my rheumy had me start by taking 1/2 of the total daily dose at night for the first week and then added the other half of the daily dose in the morning after the first week . . . i never had an issue...
i simply tell people its kinda like having an allergy . . . to yourself! kinda funny because now when my actually allergies are acting up, people will ask "what are you allergic to - besides...
about 17 years ago, i was first told that my son had autism . . . 4 years after that, i was told my daughter did, too . . . one of the rehab facilities that my son went to had a really lovely poster...
hi jean . . . when i first went on plaquenil, it only took a week or so for me to notice a difference . . . i think everyone's system metabolizes/reacts differently...
sorry carol :( i've been lurking . . . reading mostly, posting occasionally . . . been really tired lately & i tend to avoid any kind of interaction with people when i get this way . . . always...
hi lynn :) i have gone for second opinions and basically chose the doctor via an "interview" . . . i simply told the receptionist that i currently did not have a doctor in the area for my condition...
hi red . . . i had alot of other symptoms . . . unending fatigue, joint pain, seizures, multiple organ involvement - none of which my previous doctors were ever able to figure out . . . and i have...
hi red . . . i have rash issues & have had fatigue issues for as long as i can remember . . . most doctors just blamed it on stress, etc . . . one dermy biopsied one of my rashes, diagnosed it as...
thanks guys :) and redrose, thank you for the offer . . . my hubby was a computer tech in a former life, too, but we have been too busy to really look at what was going on & when we weren't busy, i...
computer is finally fixed . . . was an issue with my stupid anti-virus program . . . have been having issues with the program since i installed it - blocking pages, corrupting applications, etc . . ....
have fun with the tea set! i got a full tea set when i was in china for the first time a couple of years ago, but didnt learn how to use it until last year . . . it is so much fun to make loose tea...
O+...
hi lynn, sorry you are having the itchies - i was just in ATL last week & it was BRUTALLY cold for your area! i broke out in a rash that went from my shoulders to my ankles & was just super crawly...
high sed rate, positive SSA, negative ANA but positive cytoplasmic staining . . . have never had positive ANA, but have always had positive cytoplasmic staining which apparently is a more rare...
Artikat, sorry you are struggling :( hang in there - we are all here to vent to . . . regarding the nausea, i wake up every morning feeling like i am going to toss my cookies . . . i just take it...
this was the first time it happened . . . it just kinda freaked me out because it happened very suddenly and i am always a bit paranoid that i am going to wind up having a stroke . . . i am usually...
its just bizarre . . . never had anything like it in my hands before (numb, cold, tingly fingers, yes, but never the whole hand) - it went away after a couple of hours....
ok . . . really weird . . . hands are numb from the wrist down & ice cold . . . can move my fingers, but virtually no feeling in them . . . my hands are always cold, fingernails are always bluish...
dunno about you, but i am a bit of a "princess & the pea" type sleeper - can't stand even so much as a wrinkle in my sheets. i can feel the wires in the heated mattress pad through the sheets :( i...
in the years i spent in anatomy & physiology, one thing i did learn was that your blood goes through a process of "seroreversion" - meaning that your blood regenerates, creates new cells, etc. and...
hi patty :) i have found that, even on lyrica, if i overdo it, i will pay dearly for it . . . and unfortunately, i overdo it on a regular basis. i usually manage to push through, but i do have days...
lol . . . use away :) for me it accurately describes the battle i face with shopping and i love it when i win! at least my shopping stress is gone for another year :D...
i love my lyrica, too, patty :) it doesn't help so much with my fatigue, but it sure does help with pain & now that i am used to it, it doesn't make me feel dopey, either . . . i believe in miracles...
i have already body slammed my christmas shopping, thanks to online stores :) my favorite sites do offer free shipping, so i have actually saved the fuel as well as my energy by shopping online! i...
paulos, trust me - as a person with autism, you are certainly no "retard" . . . quite the contrary - you are probably closer to pure genius than the rest of us. both of my children have autism and,...
busy beyond all reason . . . exhausted . . . lurking :) but thinking of & praying for you all . . ....
my hair falls out pretty profusely when i start to flare, with or without meds . . . the only thing that stops my hair from falling out is rest and lots of it! my bathroom floor, sinks and shower...
could be a hormonal imbalance - i have had those before with very similar issues . . . my gynecologist had me do 2 months worth of basal body temps (take your temp every morning before you get out of...
