thank you everyone for keeping her in your prayers....
Thank you Lynnwood, yes my daughter sleeps alot, 12 hours or so. She eats lots of fruits and vege's. I know stress is a real indicator and at her age she does have that unfortunately. School was...
So I went and picked up my daughters labs and her ANA was positive. Her Rheumatoid factor was positive and a test called chromatin autoantibodies was high. Apparently, this chromatin test is positive...
I agree with jessies mom about the high risk ob. One reason that it would put more stress on your kidneys is because during a normal healthy pregnancy, a womans kidneys are working harder because of...
Well the pediatrician called me back. Her RF came back +, her ANA came back +, and a new test came back positive that she ran along with the RF test. Apparently this new test is more specific to...
Patty, Im going to ask my rheumatologist at swedish in seattle for a good ped rheumy. My whole thoughts exactly on early intervention no mater what type of autoimmune problem there is. I just dont...
Thank you for all the support and thoughts/prayers. Its very hard esp on her. I just dont want to see her crying uncontrollably anymore because of severe pain. I know I have to be the strong one but...
Sure, her new peadiatrician said she would need to go to one...
I couldnt find my prior post about my young daughter and my problem with her pediatrician, sorry. Finally after a few months of waiting, my daughter saw her new pediatrician. I took my daughter in to...
Hi Marj my mental exam took about 30 minutes they did all kinds of test. They say I have anxierty and severe depression from chronic pain syndrome and something else. I guess every one has some...
Thank you so much everyone for the advice. So her update is that at her young age she is now going through puberty. I think that can explain why now more symptoms are showing up. I will get more pics...
There are community health clinics that go by your wage. There is also basic health plans that you pay very minimal for. Those are usually through the state. Though if you go that route, there are...
Well took my daughter in to the doc and of course the malar rash was not visable but the rash on her forehead and nose was. She had the joint aches and told him of the other symptoms were she has 6...
Awsome job and awsome courage. Congradulations. That was a great article. Thank you for advocating....
Lyrica works wonderful on my nerve pain. The only side effect I have is it makes me feel like Im drunk so I only take it at 6pm and by 10 Im able to sleep good. I also would never ever think of...
Im so sorry about your lose. I do know how it feels to loose a baby. I hope your healing well mentally....
Have you ever had a miscarriage?...
marj I agree about the press. The more they down grade those on pain meds the least likely we will have any options left to control our debilitating illness. I have gotten so tired on the nonstop...
Im sorry I have not responded yet. I was staying out of town for my rheumy apt that I do every 2 months. We went to the zoo for 2 hours and I had on a long white shirt and spf 55 (highest spf I have...
My daughter who is 9 developed a rash on her forehead and nose when we were in AZ in March. It went away when we got back home but now over the last month the rash has come back. She has been...
yes I have had them at 6 weeks pregnant. Better safe than sorry. Expect to have many more. congradulations...
Ive never heard of yellow flies but it sounds like you need to see a doctor esp since you are having chills....
thank you serafena. My sister has been through so many intensive drug treatment programs its not even funny. The police or ambulance wont do anything because she all of a sudden isnt suicidal when...
It was originally used as an antimalarial drug. It has an antiflamitory agent which originally was used to decrease fever in those with malaria. Im not sure how they figured it would work with lupus...
fibromama I totally understand where you are right now. Read my post that says: what to do with my sister. Your neice sounds alot like my sister. She also is having problems. I think the mental...
I will try to make this as short as possible but I truely need advice on where to go from here. My sister has been bipolar for 30 years. Ten of those with a confirmed diagnosis. She has only been...
Deb I understand so how hard it is to be helpless over a child esp one who is in so much pain. My daughter who's 9 has had anemia, joint aches (crying pain), fatigue, fever of unknown, rashes, now...
I would think that by now you should have some relief although it could take up to a week. sorry for your pain...
Lets see here: pcn = anaphlaxix sulfa = angio edema keflex = angio edema lovenox = fever of 105 methotrexate = pulmonitis all beta blockers = pulmonitis arava = hypertension 200/110 banana's =...
Isoniazides has a side effect that can cause lupus like symptoms. Have you checked the drugs side effects that the pharmacy should give you or do you get it from the health dept? When I had to take...
Im sorry, about your missing his visit. I bet you miss him terribly. Hope you dont end up in a major flare....
How did the picnic go and your visit on Saturday? Hope all went well....
Im so sorry your going through so much. My thoughts will be with you, your daughter, and your family. pearless...
If it were me I would stay out of the sun. If you are to see your child on Saturday than you need to feel at your best. Do it for your kid....
Catzz This drug saved my life!!!!! I have been on literally everything. Arava (off due to hypertension reaction), Methotrexate (off due to pulmonitis reaction), Cellcept no response, and Im sure...
Have not had to have cortisone shots in the joints, but I did have surgery on my right had in Feb for trigger fingers, trigger thumbs and carpal tunnel. Supposed to have the left done but the trigger...
when you take more than 7 mg of prednisone than you have to wean off of it. at 7 mg your own adrenal glands, located on top of your kidneys, shuts down. they do not release cortisone anymore. so if...
i was pregnant 4 times, had 3 babies and 2 losses. yes that equals 5. one pregnancy was twins. after my 2nd pregnancy loss my doc put me on a baby asa. make sure your doc checks you for the aps. this...
I Had a court date set but it was cancelled. The judge that was reviewing my medical record a few months before the hearing approved me on my lupus. One important thing was the functional capacity...
I dont want to scare you just the facts here for me on mtx. I took it for 18 months. I ended up having to stop it immediately after the infectious disease doctor did ever test to find out why I was...
ides, Im a R.N., but for the past 5 years, latex products have gone by the way side. Gloves are now or was 5 years ago non latex. So basically I have really come in contact with latex, nor have I...
Great now I cant eat banana's. My lips swelled and tongue, numbness and burning to both. Ended up with wheels (sp) that have been coming and going for the past week. Dr. said I should have went to...
uh oh guess what, just found out that the courts changed the sentence to work crew. She still escaped the jail time once again and is out. There was a whole write up in the local newspaper regarding...
Just an update; my sister with bipolar is now serving 3 months in jail for hit and run as well as driving under influence of drugs. Thanks all for the support. pearl...
Thank you everyone for the response. Here is what happened, last night my husband and I were stopped at a traffic light. We saw 3 police cars drive by, I happened to look in the back of the third...
rosie what does it mean to get a section order? Today has been tough, I did talk with a police officer and he assured me that he will go and arrest her at her home for her warrents. He also said that...
I have never been to this specific site but Im looking for anyone who could assist me in what to do. My sister and I have pretty much been astrainged for the past 4 years. I was there for her and...
I come and go on here sometimes, but have just been diagnosed with diastolic dysfunction with ejection fraction of 50-55% all four valves have a trace of regurge. Back in march my myoglobin was 1089...
Back in march, went to the er because for 1 1/2 weeks I had shortness of breath. This particular day the short of breath feeling was worse and was having difficulty every time I moved. The doc said...