I hope you can get a diagnoses but it's one of the hardest diseases to diagnose. There are lots of test the can run to check. Unfortunately it usually isn't confirmed till it starts to advance. In...
I had that issue also and the only thing that stopped it and gave me my life back was plaquinel and yes it can be related to lupus. From what I was told it is a rare symptom of lupus...
Yes plaquenil took 3 months to build up. I saw a difference after that. It has really helped. I still have break through symptoms from time to time but not as bad as they where before it. Give it a...
I have been trying to get an answer to mine for 14 years. I struggle al the time. No one seems to be able to give me an answer. I even had chronic hives for a year and a half which they sent me to...
Hannahp, I am sorry you are going through this rough time. You are not alone. I do get them all over and even with Plaquenil I do get them with heat as well as extreme cold. Also like you they aren't...
Sorry it took so long to get back to you. Been crazy here. hives are finally getting better.Puppy has been doing a great way of taking my mind off of it. I told that last jerk of a dr that it was an...
I just can't figure out why it got better with antibiotics...
Wow a lot of that sounds acurate and it says lupus can cause it. I will see if the ever ran my blood for this thanks. Mine also flare in high heat too though....
Yup! I wish it was that easy, lol...
Nope it's here again. Biopsy doesn't come back for a week. At least my new puppy is helping me take my mind off it. He's 6 months old...
They took another biopsy hopefully this one will give some answers. They said it can also be from sun exposure. I told them I was wearing pant (most hives are in my legs) they said it doesn't have to...
Ya I get those brain fogs too so ya they probably would be. Lol. I did get some relief to be able to sleep but today they are back :( there big and painful but so far not itching knock on wood....
Jan, Thanks, ill keep you in mind and I will hide the knifes lol they gave me a shot of prednisone today cause they where so bad that I couldn't stop scratching. I thought I was going die. Started...
Thanks for the tips I'll try them. As far as the breathing., today it's not too bad. However I already had asthma, lol but it's never given me hives before. I didn't know that one hmmm...
My hives are in full flare mode today thanks to lupus. my body burns and itches I just want to take a knife and remove my skin some days just so i dont feel this anymore. Do they sell skin and new...
this sounds like my situation. I have had urticaria for 15 months. Has your doctor tried plaquinel. It helped me. they told me they didn't know what i had but was sure it was some autoimmune disease....
I have been feeling that way for a few days now. As you may remember from prior posts. I caught a cold/infection a couple weeks ago which set me back. the plaquinel was working like a charm till...
I'm with you jan I drive 90 miles for my rheumy cause she was the only one that did anything about my issues. Mo would drive further if I had too...
Thanks for the tip...
Amen to that acquiesce! I haven't had side effect yet but I've only been on it for a month and a half and I feel tons better. I was concerned it wasn't working cause I broke out in hives but it...
That is very true! The other thing about plaquinel is it protects organs from failing...
I have been in that position for quite a while. The only thing I refuse to take is prednisone cause it made me wired and then depressed when they would stop it. I refused to take it again till they...
I have been in the same boat. Don't give up. It just takes the one doctor to finally see it or to be willing to try something. I had to change my doctor after having them for years cause she wasn't...
Also same here! I have been dealing with it for 10 years of doctors saying maybe lupus. The past year has been terrible. Including hives all over my body. I feel like a lepper some days and...
Is it normal for lupus to freak out with colds/flu even with lupus (I'm NOT on immunosuppressants)meds? I'm hoping I don't need to be concerned that plaquinel isn't working? I do have an appointment...
I have been diagnosed with lupus. They put me on a drug (Plaquinel) to control the lupus symptoms. It worked like a charm for about a month but when i came down with a cold I flared up. Now i am...