Hey everybody... Thanks for the info... I'm just SO tired of this. This was sort of the straw that broke the camel's back this week... Stupid, I know, but I'm having a hard time doing the glass half...
Actually - this makes me have another question... If I've been in the sun and am having more joint pain... does that increase my risk for organ involvement? ~Kim...
Ya... That's what I was afraid I was going to hear... I told an engineer friend of mine that he needed to build me a floating tiki hut. Or - perhaps I just become a night swimmer. This sucks. Oh...
Hey there... Haven't been on in a while... Two kids graduating this year - one from college, one from HS. Also - trying to tackle this "lupus thing" on my own, I guess. Figured it would take a full...
OK... This is one of those: funny, but not at all funny issues... I have the itching also. Never been on vicodin. Am on prednisone. Never any rashes. But, the itch is like it is really deep and you...
My joints have never swollen...they just hurt. ~Kim...
Hey Jynx... Glad you found us - but sorry you had to. There is so much great information here...but the best part (if you can call it that) is that everyone here can relate. So - feel free to ask...
Hey Stacie... Sorry you are in so much pain... My rheumy put me on 15 mg/week starting last October. Said in would take 10-12 weeks to kick in. I've been trying to wean off prednisone and got down to...
Kind of weird... I was going to come on here and ask about remission also. So thanks Doodlebee! Gotta admit - was a little disheartened by the 3% figure. But, I guess deep in my heart - I had the...
Wondering what dosage of Methotrexate every one is on. I'm currently on 15 mg/week. However my rheumy said if I have a hard time getting off of prednisone, he can up my methotrexate because I'm not...
Well - I dropped another mg last Friday. Down to 7 mg - so far, so good. Went in for bloodwork today to see where all my levels are. Hopefully I'll know something Wed or Thurs. ~Kim...
Hey Carol... Hadn't see you post in a couple days - was worried about you... Didn't you say the doc upped your pred recently? I have tremors from the prednisone. Now that I've tapered pretty far...
Ishy... What doc is prescribing this for you? Are you seeing a neurologist? Also - your profile says you are "non-prednisone". Why is that? What does that mean? I did a lot of research about...
Thanks for the posts guys... Feeling a little calmer today. Sorry about ranting like that... I get so mad when things are out of control. Lynnwood...had to chuckle at yours. I pictured myself in the...
Sorry...haven't had experience with that drug. They treated my rebound headaches first with a high dose of prednisone. When I went to the neuro, he put me on Topamax and Keppra (both anti-seizure...
Cheryl... I'm glad you are here and sorry you need to be. I've been here since October and have so much love and respect for the others here. Keep on asking questions. I personally feel that...
Tash... We haven't officially "met"...but please know you are in my thoughts and prayers. I have a saying that I love: "Friends are angels who lift us up when our wings have trouble remembering how...
aaaaaaaaaaaarrrrrrrrrrrrgggggggggggggggggggggggghhhhhhhhhhhhhhhhhhhhhhhhhhh I am so mad I feel like punching a wall. But - we all know THAT won't happen...not enough strength and I would pay for it...
Carol... You rant all you want to girlfriend... PREDNISONE SUCKS I'm sorry you are going through this. And, you know that we all know how you feel and agree with everything you said. I hope you get...
Thanks everybody... I really feel like I belong now! "They like me, they really like me!" LOL Carol... WHEW! You had me scared about those anti-biotics! Still not good - but better than what I...
ok, ok... I've been sufficiently reprimanded. lol I did take off work last Friday and yesterday. Did a lot of sleeping over the past four days. This whole thing is still so new - guess I have to go...
Hey there... Haven't been on for a few days. Last week I thought I was coming down with a sinus infection...but, couldn't get into the doc last friday - he was booked. Got in yesterday. Have an acute...
Hey Girl! You have a WONDERFUL time! Enjoy the warmth for us! Safe travels my friend... ~Kim...
Hey guys... Thanks for the info. I try not to use antibiotics when I don't need to...because of the whole thing with becoming immune. I'm feeling even more crappy today. I'll give it until tomorrow...
