Hester, I'm sorry I've missed your post so I don't know what problems you have been having but I hope you are doing better and if not listen to what the other ladies have said and get to the ER or...
Sorry you are feeling so bad, but I for one don't get on here every day so I don't post that often. I hope folks don't take that to mean that I don't care about their problems. I really hope you are...
Rosie, Love your Halloween. You need to share your recipe for the pie!!! Growing up out in the country we didn't do halloween. But when my son was little I would take him around and loved it. After...
Welcome missbea, I don't post very often but the folks on here have been very very nice to me when I have. I'm sure they will make you feel like your at home here....
I'm on the other end of it even though I have some meds that are suppose to knock me out, they don't. It is getting worse, I think it is good when I can get 6 hours. Sometimes I still awake at 1 or 2...
/community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif My SSD has been approved with back pay to Nov. 04. I can't belive it and I...
Hester My Dr, told me that my lupus had caused my depression. It was a very, very dark place I've been in treatment for a little over a year & half. My lupus has been attacking my nerous system. I...
Peacesoul, are you refering to a book by Dr Andrew Weil? I don't think I've heard of the book Spontaneous Healing? Is it a new one? I bought his 8 Week to Optimum Health but haven't had a chance to...
A year agoJune I had my thyroid removed at that time they found out my Parathyroid levels have been thur the roof. They don't know why, but my calcuim level are down in the dumps but so is my Vit D...
I'm never sure when I'm having pain how to I tell if it is muscle or joint, sometimes I can't figure out the differance. That of couse unless it is both of them at times....
Audrey Ann Back in my late 30's I started having major problems with hot flashes, really hot flashes. I was seeing a male Dr at the time and of course he put me on hormone meds. I started having...
Dawn Welcome, before they figured out I had fibro, i was like every day I had been hit by a semi. and that went on for a year. Once they figured out the fibro and gave me some meds to help me sleep...
Jennifer It all depends on if your in a flare or not. When I am, sometimes I can only work for 5 min at a time on something around the house., If I'm doing better then yes I can go all day maybe even...
Okie, so glad you got good news. Sometimes I think just waiting for results is a lot harder than the problems the illness causes. I wouldn't worry about making the bed. My bed is made only when I put...
Chanya, I really don't know how you do it. You must be a superwomen.Being sick your self and having to care for sick children too. You family is in my prayers. Oldhippyrebel...
Hi Olivia's mom I can't even imagine how to handle a child with lupus. There are times I have problems being out in the sun, but I don't know how in the world you try and make a child understand that...
I don’t know for sure if it is an autoimmune thing or not. The research I’ve done indicated it can happen with age. I never asked if it was autoimmune thing or not. By the time they figured it out I...
Carol Have they tested your urine, There is a chemical that must be in your stomach in order for your body to absorb the B12. Years ago my Rhemy figured that out on me about 6 or 7 years ago. I have...
Stacie, I'm so sorry for the loss of your grandma. I will keep your husband in my prayers. I had my thyroid removed last summer and after that they found some other problems that they hadn't even...
For the dry mouth, I keep sugarless bubble gum in my mouth all the time. I can't go much more than 30 minutes without it then I have a mouthfull of cotton. otherwise peppermint mints....
I hate taking any pain meds so what I've found sometimes is just to fill the tub with hot water and soak in it. Plus find someone very good at giving massages. Nothing less than an hour. I've found a...
Welcome Denise, Sorry to say sometimes nothing works. But hopefully you will feel better very soon....
I had my hysterectomy when I was only 25 long before I found out about the lupus. They ended up taking one of my ovaries because I of problems but the remaining one worked great for 30 years. You...
No blood thinners, the only aspirin is that 81mg that the heart Dr wants you to take. I haven't been on any NSAID's for a while. ALmost 5 years ago I had the gastric bypass, The thinking was that the...
Have any of you all had to deal with a bleeding ulcer. I've been to 2 Dr.s this week and this is what they say I have. The Gastro DR is putting me in for a proceedure next week. I'm to get to an ER...
