Rose: I've had a hard time finding others with discoid lupus but from everything I have read, if you're going to have lupus, this one isn't so bad! (How about that-something positive!) An expert on...
Welcome rosesj: Even though I'm sorry for your diagnosis, it's nice to know there are other people out there with the same problem that you can compare to and commiserate with. The rosacea seems to...
Hi everyone I have been taking Plaquinil for 9 months now and don't really even understand why. All my doctors say is "it seems to help" but THEY don't know how or why. Despite sun avoidance and...
My lips were so bad that I was peeling huge flakes of dead, dry skin off of them. I found that using Desonide, which is a very low dose (.05%) cortisone ointment on my lips at night whenever they...
Hi elcamino- I have had Reynauds since around 1995 but wasn't put on meds until it became so severe I had blisters on the ends of every finger and toe (they used to call them chillblains). I was...
Thank you everyone! I plan to check out those sites later today. Aloha55...
Hi AlienWife I actually just bought a hoodie from Lands End with SPF 50. Nice to know there is the possibility of a vacation-I just need to be brave and innovative! Thanks for the encouragement!...
Hi I have found also that my hair has regrown although sparsely. Even after a year the area is still uncomfortable to the touch. I haven't tried baby oil but my hairdresser told me that massaging the...
Hi to all Thank you for your replies-especially to Jill who has discoid lupus. My eye doctor that I have to see due to the Plaquinil says he's heard of it but never seen it. It's difficult to have...
Hello everyone: This is my first posting and I have many questions but will start with this. I have discoid lupus and Reynauds. I can't get too cold and I can't be in the sun. I feel trapped inside!...