Do you ever wish you could just live in a bubble? It would be so much easier...no germs! I've been trying SO HARD to keep the upper resp stuff at bay. Use purell by the gallon (it seems anyway),...
sickinva... I was diagnosed in July 2007 with SLE. In the "for what it's worth" department... I didn't have the hair loss, the facial rash or any fevers. My joints hurt very bad - but no swelling....
Mine is when I'm sleeping. I try to go to bed with my hands sort of laying on my tummy. Of course - with my "BFF prednisone" - that is becoming harder and harder! lol The numbness doesn't seem to...
Hi Catzz... Welcome! Glad you posted...but sorry you are not well. It is all overwhelming at the beginning...but try to learn as much as you can...the people here are a WONDERFUL resource. I was...
Thanks Rosie... didn't realize that. ~Kim...
Hey there... My labs came back positive from the first time they tested...but, I was already WAY into a flare. As for the BUN/CREATININE - Yes, that tells them how your kidneys are functioning. Sorry...
Wow... frustrating topic, huh? At first, I tried explaining everything... You just get this glazed over look from people and eventually you figure out it isn't worth the time or energy. I've found I...
Barb... Prayers for you. Please take extra care of yourself... and try to check in if you can and let us know how you are. ~Kim...
I just read the posts in the "I am new and scared" post about people having numbness in their hands. I have that almost every night...but I too, thought I was just sleeping wrong. What is the...
Hey Sheyna... Glad you are here... it can be very comforting having what you feel and think validated...at least that's how I feel. Helps you know you aren't crazy, you can talk to people who...
Hey Stacie... I was put on methx about three months after my diagnosis (I've been on it since October, 2007). I take 15 mg per week. At my last rheumy appointment (January), he told me that if I have...
LucyLynn... Sorry - a little late - but WELCOME! And, just as everyone else: Glad you are here - but sorry you have to be. I've not been on here for a few days - so getting caught up. And, as...
Ann... So sorry for your loss. You did the right thing...but I know how hard that had to be. It sounds like you two shared a lot of great memories. ~Kim...
Ginny........... I am so, so sorry... /community/emoticons/sad.gif You have to be going through so many emotions right now. Please, please, please take extra care of yourself to try to keep things in...
Are you guys tired of me yet? So - I did my pred drop last Friday - down to 9 mg. Things seemed to go ok. Saturday night, my daughter had a school dance and then went to her friend's house. She...
Hi Carol... How goes it today? How is the weather your way? Ohio is supposed to hit a balmy 58 tomorrow! As for docs... Here's my list: rheumatologist, neurologist, ophthalmologist, urologist,...
I would say a "clear & sharp mind" is not in my vocabulary anymore. And, I would agree that most days it is mild, but noticeable...and on a bad day is worse. Mom46... LOL I love it. I think that will...
My fog is not being able to pull out the words that I know are in my head, not being able to figure simple things out, and being forgetful. Those are the three most prevelant things that happen to...
So far, so good with the 9 mg pred. I'll stay here for two weeks like everyone suggested. I think I might actually have two weeks that I don't have a doctor appointment! woo-hoo... Take care guys......
No next step, I guess. All the tests came back normal from the urologist... I have an appointment to go back to see him in three months. So - now I just work on trying to get off the prednisone. ~Kim...
Hey firebabe... I'm on methotrexate (15 mg / week) and have been since about October, but I'm not done weaning down my pred yet. It is going to take a few more months to get off of that. For a while,...
Just letting you know... Called the doc's office and he reviewed the results of my IVP and everything is normal. Yeah! ~Kim...
According to the tech yesterday, the doc would have the results yesterday afternoon, then, they would be transcribed and faxed to my doc. I figure I'll wait until this afternoon and then give them a...
I went for my IVP this morning. What a mess. Originally I was scheduled for the testing center across from the hospital. But, because I'm allergic to iodine, they changed it to the hospital (you...
Greetings from Northeast Ohio! Carol! What the heck are you doing sending us that panhandle hook????? LOL Our winter storm warnings went into effect this afternoon. 2-4 inches of snow tonight and...
Hi Patty... I'm new here...I, too, lurked for a while and then jumped in with both feet! So much knowledge and compassion here! Prayers for you tomorrow that the surgery goes smoothly and you recover...