I have that problem, with the lupus attacking my nervous sytem. I have it in my hands, right arm and leg. I have to watch when I first stand up, because my leg may not want to move if it is numb. I...
Superwoman I can' even imagine finding out when I was in my 20's, I was in my 40's and ended up getting laid off after 27 years when they moved the work out of state . By just 1 month, I managed to...
Carol, your in my prayers. I've really found everyone to be very supportive. It really amazes me the support shown and I haven't replied that much. I think together they can get just about anyting...
I just had to do a 24 hour piss test this week. My parathyroid levels have been thur the roof for a year now but my caluim levels are way low, I think they were checking to see if I was pissing out...
When I would start to break out. I would raise the L-Lysine to 5 or 6 pills morning and evening and most of the time it would just go away and sometimes not even break on out....
/community/emoticons/yeah.gif As some of you may remember I had my SSD hearing July 1, The Judge ruled in my favor backing it up to Jan. 2002. I know the money won't go back that far. I orginally...
Hi Spirit, I want to welcome you and let you know this group is great, I haven't posted here all that much, but they really show me they care for each and everyone that post here....
Thank you all for the support. I can't tell you all how much it means to me. Some of the folks that I have talked to in the past are having their own problems now and I just can't add any more shit...
I get the sores I'm not sure if they are fever blisters or not but I take L-Lysine it is an amino acid. If I notice one starting I'll grab several of a morning and evening for a couple of days and...
When the Drs. first told me I had fibro. they put me on a low doseage of amitriplyine to help with the sleeping. It took about a month but then I had my first pain free day after over a year. It was...
I've never been one to write things down, especially my feelings. This is a little different here, you all don't really know who I am. so I feel a little safer saying things here, that I can't say in...
/community/emoticons/sad.gif Having a real problem staying out of that deep dark hole. I know my brain doesn't work the way it use to. I use to have a very sharp memory. Now sometimes I not sure...
Lynnwood, I’ve had cognitive problems and I was already seeing a Neurologist for some other issues, I had a friend with me at the Dr’s office about 3 years ago. She set me up for EMG(?? Wires to the...
Have any of you had a problem with your parathyroid levels being though the roof for over a year now. I had thyroid removed last year because of a number of growths, they also had to remove one of my...
I was almost afraid to ask where you all might live because of the problems that can come about from the internet. I love my Rheumy. When other Dr's couldn't figure things out she would nail it. I...
Patty Sorry about the pain I know what you mean, mine right now seems to be in my back and shoulders. But I have a question for you and Okie. I cought someplace where okie said she lived in Okla...
Lynnwood I'm sure you did great. What did their employment person have to say? I had my hearing July 1, the employment person said I couldn't do any work now. Once we walked out, my attorney ask if I...
I’m still waiting on the results of the Disability hearing but I do volunteer work and have been slammed this month so I haven’t had any time to get on here. I know I'm stressing about[b] the...
I was on Lyrica for years but last year my insurance said I needed to change because Lyrica cost to much. I know it cost and more than likely I would have had to stop on my own because of cost but I...
I'm not sure if this is what you want to hear, but I had the Gastr-bypass. My health greatly impoved the first 9 months. but then slowly it started going down hill. Then for about 2 years now I've...
Lynnwood about[b] 3 years go I started having cognitive problems, I started getting tested by my Neo, I can’t remember what they called it but they hooked my head up with a bunch of wires and then I...
Hi Audrey Yes Ginny, gave you great info. It has been over 12 years since I was told I had Fibro. I have got over a year with every day, every day feeling like a Semi had run over me. I hated taking...
Well the attorney was very happy about[b] how the hearing went. But now I’m just waiting on the letter from the judge. I was sweating it until there guy said that there isn’t any job I could do. The...
I'm finally going to have my SS disability hearing on Tues. Please keep me in your prayers. I don’t know what I’ll do if they turn me down again. The attorney says there is no way they will. But my...
I had to go several rounds of 50,000 units of Vit D once a week for a month at a time. I also was very very low on calcium They found it last year when they had to remove my Thyroid They couldn’t...