Butterflake- Is the numbness apart of lupus or fibro? I don't have fibro, but I dx with lupus and sjogrens 2 months ago. Any chance the numbness could be med related?...
Butterflake- Just curious, but where did you experience your loss of sensation? I sometimes feel it on the left side of my face after I'm in the sun or fluorescent lighting...
I've never had that side effect, but I just posted something about plaquenil a few days ago. I'm pretty sure I've had some strange side effects (numbness, muscle burning/weakness) that started about...
Thank you both for your responses. Between the doc appointment, blood work and med. side effects, I think I'm starting to lose my mind!...
If the labs vary and now my ANT-dsdna is normal, after being highly positive (but my ANA, SSA, SSB are still positive), was i misdiagnosed?...
When I forst had bloodwork done (when symptoms first started), I tested highly positive for the anti-dsdna.....1 month later (and 2 weeks after taking plaquenil), my anti-dsdna is now normal. Is this...
I think doctors need to listen to their patients more.....I think whatever was going on has stopped, but I still think it was the meds (no matter what the doc says)!!...
About 1-2 weeks after I started it, I started having a slight burning sensation in my arms (possibly muscles). After 5 days it went away. 1 week later I experienced a "fuzzy" sensation on the left...
Has anyone experienced side effects from Plaquenil other than stomach upset? I've been taking it for almost 6 weeks and have been experiencing some strange things.....I am convinced it is the med,...
I think these tests do fluctuate. I've had 2 rounds of blood tests in the past 2 months, and the results have changed. Initially, my ana, ds-dna/anti-ssa & ssab were all positive. I had those tests...
Chaya- Thank you for your response. My doc said I was highly positive for that antibody. I didn't know that high anti-ro antibodies were a sign of sun sensitivity. That actually explains a lot...
Has anyone heard if there is a connection between anti-ro antibodies and vasculitis? I read about it online and I tested positive for that antibody (I don't think I have sjogrens), so I wasn't sure...
Hi Stacie- I was a little concerned b/c I am noticing some discoloration on my fingers and legs. If I press on the area, it feels a little sore. I read that there was a connection between vasculitis...
I was hoping that someone could give me his/her experience with vasculitis. I read about it on the lupus foundation website, but I'm still somewhat confused....
Hippiemom- I am going to bring this up next week at my docs appointment. I did a little research about Fibro, and it does seem similar to Lupus, so I'm assuming for the time being that my lupus...
My hands and feet seem to be OK. It's mostly in my arms and upper back......its's not exactly painful, just achy and irritating. Are the muscles involved in lupus? So far, I've really only...
For the past 2 weeks, I have been experiencing a strange feeling in my arms/legs (on and off) . It feels like a slight burning sensation, especially at night. When I wake up in the morning, I'm fine?...
I'm not sure, but I think the nausea and fatigue may not be from the meds, but possibly from the fluorescent lighting in my classroom. My skin also gets a patchy red rash from being there too long....
Thanks Rosie- I guess I'm still trying to figure everything out- I feel like since everything started (about 2 months ago) I have no idea what to expect next. It seems to be something different each...
My symptoms of lupus can on strong about 2 months ago, and I actually have been feeling good lately with the exception of some joint pain. I started plaquenil 16 days ago....... When I got to work...
Canuckgirl- We definitely have the same situation- I was dx in 3-4 weeks as well and my rhumy immediately prescribed me plaquenil. Did you also test positive for Anti-DNA/SS? What were your other...
HippiMom My symptoms came on very fast, and only about 2 months ago. I started to take Zyban (Wellbutrin) to quit smoking and from that day on symptoms started to appear, starting with fatigue. I...
Thank Hippimom- Another question...have you heard of someone's symptoms coming from nowhere and strong?...
Thank everyone for your responses. My symptoms came full force about 2 months ago, and since that time I have lost about 5 pounds (which is a lot for me- currently weigh 121). I do have a question...
Just curious if anyone started to lose weight after when symptoms first started? I don't think my eating habits have changes, but I am slowly losing weight and having trouble gaining it back. I guess...
Did your symptoms arrive like mine did? Within a few weeeks?...
Hi Ginny- Thanks so much for replying. Luckily I was able to get a doctors app. for tomorrow so I can ask him about it. The only reasom I find it to be strange is b/c the actual lupus symptoms just...
I'm not sure, but I think I may have Raynauds (still have to talk to the doc since it just happened this weekend). Last night my arms had a strange feeling to them and my fingers were ice...
Patty- Thanks- I was just curious (recently started gallstone attacks- not something I expected). Sorry to bombard you with questions (not seeing the doc again for a few weeks).....I need to start...
I forgot to ask.....any possibility that gallstones/gallstones attacks have anything to do with lupus?...
I first went to my primary doctor and he said that it could definitely be the start of lupus or rheumatoid arthritis (according to my symptoms and ANA results). I immediately went to a rheumatologist...
My doctor just started me on Plaquenil....started taking it this past Saturday. So far, I haven't really had any side effects (hopefullt that will continue), but I still feel like my symptoms are...
Hi Ginny- Thanks for writing. Like I said, this is all very new to me, and its hard for me to figure out what is and what is not lupus related. I always assumed that lupus came on gradually, but from...
Hi Pat- thank you so much for your reply. I did speak to my doctor and he said that my temporary rashes could definitely be from the lights. I actually never thought I had lupus, and I honestly can't...
I have recently been diagnosed with lupus and I am still slightly confused as to what I should expect (as far as symptoms). For the past 2 weeks, whenever I am exposed to fluorescent lighting...