It was absolutely a wonderful medicine while I took it. eliminated lupus fog, and found myself having motivation that I had not had for a long time. Hester...
I used to get the mouth sores in the corners of my mouth, in my mouth and in my nose. the dr. put me on folic acid for a few months now, and I have almost no sores anymore. Hope this helps. Folic...
Hey Hippie, I am sorry to say that I had to stop Methotrexate because of side effect that caused me to have really dark depression. this side effect is rare however, so probably you will not have it....
Hey Morbius, My only experience with Methotrexate is that for the first few months of taking it , was wonderful. I was near about s symptom free sometimes, and even then the symptoms were not that...
Hey Missionsminded I have a red face that reacts to the sun arrives iwth Lupus symptoms. but I do not have the full malar rash that some do. I never had the bumps of rosacea either. Today is a good...
Hey again Caring, I need to be better at replying. If I get depressed, or really badly sick I tend to withdraw. Hopefully I will be better tomorrow than I have been yesterday. Seventy years old. well...
I tried to find the side effects of benslyda, but don't think that they printed them yet. could be wrong. I think that one of the posts about it said it might be ready in 2012 or the next year. Hester...
I don't think that they were waiting. I think they tried hard to create a medicine just for Lupus. according to my rheumy there are not any meds specifically for Lupus. there are other meds for some...
wouldn't that be wonderful if we could have this new drug? no steroids ever again. Methotrexae's ability to work for me against the pain, and the diarrhea, and the weakness and loss of energy is not...
Hey Marji my pain is on the right side too. when I fed my symptoms into the internet, it determined that I have gall bladder symptoms. and I do have those symptoms, but not real sure what it is. I...
http://www.latimes.com/news/nationworld/nation/la-sci-lupus21-2009jul21,0,46165.story I did not know if all of you have learned of this drug. i know you probably have, but just in case wanted to...
I have the same pain. have had it for a long time. mine is worse today than it ever was, but like other pain it goes away and comes back. mine starts in my right rib cage, migrates to my side and...
Been awhile since I posted. February I think. Good to see more new people here and some good news for some. the Methotrexate that they started me on has been really good for me. The lupus fog is...
Sunshinesyl Still praying for you and the mother and your grandson and your son. Will be thinking of you this day. I may send you more prayers. Will wait for news when you can provide it. Hester...
Thanks Melissa and Amy. I hope the trend will keep happening too. Hester...
Hey Marji, I don't have any answers for you. but surely someone else will. my mother had to wear these support hoses everytime she had to go to the hospital. I will be glad to see what other people...
I have been taking Methotrexate since February 17th. Was still really sick until two days ago. Two days ago, I woke up early, and had energy enough to clean my house, one room at a time, but it is...
sending prayers. I have been there, can empathize with you completely. Please let us know how things go. Hester...
hey Carol, I thought about this for a few minutes. i wish I could at least say that I am holding on. but just came out of flare that lasted a few days. and plaquenil is not keeping the sores in my...
Is it hard to be a moderator? I didn't ask to do this, because of being sick so much and not being able to respond everybody, and now it is worse. another stroke, another episode that they do not...
Hey Okie I use the words stupid a lot too. i have called my own UTI a stupid thing. and sometimes I call myself "stupid idiot" when I make mistakes. /community/emoticons/yeah.gif And my prayers also...
Hey Kara, I have not had this problem myself. My mother got pink eye often. she was diabetic, and totally paralyzed on her right side. do not know if she really had pink eye, or something like you...
Hey Ginny I think that maybe you are right. I don't drink coffee so much anymore, and I use lots of creamer when I do drink it. Used to drink a lot of coffee, sometimes two pots a day, with a lot of...
Hey Ginny, I have the pale colored poop also. I would never have given it a second thought to this, if you had not post this for us. this is remarkable. the website is really good. I had no idea this...
jewellz21 I am not the best one for this advice. I have not had this symptom that I know of. BUt all of my life until I went through menopause, I was anemic. now my blood count has been a 12. I...
