I've been on a 6 month course of Cytoxan chemotherapy. It hasn't been going well, and the last treatment landed me in the hospital last weekend. I saw my RA today and we have agreed to discontinue...
congrats on a healthy baby!...
Thank you for the info. I knew I could count on you to lmk what it was. I was afraid of this. I already have Lupus and Sjogren's. My Lupus is very aggressive and I'm on high dose steroids and...
thank you. Do people w/Lupus get it too? The surgeon was going to talk to my RA about it, he says I might have RA as well. I really don't want another disease added to my already growing list. Have...
I had surgery on my hip yesterday to fix a labral tear and remove bone fragments. The dr found Synovitis in my hip and removed it during the surgery. I googled it and found it's common in Rheumatoid...
Surgery went well. I'm in a lot more pain that I expected. The dr was able to fix the labrum tear. He also found synovitis, and had to remove it from the joint as well. He said between the labrum...
Thank you ladies! I am really nervous this surgery will make my lupus worse. I only have 3 months left of chemotherapy Cytoxan left. I'm worried this will make the lupus worse adn I'll end up w/more....
I'm having my surgery on my hip in the morning. It's my 4th surgery since June 29th. I have a labrum tear, and bone fragments the dr is going to attempt to fix. Wish me luck, please that this surgery...
I'm sorry about your kidneys. I hope the dr gets you feeling good again soon!...
Thank you Sharon! I feel a lot better about the surgery after hearing your story. I've been really nervous about it. This will be my 18th surgery in 12 years. I was worried about recovery time w/two...
Sounds rough, I hope you feel better soon!...
Red Rose I'm sorry you are so miserable. With my yougest DD, I was miserable as well. I was hospitalized from 33-36 weeks. THey took her for low amniotic fluid at 36 weeks exactly. The day she was...
Sharon, I had a hard time finding a dr who does hip arthroscopy as well. I didn't realize it was so specialized. I go in on the 22nd. He is hoping to fix cartilage damage, remove bone chips, and...
Sharon, thank you for sharing your daughters story. I'm also taking cytoxan for CNS lupus. I finish cytoxan in July, and then i'll go back on cellcept as well. My body is really tired, and I'm not...
Thanks for the advice. I did Cytoxan for over a year back in 1999 but I don't remember these side effects. After one month of treatment I lost all my hair. The nausea and vomiting this month were...
I just had my 3rd round this week and have been really sick from it. Wondering if anyone else has experience with it and what you've done to help the side effects....
Your right my friends and family don't understand. They think it's just a matter of adding more meds, but it's so much more than that. I am exhausted, w a 4 year old and 18 month old at home right...
thank you so much. DH and I are praying that they are wrong. I don't think they are though. I am number and can't process the new information yet. We should find out more next week. I go in tomorrow...
I've been having a CNS lupus flare. We began treatment w/Pulse steroids this week, due to 100% loss of vision in left eye from Optic neuritis. I had to have an MRI/MRA done late last night. When I...
thank you! I didn't sleep at all last night, worried about today. The last time I had pulse steroids I ended up w/avascular necrosis in my left hip. I am so worried it will happen again. This time...
It's 1,000 mg of Solumedrol by IV for 3 days. I start tomorrow and finish on Saturday. I had it before a few years ago and ended up w/AVN, and a bunch of side effects. thanks!...
I'm not looking forward to it, but tomorrow is the first of 3 treatments. Yuck. I did Pulse steroids 8 years ago as an inpatient but this time I'm outpatient? Anyone else do it that way?...
When I was diagnosed my symptoms were 1. achy, swollen joints 2. extreme fatique 3. sun sensitive 4. oral ulcers 5. low WBC count 6. pos ANA 7. hair loss 8. dry mouth, eyes (diagnosed w/sjogrens same...
I've had them 3x's before but it's been a few year. I'm having a CNS lupus flare right now and my current meds aren't working. I think I'll have to do this next week. Wondering if anyone knows of any...
Yes Ginny, thats how it feels. Like my skin is burning on my hands. If I touch it, it's 10x's worse. No one has ever said I have fibro before. My prednisone was raised from 5 to 70 last Fri. I can't...
My joint pain has been really bad the last 6 weeks. My lupus is flaring right now. I have CNS lupus w/optic neuritis. I'm not able to take any NSAIDS for another 8 weeks due to a stomach full of...
my memory is horrible right now. I'm in the middle of a CNS lupus flare and I can barely remember what happened an hour ago let alone last week....
I know what you mean. It's horrible going to the ER with chronic illness. They don't know what to do w/you and end up consulting with my RA anyway. ((HUGS)) I hope you feel better soon....
Thanks! He said it has a lot less side effects than the cytoxan. I have optic neuritis and they are worried about blindness if not treated aggressive. Thankfully I only have it in one eye right now....
Hi, I'm new here but not new to Lupus. I've had it for over 12 years. I'm currently having a central nervous system flare. In the past I've had to get Pulse Steroids and Cytoxan to treat this. My dr...