Thank you so much everyone, it's so great to find a group that I can talk to. I only know some people who know of someone with lupus. I have yet to find someone with it themselves, or with children...
Unfortnately she does have a positive ANA, and to be honest I can't remember the number. Upon being diagnosed, I didn't know anything about lupus and it was just another number and statistic they...
Oh...I just realized there was more than one post! Hello to you Lynnwood as well! Wow, 11 huh? It is very rare from what I'm told that she has it so young. I can't find anyone I know that has it so...
Hi Debbie, Thanks so much, it's just great to find a place where everyone talks openly about it. Doctors can tell me what they think, but people with it can share really what's going on. Yes, she is...
Hello all... I'm new here and started posting questions and such without even saying hi! My daughter is the one with lupus, she's 6 and was diagnosed at 5. She's got cutaneous lupus. This is all very...
My daughter has a high ro and la and does not had sjogrens. She's only 6 and has cutaneous lupus. I'm so very new to learning about all of this, so in all honesty I don't know what it all means. Our...
This may be a stupid question but have you tried Neutrogena SPF 70? I use it on my daughter who has lupus, she's 6. It's oil free and for sensitive skin. At $9.95 it's worth a shot!...
Wow!! This is the first time I'm hearing of anything like this! My daughter is 6 and has been diagnosed for a year with cutaneous lupus. I wonder if this is going to be a symptom for her? I certainly...
Hi everyone! My daughter who is 6 has cutaneous lupus. Thankfully so far she's not extremely sensitive to the sun. She can be out there an hour or so with significant spf 70, a bucket hat and...
Hi! I have the same concerns as well because my daughter who is 6 years old is on it. Not to mention the fact that getting her to do the eye tests is like pulling teeth. I was so worried last time we...
Last year my daughter who is 6 was diagnosed with cutaneous lupus. She takes 200 mg of plaquenil 5 days a week. Other than the butterfly rash that she initally had, she pretty much has no other...