/community/emoticons/smilewinkgrin.gif Thanks so much. I guess time will tell....
Hi okie, yes I am happy to do this. I don't know Barb, but am happy to do this. I was sick as a dog when my mom passed away. There is a great load of stress and grief. Blessings,...
Thanks for your help. I am on lots of meds. Plaquinil, lodine, skelaxin, cymbalta, levoxil, lyrica, vit. D Does hepatitis symptoms come and go? My bm's are not light colored now and nausea lifted. My...
When I have even a little inflammation my voice gets raspy. However I also have hoshimotos thyroiditis from the lupus. It comes and goes. Sometimes I can sing and sometimes I can't. I'm sorry. This...
Hello AdamDoubleYoo, Wow you must feel terrible. I can tell you my symptoms an what was found. When my body thermostat was off it was my thyroid (Hoshimotos thyroiditis). When my feet, hands, nose...
Are keep wondering if I may have hepatitis on top of Lupus, because they just found bilirubin in my urine. I liver panel is being done and kidney urine tests. I have had boughts of nausea and pain in...
Hi Couchtater, I was diagnosed @ 6 yrs ago I believe. I am on FML which is wonderful. I am a mobile psychiatric rehabilitation specialist and I am on the road in UV most of the day. I am so very...
Hi Mr X, Im sorry you are feeling so poorly. Feeling weakened and vulnerable is one of the hardest places to be. I will try to remember what i can about my testing time. I was sick off and on for...
On the higher doses I get Nauseated and nervous, so I am not hungry. On lower doses I and ravenous!...
I have spent 6 years refusing depression meds and counseling. Once I listened to my doc say it might calm the flairs down, I was able to agree to it. Pain and flair were less intense so I felt...
What is interesting is that my doc sent me a note saying my bloodwork was within the normal range. I then called her and told her what I saw. She never received the last page of bloodwork on the...
Thank you. This is my third show of trace for the protein but my first for the bilirubin. Makes me a little unnerved....
I'm so sorry for your loss, I became terribly sick when my mom died of cepsis. Stress is a terrible trigger for Lupus. I have been off the forum for awhile too and am back on. I hope you can get some...
Hi Lost husband, I'm so sorry the meds are making your wife so drugged up. I was like that once from meds and the doc was able to adjust it to be less intense. I can tell you something I learned to...
Hi Everyone, I am back on the forum since i moved to be closer to my daughter and grand daughter. I am not doing well lately. Urine has bilirubin and protein in it. So very tired and nauseated....
Hi Mandaloo, I have been off this forum for a long while as I have moved and faced many trials. My blood work rarely shows the inflamation markers, even when I am sick as a dog. I'm so sorry your...
Hi Everyone, I need to take a break from HW for a little while. I have been so busy going to trainings for my job, packing to move and now there are septic, well and furnace issues that I need to...
How wonderful! I am crazy about my grandbabies! God bless you even more. Tammy...
I got a raspy voice, mouth sores, and sour stomach all at once. Hope this helps. Tammy...
Hi Heather, gosh I'm sorry to hear about your situation. I don't understand why you were not given FML. Is there a grievance procedure? As far as the pain in joints goes, it took the same drugs you...
Hi Jennifer, I don't have a computer on weekends so i got this today. My heart is heavy as I know how it feel s to be cheated on. My first thought is that boundries need to be set.He really can not...
Oh Diana, I'm truly sorry you feel so bad /community/emoticons/shakehead.gif . I've read about strokes with the Lupus, but have not experienced that myself. I'm sorry to hear you are. I get what you...
Hi Jeannie, before I was diagnosed, I used to run 10 miles a day. I would come home and take care of my baby and work at night. Then I started with symptoms. They get better ...they got worse. I am...
Oh...I sure to feel your pain and sickness!!! /community/emoticons/sad.gif I feel like i have the flu and i have to sleep. There is so much I avoid for fear of feeling that sick. I want to go back to...
/community/emoticons/yeah.gif HOW WONDERFUL!!! GOD BLESS YOU ABUNDANTLY!!! Tammy...
Hi Amy, I'm so sorry you are in all that pain /community/emoticons/shakehead.gif . I know pain can wear a person down in so many ways. I noticed you didn't mention plaqinil on your list of meds. Have...
