My condolences to you and yours......
The methotextrate gives me headaches and makes me pretty ill feeling for a couple days after the shot, I am not sure it's actually helping me... I go back to the doctor tomorrow for another issue...
They found that I had Dermatomyositis, and tumid Lupus, which is a rare skin form, but turned into SLE, but I also have RA, so my treatment is prednisone and methotextrate. It took about 4 months for...
Ok made an appointment for wednesday, I hope my doc can shed some light on this, I think I am going through a flare... having trouble walking because my knees are so sore and my ankles keep poping,...
I have rashes similar to that, they come and go. (arms, shoulders,chest, elbows)When they were really bad I had a nasty rash on my elbows too and they did a skin biopsy...maybe one should be done for...
Hi everyone... I usually post in the Lupus section here, because that is what I have( as well as some other wonderful autoimmune diseases), but I wanted to see if you all could help me understand...
Hi Jackie81! My ANA has been negative and positive for years, one of the reasons why it took years for them to diagnose me. I don't know why it does this, or how it can even be possible (asked my...
It doesn't hurt to push on it, I get a weird senstation in my elbow when I do, but not painful... I did notice something odd the other day... I had a beer this weekend (it's my birthday) and after...
Actually I always have blood taken in the other arm...so I don't think it's scar tiisue. It started out real tiny. I have numbness and tingling from the elbow down now. And also I have this...
Hi everyone! It has been a little while since I have posted on here, so much has happened. Today I came on here to check recent posts and to pick your brains.. /community/emoticons/smilewinkgrin.gif...
Hi Jane! I have been having night sweats for about a year now. My meds don't help, so I think its possibly the Lupus. Make sure to mention it to your rheumy. I am only 30 so it's not menopause (I...
It can either be taken in pill form or given as an injection. I get the injection because I have stomach issues and pills are not my friend.. :wink:...
Amy, I started MTX back in December and so far it is not working for me, the just double my dose (injection once a week). I was told though that it can take awhile to kick in. I have not had any bad...
JoAnn, I hope everything works out well for you and I hope that you feel better soon ! :wink:...
Hi everyone! Sorry for not participating lately, I have been sick and busy, but at least I still have my job :smilewinkgrin: . I have been having some strange issues the past couple of days, and was...
If she can get online, on her computer, she can go to start, Help and Support, and there should be something that says Ask a friend to help you, if she puts in my email address it will send a request...
Patty, I am an IT specialist, viruses are my speciality... If she can get on the internet ( even if she can't there are ways around that) I can connect remotely to fix it..for nothing. Let me know!...
It's to bad you have to use scent free..the one product (for bathing) I use which I found makes my skin feel so much better and does not make me break out in weird spots is this:...
Thank you both for your replies... My company has under 50 employees so the FMLA does not apply, they say they will still honor it, but I have my doubts for a few reasons :).. I'ts almost friday, so...
I am sitting here at work and feel like I am going to fall over..... my knees are so weak they feel like jellie when I walk, I have cold sweats and I am woozy to say the least. The nasty rash on my...
Oh My!! I am so sorry you have that rash...it's looks exactly like what I have all over my chest and upper arms... what causes mine is my dermatomyositis though (I have a nice scar on my elbow from...
Tammy, I am on 20mg of prednisone everyday and my face is swollen looking from it. I have been on it since about August. I have noticed the diference in pictures taken latley and it seems to be...
HI Nona, sorry to here your having so much trouble. I had GI problems for a very long time before I started any meds, so for me GI problems are what helped me to get diagnosed strangly enough... I...
Susan, My symptoms started when I was about 23, I am 30 now. Just odd things that started to happened, extreme boughts of fatigue, short term memory loss, pain, horrible stomach issues, strange...
That is a good name! Its sad though, I just went through a horrid flare(not quite over yet, got better, getting worse again) and I have not had the energy(and in too much pain) to be able to help her...
Thank you for the wonderful ideas everyone!!! :smilewinkgrin: aimsgirl16: What is the JingleWalk? I don't think I have ever heard of that? hmmm so you can set up your own walk? Then you just mail the...
Hi Everyone! Friday I started the Methotrexate injections, doctor showed me how to do the injections myself, I was just wondering from anyone else who does these injections, their thoughts about it...
My daughter who is in 5th grade is in Gifted and she has recently been given a project to work on... It must be like something you can do for your community or helping people ect.... She wants to do...
Hope it all goes well! ( I cannot stop wearing my heals, even though it hurts! I just can't bring myself to wear flats..."Rupus" will not take that away from me yet! :smilewinkgrin: )...
Sorry to hear that you are jobless again...it is so very hard sometimes to work...I know :) . I work in the IT field and my co-workers depend heavily on me, I am no longer able to lift the...
Hi Amy, Sorry to hear about the new diagnosis .... I have "rupus" as well... Never heard of APS though. I hope you feel better!...
I figured out the signature thing..... :)...
Thank you for your replies!! I broke down yesterday and called my Rhuemy..he gave me a perscription for some pain pills :( not really happy about that, but my hands feel like they are going to fall...
Hi Everyone! I am new to this site, I have read alot of the post when doing reasearch on my conditions. I don't know anyone that has what I have and no one I talk to really understands, I feel alone...