Hi Kara, Had this for the first time about a month ago, in right eye...I have been Dx'd with Lupus for 8 years now also have Sjogs. I also have Diab II and take Plaquenil. Dr. Rx'd an...
Hi Misscali, Sorry to hear what you are going thru. I had chronic diarhea several times a day for 5 months straight. This came on suddenly one morning after my husband and I returned from having...
This first day back on CC I broke out in hives again. Has anyone else had that experience? She took me off again for good. Plaquenil, coumedin, asiphex, diovan, advil, synthroid, Vit D rxd, calcium...
Judy I am so sorry you are having these painful issues with your eye. I hope & pray it will get better for you soon. I am glad you found a good Opt. It is important to find the cause to help prevent...
Today my Rheum put me back on CC to take 1000 for 2 wks then 1500 from then on. I will see what effects if any I get. She said I really needed it to control the disease. Also told me that shortage of...
Seems like we are always having to have our blood taken. Before all of these problems started going back about 8 years ago, I was told I had very good veins to draw from, the techs were overjoyed to...
Jessie Rose, I did not have any signs of a kidney problem but my Rheum. Rxd CellCept. I was on CellCept for 1 month at 1000mg then went to 2000mgs. The second week on the higher dosage I broke out in...
Hi, I have had pleurisy (in the beginning it showed on the CT scans) for over a year since I was diagnosed as having a pulmonary embolism (clot) that I was told caused the pleurisy. My pains are...
Hey Carol Thank you for replying. I am so sorry to hear that you have so much pain. I can only imagine what you must be going through. I hope you can begin to feel better. I am not on Oxygen. Amongst...
Has anyone attended Pain Management Treatment for Pulmonary Pains such as Pleuritis and Pleurisy where medications were not working and if so did you find any satisfaction with it....
I just started going to my Rheumy,she came highly recommended. I feel the way you do for personal reasons I don't want any blood transfusions, but I had asked several times of the Dr. and techs if...
May you continue to have good results with the Rituxan, your Rheumy sounds very good and she is working with you. I just must keep in mind not to panic when I get that way, it only makes things...
Heidi, My goodness, you are way too young to have gone thru and still be going through all you are, it just isn't fair. My prayers are with you. You are very strong. I will inquire about the Rituxan...
Hey Heidi, This is the second am in a row that I have seen an improvement in my pain, had a good sleep last 2 nites after months of going thru it. My pleuritic pain still bothers me but not quite as...
Heidi55529, Hi, thanks for replying. I do not have any kidney involvement, I have had Lupus diagnosed for the last 7 years along with Sjogren's. The CC is to improve the inflamation taking place. I...
You should consult with your Doctor regarding the use of the Inhaler. I do not use an inhaler nor have ever been rx'd one. Would you have asthma?...
JessieRose I have mixed feelings with the CellCept, I have been taking it now for 1+ month, dosage went from 1000mg/day to 2000/day the second month. I also have APS and Gerd and must take Coumadin...
I was just recently rx'd with a rather high dosage of 2000/day but do not have any kidney implications with my Lupus. Please let me know what it was rx'd for Thanxs Carol Wattsnex [3][b][i]Meds:...
Hi Su, Welcome to the Group. I too am new to posting on the forum, though I have been a member for a couple of years, wish I had posted sooner. I think you will find everyone very friendly and eager...
Thank you Lynnwood for sharing that information with me. Carol...
Lynnwood, Thank you for the reply. I had no idea that CellCept was used for cognitive issues. I believe the purpose I was Rx'd Cellcept was for an immunosuppresant. My dosage was first 1000 then 2000...
Judy, That's wonderful. You have my prayers. I know you will do just great for the cause. Carol...
Always Rosie, I was put on the Prednisone in an attempt to reduce pleuritic pain, which it did but then stopped and tapered off after 3 months. Prior I was taking oral meds for the Diab II control...
Members, Thank you all for your warm "Welcomes" to the Group. I feel very fortunate to have the opportunity to correspond with people such as yourselves that are going through this too. It is like a...
MJLD, Sorry to hear you are having so much pain, I think I know what you are going through. I too have high anticoagulant antibodies and am on Coumadin for the rest of my life. It is scarry the first...
Always Rosie and Members of this Group, Thanks for welcoming me to the Group, I have been a member for several years but have not posted. I live in NJ USA, married 2 children and 2 grandchildren....
Hi Connie, My hands, fingers and wrists joint hurt and are stiff to open and close almost constantly, it happens bilaterally ie both sides at the same time. I find it hard to hold a pen, toothbrush,...