Great reply Butterflake [img]/community/emoticons/idea.gif ! I hear thumping like a base drum when I have inflamation! I never thought to tell my doc. I guess I was too busy dealing with the pain,...
Hi Sweet Girl, as I read what you are saying my heart goes out to you. This much I can tell you. I am a mental health caseworker and I raised children with mental illness. I never understood what it...
Hey redkneckwm84, I go mud boggen with my daughter and son-in-law that I am moving in with.LOL Tammy...
Hi Patty Latty, I just read your cry for help and I sooooo know what you are talking about . As I try to sell my house and imagine living with my daughter who has a 2 yr old daughter and my daughter...
Carol sorry I am late with this. Gosh what hard time for you. Please know my heart is heavy for you. Blessings Tammy...
Hi JoJo I swing both ways. When I am in a real active flair it makes sleep almost impossible, especially when I have fevers and shakes from chills. I wish I knew what would help. Herbally I have had...
These were Hilarious!!! /community/emoticons/idea.gif Let's see mine is Lovedby Him because I'm lousy with male relationships but always loved by God! I'm never alone when in pain and shaking with...
Hi Trish, Oh My Word what a mess!!! I'm not sure I have any words that can help, but I will prayerfully try. I have neighbors that are loud when I need sleep, so I wear earplugs or I put sloothing...
Hey Azrose, I have raynayds with the Lupus. Lots of us do. However, i have a good friend who is fairly healthy and he has raynauds. Not sure if I'm spelling it right but if you go on line I'm sure...
Hey Great Post! I am doing really well since the Lyrica was added to relieve the pain in my muscle in my back and the nerve it is squeezing. I have break through pain that makes me wince, but I am...
Hi Stacie, I think sometimes we plan things and crap happens. This does not mean you are horrible. Yep our kids have disappointment because we get sick. Truly these experiences will teach her to be...
Hi Mati, I never experienced this. I would definately talk with a doc about it though. Blessings Tammy...
Hi Carol, so good to hear you got through the cath. The pain I had in my wrist cath was nasty /community/emoticons/shocked.gif ! I can't imagine in the groin! Then they had trouble getting in to...
Hi Jenna29, I hear you. I remember when i was with my husband and getting sick a lot, i felt like hiding and not joining in everything, because I truly felt horrible when i did. There was a lot of...
Hi Christine Welcome ! I am ANA negative most of the time. This drives me nuts because I feel sick as a dog and by golly it should show in the blood. My Rhumey said, "Presently we have no true test...
Hello King 1234, I am sorry to hear of all your symptoms. Gosh I do think you had better call your neurologist or Rhumey. I get muscle spasms that literally pull my joints out of place and the nerves...
Hi Jennifer, Yep it's amazing how crappy we can feel and have so little to validate. Well...I AM VALIDATING IT FOR YOU /community/emoticons/smilewinkgrin.gif ! Dose this help just a little. Here's...
Hi Alien, boy that sounds strange! /community/emoticons/turn.gif I take 50,000 iu of Vitamin D. I really did find some relief from the cramping in my muscles. Compared to all the other stuff we throw...
Thank you Dear Loopies! I am looking forward and dreaming lots of things again! Thank you for celebrating this moment in time. I am learning so much from this disease and from all of you. Your're...
Hey Everyone! Thanks so much for all your wisdom and encouragement! As of Saturday, I feel so much better /community/emoticons/smilewinkgrin.gif ! I believe the flair has lifted! The fatigue has...
Hi Lynnwood, I don't know if I have any words that can calm the sting of this crappy disease, as I am a mess right now myself /community/emoticons/smilewinkgrin.gif . But I can tell you, I get...
Y'all are makin me cry!!! Such sound advice and wonderful words I need to hear. I will begin my long walk across the bridge and begin gathering all my records. Thank you all for your encouragement. I...
Hi Carol, yep I had a heart cath. It was okay. They put my hole in my artery in my wrist. It's a new procedure. My heart cath was done by a man from Russia. LOL You craked me up with your humor. Mine...
Thanks everyone. I lived the spoon theory yesterday /community/emoticons/smilewinkgrin.gif .After a long day at work, I had to nap, and then I received a call about my dad misbehaving. I went to see...