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Hi Buttrfli, just wanted to say hi and welcome u to the forum. Im also a 28 yr old mother with lupus. This place here is great, alot of wonderful people posting, its like a family. I dont post to...
hi lynnwood, i never had problems with my feet until lupus, so i guess maybe it could be connected. For me, i bought a foot spa, one of the cheaper not so high tech ones, and i just add the warm...
bumpy...
yes i was on the cellcept and have switched to the generic about 2-3 months ago. i have had no changes, for better or worse, so im guessin its doin just as well as the cellcept itself was. hmmm.......
hi okie, get some rest and i hope all else goes well! take care! love and hugs and prayers your way!! joan...
hey there, yeah i get like that whenever i have a flare. its usually around the time of my period every month. ughh it really sucks, but hey we just gotta hang in there right? i hope today u r...
so how many of u r tired all the time from this darn disease, but cant sleep??? Ughh i cant stand it. I am so tired all the time, and then when it comes time to sleep i can not fall asleep. And if i...
jojo is my nickname and my birthday is 7-11. mmm free slurpees lol...
for anyone that does gluten free- i work at starbucks and we have a gluten free valencia orance and almond pastry now. We give it to u in the package so as for it not to be contaminated with anything...
hi guys, how is everyone? well i just went and saw my pcp, have had alot goin on, well not as much as some of u. I had a abnormal pap, had another checkup where they did some kind of exam with a...
im so sorry that u have to feel like this. its very annoying and painful. I had about 3 weekes of this goin on this month because i was off of one of my meds, the stupid drs office kept putting me...
i just had this prob. i had high protein in my urine, and both my pcp and reumy wanted a kidney biopsy, so i was referred to a nephrologist for my kidneys, he ran all his tests and he said my protein...
Thank u for the replys. I will be giving it a try, hope it helps a little....
so my parents used epaoms salt on their feet growing up, and i was lookin on the net, and i was wondering if anyone uses it to help with joint pain or inflamation? I will ask my dr before i use it,...
Barb, i hope ur felling better! let us know. hugs and prayers ur way! joan...
thanks guys for all the replys. yea its an interesting topic. im very curious, and will for sure start tracking what i eat and see if certain things seem to affect me or not. i found a cool symptom...
well i went to the rheumy and it coulda went better. I had already been dx sle, and now he wrote a dx of nephritis to. Ughh, im waiting to be scheduled for a kidney biopsy. ok so the lady in the...
congratulations!!! thats alot of worry u dont need!! im soo happy for u!!! /community/emoticons/yeah.gif ...
i did the whole 24 hr pee thing, it was just weird. But they just had me keep as much as i had for 24 hrs, just collect everytime u go. They were testing mine to see how much protein i was leaking in...
i just wanted to say im sorry for all the yucky feelings, its hard when u have a sick little one. But yea the er is a good idea, u dont want ur 4 yr old to get any sicker and then a possibly you...
okie, u are in my prayers along with ur family...
lol i just had to read this. im just glad everyone is comfortable talking about things like this, it makes me feel very "at home" to be able to come to you guys with anything. also i hope that your...
they took me off of imuran and put me on cellcept. im not sure if this helps you. i hope all goes well for u tho....
thank you for the website, its real neat. i hope i can learn alot. thanks...
so i went to the er today. i had been feeling real bad since the night of the 31st. left shoulder pain, and very short of breath. i had to sit up to fall asleep pretty much, i couldnt breath if i...
thank u melissa. yea ive read the spoon theory and i liked it, lol as much as i can like it. it makes alot of sense, some ppl get me, and then others just think im lying until they see something...
thank u ginny for those kind words. its nice to know that people know what im going thru, but then again it hurts to know that others have to feel like this as well. I have to go to the drs on the...
i have just been going thru it. im sorry to whine, i dont really post alot, but do read alot to hear all ur great feedback. im just not dealing with this "it" well. its been a year now since i got...
guilty also, lol i live in downtown los angeles, so my mind is very broadened!! lol mm i like dairy queen tho!!...
i just use carmex, its in a tube or in a lille round jar, but it works really well for me, and my friend strted using it and her lips are very dry all the time due to she cant breathe out her nose...
just an update. I had to go see my dr because i thought i had strep throat (didnt have it) and i got to see my pcp at the office. So i told her about the sleep problems and she put me on ambiem,5mg....
thank you thank you thank you for all the help and up-liftment that u all give!!...
i read alot of posts but havent really posted myself but once i think. i just wanted to know if alot of u have problems sleeping. Ever since i became ill, about a year ago, i have alot of problems...
i take the tramadol also. 50mg, mines for every 4 hrs as needed. the dr said that i could take up to 3 at a time if i feelits not working. i like it ok, it doenst make me feel all weird or loopy like...
oh yea i love that show, i just watched your link, cute. i see shirts sometimes with house on them and it says "its not lupus. Sick humor, but its ok. i laughed thanks for brightening my day...
okie- yea thats another place they r sending me, sorry its hard to keep em all straight! i swear never hardly being sick in my life, and now to this, its been alot to keep track of. Some days i dont...
hi there, im new here, been reading posts for a couple of days. Everyone here seems very nice and helpful. Well im 27, just found out in jan of 08 that i have sle lupus. Been having a real hard time...