Hey everyone, My insurance decided after leaving me in the hospital (being switched in the middle) for a week that they weren't going to pay for it. I had the vas-cath put in my neck and everything...
It is different from the MRI and my insurance (believe it or not) did cover it...... SPECT scans show more "brain function" than the MRI b/c it mostly shows grey and white matter. I would ask for it...
Hi, I was wondering if anyone knows of any insurance company that will cover someone with Lupus? I'm sure I'm asking for a miracle but figured it couldn't hurt. Thanks...
Hi there, I saw a neuroologist but my rheumy is who really helped me. Did they do a SPEC scan on you? It's a nuc. med. study where they scan your brain and then give you contrast and rescan your...
this a few weeks ago on here. I had to get off of plaquenil as well b/c of toxicity and benign tumors behind my eyes. I haven't found a replacement except that I started my cytoxan every month now....
I was just wondering if anyone has had phoresis treatment for SLE? I'm going to be admitted for a week and receive it for 5 days and then my cytoxan again right after. Just curious??? Thanks...
Good luck and enjoy yourself........
I have problems swallowing sometimes and some foods I choke on more than others. I don't know if this helps or not but I find it's gotten worse these last few months and I didn't have this problem...
Oh my God, I will keep her family in my prayers and light a candle for her. That is so sad but with everyone on this site praying for them and then making a prayer circle -- I'm sure God will get...
Hi there, I did Cytoxan every month for almost two years and then decided to quit. I was off for about 6 months and started doing it every three months and now am back to every month. I get...
Thank you for the nice welcome. I guess I should share my history as it seems everyone else did. Yes, I guess you can say I've been at this for a little while. I've always been a "sick" person if you...
Hi there, I take neurontin 900mg TID for seizures, neuropathy, and fibromyalgia..... It doesn't help me sleep but it does prevent the seizures and "passing out spells" that I use to have. I've been...
Sorry to hear about everyone's problems. I had the same problem with my eyes (inflammation and pain) and found out not only is it the Lupus but also Plaquenil toxicity. I can no longer take the...
Hi there, I do have endometrosis as well as Lupus, Fibromyalgia, Sjogrens, along with a few more things. I've been on continuous hormones since May 2000 (No periods since) and it has helped...