I highly disagree with the comment that toxicity takes " many years to develop" I had severe retinal toxicity after being on Plaq for 13 months I had build up in my retina and eye floaters and...
Carol/Okie I don't think you freaked anyone out you didn't say she *was* admitted you said she went there. No one assumed you meant she was admitted....
Hi Ginny, Yup I got mine at shoppers it's in a black tub has to be in the fridge so not really protable to but works AWESOME. Oh yah my lips were cracked and all bleeding so I know how you feel. It...
Hi Ginnny, Vaseline is good but only for the short time the problem with anything petroleum based is the molecules are to big to be absorbed by the skin so it essentially sits on the top layer and...
I saw a naturopath for a year straight for help with yeast that I had for 10 years that is now gone finally. Probioctics are important in preventing yeast but will not do much for exsisting yeast as...
I am so happy I got to read it before it was deleted I loved her site and so did the people on my other site I frequent for lupus when I posted the link there. Thanks Barbra Jean the site was a big...
Hi Hippi, I can't find your email address so wanted to check and see how you are doing? How is your daughters dancing going? Hope you are holding your own and have more good days then bad....
Peacesoul, I see you are in Montreal I am in Saskatchewan but am in Montreal monthly for work. I am curious about your professional knowlege of nautropath teachings I would be interested in taking a...
It's my sister in law and her and my brother are divorced and she is remarried also a Dr in Bejing and I live in Canada so it took me exhausting every naturopath here for free before I shelled out...
Leigh I had positive high Anti RNP not DNA/SS I had severe muscle pain and joint pain bright red knuckles and felt like my calf muscles ran a marathon but I didn't.I couldn't walk most days and would...
I could post about it but didn't know if it was allowed here it really has saved my life and allowed me to work full time, now have a negative ANA and be pain free 99% of the time. And Yes I realize...
Leigh I went to bed one night and felt perfectly fine in fact was on my treadmill and woke up with severe joint pain full body and 104 fever. Went to the Dr had a blood test and my ANA was a very...
Thanks it appears to be working I think there must have just been a delay...
Hi there, I updated my signature line in the control panel as it's wrong all together but it didn't change when I posted. I shows correct in the control panel though. Am I doing something wrong?...
Hello there I have not been around in a long time as I have used many alternative measures to make myself better that being said I logged on the other day and read Carol's post about her lungs. A...
hi there, I don't really get here that often anymore so sorry I missed this. Yes I am still taking ldn and have been since 12/20/07. I take 4.5mg now as that is the recommended dose if you do not...
Hi Sheryl, I know I wish they sold it at more main stream stores as well. However my holistic MD said at the last medical conferance he went to they did a whole presentation on it and it's anti...
Eating anything artificial dosn't make sense for anyone lupus or not. I generally only eat foods available at a health food store with the exception of organic fruits and vegetables. Hence why I only...
Hi there, Is there anyone here who has this positive antibody. I would be curious to chat with you as to what your symptoms are? As I do not fit the stereo typical descript ion of this antibody so I...
PattyLatty, I don't know if I can post links here so moderators delete whatever I shouldn't have on this post .... If you are wanting to buy Xylitol at a reduced good price please goto IHERB.COM. I...
I agree with all of this except in regards to Xylitol every rheumy I have been to ( 12) in total and my naturopath all encourage me to chew gum with this in it as it's a natural anti-fungal and it...
Lynn I will keep you posted there are two more ladies with lupus who joined the ldn group who and are now taking it. One of the ladies is young and has pretty advanced lupus and a high ANA like me...
There would appear to be a good split of no vision problems and people who have had problems with vision taking it.. http://www.askapatient.com/viewrating.asp?drug=9768&name=PLAQUENIL ...
Thanks everyone for the information I really appreciate it....
Thanks Lynn I too was told they were rare by my rheumy until I went to a lupus support group and out of 41 people there 4 of them have had retinal toxisty one lady was on it for 27 years though. And...
