Hi there... I have PPMS and also movement problems with my neck and head movements. The Dr mentioned dystonia and wonder if it's that or some other movement disorder. Mine doesn't get as bad as you...
Hi there, thanks for the information.... the more info I can get the better I feel about this condition. I appreciate any information available from you. I don't know much about stem cell and will...
Hi there, I really don't have a question right now, but wanted to say hi and let you know that I just got Dx with PPMS. I was undx for approx 4 years. I notice that there isn't that much info or...
/community/emoticons/eyes.gif I think alot of it is that I've only been married for a 3 years and feel like I'm still on my honeymoon...silly eh. I've been ill for just over two years and it gets...
that's what the Dr said, I think part of me is just trying to stay positive and not get down...trust me at time I do get down...But with this Assessment, the Dr had to decided if the symptoms I have...
Hi everyone, just wanted to update you on the Psyciatric Assessment I had that the insurance company wanted me to take since I do not yet have a Dxs. The psyciatric is quite surprised that I'm not...
Hi..just wondering I'm not yet Dx..taking Celebrex for inflammation and Tyn 3 for pain as well. When I get my blood testing done...will these meds effect the results? thanks quack...
SORRY.. I just read that...my spelling is backwards? I think you could understand it though? No doby...but body...thanks and I used to type for a living..hehehe...
hi .. the results said Multiple supratentorial what matter T2 hyperintensities mostly in subcortical locations, but at least one small lesion is seen in the doby of the corpus callosum. No...
/community/emoticons/sad.gif I think I asked this question somewhere on this forum, but don't know where it is? I asked my Dr why my face goes red so much. It's not everyday, but alot of the...
I don't know if this is Vertigo? My spells have been happening for a few years now...but did happen about 10 years ago and went away after 6 months...the Room will all the sudden move back and...
my blood test show positive ANA and high sed rate...they still think it's all in my head? So I really don't know what to say....I just keep waiting to see if I have any changes in another test...MRI...
Welcome, I'm new to the forum too.. Not yet Dx, but do have the problem with cold hands, they are cold every PM and evening. Turn whitish, then bluish...palms and fingers..my feet are bad too...not...
Hi.. I have had an EEG at the Dr office, not a 24 hr one..not sure what a VEEG is..do they do that with the EEG? And I never had an episode while I was having the EEG...I've had MRI, CTs the MRI...
Hi. I'm not yet Dx... I have double vision in both my eyes... there are times when it get so bad I see a multiple set of things in both my eyes....the doctor covers one and it's still double vision....
I will look for a dermatologist for my rash now...thanks for all this info again...you guys are great with all this help..can you make an appt with a Dermotologist or does your Dr have to referre you...
Hi could I have you opinion on this, I'm a 54 yr woman, for the past few years I've had episodes...which the specialists say are not vertigo, my ears etc..I feel weird before they start... the room...
thanks for the info...what is Lupus CNS...?...
thanks for replying, I have had two brain MRI looking for MS at the time...it showed a few lesions in the corpos callosum, and tiny ones in the Sub cortical?? something like that...but they said not...
Hi again, is Vertigo apart of an Autoimmune problem? I've had it on and off for the last few years and don't know how to stop them? The Doctors are not sure either... quack...
I asked my Dr why my face looked red alot of the time, everyday, but not 24/7.. I gave red cheeks, nose, chin, and above my brows...I get it alot after a shower or bath too. He said it's rocesea?...
thanks..I did get the bone marrow done it showed granulomas, which they are not sure why, and the LP was normal, I have to keep watch of the monoclonal band in my blood...haven't had them checked in...
Yes, I use those bags everyday for my hands and legs, they are so helpful, sometime wish they were full size. hehehe....I never thought of my head..I will put something on my head too...boy I think I...
thanks for the replies so quickly...that info will come in handy when I have my appt...I will look up those links as well. thanks again quack...
I've been reading the different posts here and wonder how you get diagnosed. I understand you need at least 4 out of 11 symptoms, and blood tests results would help....but do the Doctors ask you the...
I'm new here and wonder what type of rash are you meaning...the one you get on your face? or other rash red scaly type...all over the body at different times? quack...
Hi again...here are my symptoms and could you let me know what a exam is like with a Rheumotologist? I can't remember if what was done, only the blood tests... I have seen a Rhumatoligist,...
Thanks for the info, I have seen a Rhumatoligist, Neurologist (2), Internist, and was in VGH hospital for a few weeks a year ago, the Hemotologist wanted me to have a bone marrow, LP, and other Lung...
/community/emoticons/nono.gif Hi everyone, I'm new to the forum and have a question about your Sed Rate. I'm not yet Dx, the specialists and my MD think it Lupus, Autoimmune or MS.... I get my Sed...