UCTD and MCTD. thank for this web link. another question to be added for the Rheumy Hester...
Beware of NSAIDs!!!! Another question for the rheumy. I take Nsaids. Arthrotec. do you think that arthrotec is causing the rash? thank you for your response Heste...
Hey Kara Ranitidine It had no effect at all for me. Has it helped you? The edema I have had, but not since I was sent to a rheumatologist. but it always comes back. The rash on my legs and feet are...
Hey JM, I tend to like soap boxes. /community/emoticons/turn.gif there is truth found in soap boxes even those political soap boxes. I think I laid all my fear out for eveyone yesterday. pain is a...
Hey JM, I have nothing more that I could tell you than the others have. I am not as knowledgeable as some others. I think it is really good that you never believed that your daughter was faking. YOur...
Hey Ginny, my back gets really sore when I walk, just in the house walking makes the middle of my back hurt. some days are worse than the other days. I get dizzy too, sometimes, and I thought that...
Hey all, I have been back to the hospital again. My middle child, my daughter, has it in her head that she must do something about me. she says I forget my meds to take them sometimes. said my kids...
Hey Carol, looking at the posts. I am sorry that I have not responded in a long time. been in the hospital again. I do not wish anything bad to happen to you at all. but sometimes when a nother...
Hey Tammy, I remember having less energy than my mother when I was a kid. she could walk all over town, and still be energized. I on the other hand was exhausted waiting for the bus to come pick us...
Hey Melissa, I have been jotting things down, and trying to get them into some kind of order to take them with me when I see the doctor on the 23rd. Hopefully I will have it completed and in ordered....
Hey RedRuby Welcome to the forum. I have no additiional information to give you, and it seems you already have some good info. Hope your day will be better for you. Hester...
Congratulations Donna for your approval. It was a long and drawn out process for me to get SSD. I too admire the ability to do these things as you did them. Hester...
Hey Carol, I too have the comprehension problem. Have to reread people's emails over and over, in order to respond to them. and the Right side pain that I have is not as sensitive as yours. I cannot...
Hey Kiwitoo and others. I found more answers that I seek today. The diarrhea and the ability of Lupus to affect our gastrointestinal system, and why does my rheumy or my reg doctor talk about it?...
PattyLatty and others. I went look forward what I needed to know without to create another topic. I was wondering if Sjogren's has the same effect as Lupus, and how can we know which one it is....
I almost always do too much. Especially in the good days. I want to do stuff when the good days arrive so that at least I can get some stuff done. But it sounded like me;) going overboard. gettinng...
Hey Piffle, I do have swollen hands and feel sometimes. but not just in my joints. So I assumed it was not Lupus, but maybe circulatioin might not be good, or some such thing. I too wish to welcome...
Hey Tele, I apologize for getting back to you concering your post. I am glad that you found us, and it seems you are getting some good advice from many of us. This is usual. unusual sometimes for me....
Hey Pat I have more pain in the morning time, but not too bad. the worst part of the day for me is afternoon and evening. I am exhausted by bedtime most of the time. Have some good days like a week...
[i]I was told I could have another stroke. [/b] Hey Tink2. thank you for the advice. Something else that can find us have a stroke. No end in sight sometimes. I see that Google has provided to me...
I too think that I am a senior citizen. When I first found myself in this forum, the people seeme to be much younger than me. It was good to know that I am not the only 62 year old woman here. You...
Hey Bill Kasey, Just treating depression is only treating the symptoms, not the cause. No wiser words have ever been said according to me. I think I have truly been misdiagnosed sometimes in...
Peacesoul How are you? What did you do to keep the home and friends? your car and home, do you still have it? you maybe have more strength than you realize. Can you share what you did to keep you to...
I don't have a lot to add either Knbc95. i was unable to find a support group in this area. Even google gave me nothing much, I did find this one woman in my area, on Myspace, who has lupus. But as...
I have it in my own record that I am allergic to sulpha drugs. I tried to take them for a kidney infection, but they make me sick, makes me have nausea, dizziness, and woozy. So I best add this to my...