Thanks everyone, the idea of taking the ldn is that I shouldn't need Plaquenil anymore I am cutting back slowly as to not cause a flare. My Doc says it takes 3 months to fully leave your body so that...
Thanks Gidget, I am reducing it with hopes of getting off of it all together. I am taking Low dose naltrexone now and doing really well and like some people who take it hope to no longer need the...
Hi there, I have a question for those who take plaq.. Do you find if you miss a dose or two or three that you notice a differance? I am wondering how many doses people have missed before they noticed...
Hmm Rosie, That makes me question something I have recently reduced my plaquenil from 400mg to 200 mg with my DR advisement now that I have reduced symptoms. I wonder if that might be causing the...
Good Day everyone, As most of you know I am sure I am pretty much now symptom free on good days which is about 25 days a month. I do still use eye drops in the morning when I first wake up but dry...
Hi Hippi, I had a colonoscopy last month and was scared to death. I get there they give me this pill to stick under my tongue valium or something. I SLEPT through the entire procedure they woke me up...
biscuit I would joing the yahoo ldn group message board there are dozens of people on there taking ldn for chron's. The rule of thumb is that it will stop progression. However there a LARGE number of...
This a widely used procedure on my sjogrensworld site. They can stick in punctual plugs that are temporary to see if you like them and how they work then after time if you like they stick more...
Hi Hippi, I will e-mail you on this as it did eliminate all my fatigue BUT I had no real pain prior to taking this expect joint pain. There is one kind of pain medication you can take that most...
If I am not allowed to post this here can a mod please delete this thread. thank you This is from the news report on ldn http://youtube.com/watch?v=Kz52KK5IhOc ...
I am going this week to have my ANA checked since taking ldn to see if it has dropped at all as it was 1:5260 and has been 1:2580 for the past year. Plus I had or could still have an incredibly high...
I take fish oils for my dry eyes as I have sjogrens also and they are a huge help if I miss a few days I can really tell. Then I take a very good multi vitamin which sick or not everyone should...
Yup I am pretty happy it's not a cure my any means and really isn't supposed to give symptom relief just stop all further progression however 1/3 of people have reported symptom relief as well. It...
Yup Hippi is right I am on this and VERY glad I am taking it. I am likely going to be able to get off my plaquenil and just take this as I am down to one pill every third day from 400 mg a day. It's...
HI Dana, For a college girl 4 beers is nothing but if its making you sicker could be something! This is a question I have asked all of my doctor's I have seen about my AI issue's since I became sick...
Hippi e-mail me privately if you want more information I researched it for about 8 months before I started taking it and talked to about 600 people taking it and 6 Doctor's world wide. I would be...
Ann sorry I am not in Ireland I just know the medication I take is in Ireland...
Ann, It's low dose naltrexone therapy. It's actually HUGE in Ireland with multiple Doctor's using it. If you do an internet search you will likely locate something on it....
Oh Ginny I know how you feel we have such a shortage of Doctor's here in Saskatchewan it is not even funny. We have one Rheumy in Regina for all of souther Saskatchewan so if you don't like him you...
Well I hestitated posting this but I actually feel pretty darn good ( knock wood) I am on day 90 of new medication and actually feel almost as good as I did before I got sick. My dx is UCTD and...
The swelling around your eyes likely goes with your other question around contacts the swelling is likely caused by dry eye as that is why I get it. Gum pain is also something I get caused by dry...
My dry eye came on literally over night I wore my contacts for likely 350 days a year for years. Now I can not wear them for even 5 minutes this all came about within 6 days from wearing them...
hi ginny, I am in Saskatchewan so I can relate it's that temperature here at least 3 months of the year. It was about 12 degrees colder then that this morning at 4:00 am but has warmed up to a balmy...
they are short little vessels like broken cappilaries you can google for a picture if you are not sure what broken capillaries look like. They are like very very tiny veins. I have dozens of them...
Hi there, Mine was thrush I took a course of diflucan and nyastin swish and it was gone in 10 days and has never come back. I get my b12 checked all the time and I am not deficient...