room to get fluids . I've lost 18 pounds in 2.5 weeks....