Hi Ann, I'm sorry, I haven't posted here very much and I think I just left everything in my profile in the default setting. I've fixed it now, so you should be able to see my e-mail address. I'd love...
Definitely talk to your doctor, but I take Lovaza, which is prescription fish oil. I also take evening primrose oil, Vitamin B-12 and Vitamin D because my body was deficient in those two vitamins. I...
Same for me - being in the sun, not enough rest, and stress can also bring on a flare for me. I've been in a flare for a month now, and it started by pulling an all-nighter for a class I was taking....
I'm sorry to hear how much you are struggling. I'm another Chihuahua mom, my little Brandi is the light of my life!! I'm still working full time, but by time I come home it's all I can do to make...
I usually get my blood test every 3 months, depending on how I'm doing. Right now I've been in a major Sjogren's/lupus flare for over a month, so I've had blood drawn a lot. Have to go back in June,...
Hi LupusVet, I don't post here often, but I had to reply to your post. I have lupus and Sjogrens (along with other autoimmune diseases) and my teeth were a mess. I knew last year I had to do...
KarenO and hippimom2. thanks for writing. I'm definitely going to give the airlines a call next week. I've heard of Evoxac, but my rheumy hasn't prescribed it yet. What I did, though, was get a new...
That is really frustrating! I had a primary care doctor who treated me exactly the same way - wouldn't sit down and listen, was in too much of a hurry to get to the next patient, even when I had...
Hey, good for you!!!!! I've been doing a low carb diet since April, and I've lost 70 pounds so far. I still have another 30-50 to go, but I'm feeling great these days, and I know the foods I eat and...
Yes, I should start with the airline - why didn't I think about that?! My preference would definitely be to take my empty water bottle to the gate and fill it up there, I hope they'll allow that....
Thanks, AlwaysRosie! It wasn't easy to find this doctor, I went through a couple quacks on the way, to be honest. This doctor is a holistic/nutritional medicine doctor and I found him in a...
I'm planning my first trip since I was diagnosed with Sjogren's, SLE, and everything else a year ago. I'm feeling pretty good, but the Sjogren's keeps me excessively dry. Usually I just drink a ton...
Hi, I go to a nutritional medicine doctor who consults with my rheumatologist, and he tested me for any nutritional defeciencies. Based on that, I take Lovaza (prescription strength fish oil),...
It could be the prednisone, even a small dose. I had mood swings like that when I was on 5mg/day back in the spring. I'm off it now and feeling good, but everyone's body reacts differently to...
Hi Dana, I've been on this site for a while, but this is my first post in a long time. I too have Sjogren's, lupus (SLE), Hashimoto's thyroid, rheumatoid arthritis, Reynaud's, and now they're...
Oh, and I do carry an epipen, in fact the doctor presecribed a new kind for me--it has two doses in it in case of emergency. I have a medic alert card in my wallet, but I need to buy a new bracelet....
Well, I went to the allergist yesterday, and I'm feeling so much more comfortable about the skin tests. You were right, he is sending me for blood work tomorrow for the nut and bee/wasp allergy. I'm...
Thanks everyone. I went back to my doctor today, and it turns out that I have three things going on: asthma, swelling around my vocal cords, and a croupy thing that's going around with the kids. (I'm...
Hi Chartreux and younglady94. Chartreux, it's the scratch test that I worry about. I've gone to lots of doctors, that doesn't bother me. It's the fear of them testing me for something I know is...
I'm looking for suggestions on how to stay calm during a major asthma flare-up. My asthma has been out of control since Friday when I had the worst attack I've ever had, and it's still scaring me. My...
Hi everyone. I just joined, and I'm wondering about the scratch tests. I went to my doctor today because my asthma is very seriously out of control (I'm one attack away from the emergency room, and...