Hi Cookie, I take a higher dose of lyrica once daily, at night. When I first started taking it, though, I had the worst case of the shakes for DAYS and felt like I was going to crawl out of my skin ....
Carol & Barb, I'm so sorry you both are having such a difficult time. I have been lurking too (hellatious work schedule and i am trying to conserve what little energy i currently have), but please...
I get blisters on my arms, legs, feet when my skin is flaring - they get worse if i go out in the sun. Elbows, wrists, ankles (pretty much anything bony that receives sun exposure) and my nose are...
Good for you, Judy!!! Keep up the good work!...
Hi All . . . thanks so much for the good wishes :) I have had a couple days of "horizontal therapy" where I haven't had to go in to work and it has done me a world of good . . . 2 1/2 weeks on the...
the title says it all . . . on top of having my first cold in YEARS and rampant allergies (thank you Holiday Inn for the moldy A/C in my room - the 15% off my bill for my "troubles" is much...
have always been ANA negative . . . i do, however, have other autoimmune markers and have had multiple organ involvement. find a different doctor if yours is only looking at ANA results because there...
Hi Anne, I had a biopsy done of my rash a couple of years ago . . . results came back as inconclusive and so the dermy said it was actinic keratoses and attempted to freeze the worst spots of it . ....
Love my Lyrica! Tried Gabapentin, but it didn't touch the nerve pain I have. I have not had alot of side effects other than when they first started me on it, the dosage was too high and I had massive...
((((((((((((Barb))))))))))))) so glad you are home!...
Hi Lynn, I haven't used the spray, but the one I found recently that I love is the Neutrogena Ultra Sheer Dry Touch 100+ SPF . . . keeps you white as a ghost and it doesn't irritate my sensitive skin...
My spine issues were caused by degenerative disc disease and aggravated by a ruptured L4/L5 disc. The ruptured disc has never healed properly and has left me with the peripheral neuropathy and...
Hang in there, Trish . . . I do not think there is a single one among us who hasn't been told it was all in our heads at one time or another. I actually had a doctor decide it was all in my head and...
((((((((((((barb)))))))))))) Koenraad and I are keeping you always in our thoughts and prayers!...
Marji, I am so sorry that the procedure went terribly! I can only begin to imagine what you went through! I do know that they go for the nerve roots and they will dig for them if need be . . . It's...
Marji, I have had cortisone injections in my back & hips (L4, L5, Sacroiliac & hips) and they DO aim for the nerve roots when they do them in the spine . . . dont be nervous - they dope you up really...
(((((((((((((((((((((((((((barb))))))))))))))))))))))))) you and your family are always in my thoughts and prayers . . . i know it feels like more than you can handle right now - please remember that...
Hi Rach, It is the UV in sunlight and flourescents that can trigger flares with lupus which is why sunblock is so important . . . I recently found a sunscreen put out by neutrogena - it's pricey (i...
Sweet song, but it is SOOO hard to trust anything once you have been betrayed . . . My ex had an affair with the babysitter while we were married . . . i suppose i didn't react so well - once i found...
Hi Rach, I am chronically itchy . . . flourescent lights & sunlight make it worse - i feel like i have a case of the crawlies pretty much all the time. Oral antihistamines work pretty well for me,...
Congratulations, Ashley!! I hope your pregnancy is a beautiful time for you. I know that both times when I was expecting, once I got past the fatigue in the first 3 months, I felt really good . . . I...
Been busy . . . the days are long, but fortunately they are not long like they are in the US . . . we really only work for 6 hours a day, but we usually end up doing dinner with our factory contacts...