Thanks for replies. I visited my GP today and we discussed decreasing the dosage, I am happy with this. I am required to have eye checks every 6 months so will keep those up too....
Hi all - I would like to hear from people who have used plaquenil - Hydroxychloroquine for a long period of time. I have been on plaquenil for 10 years now for Lupus and my Rhmy is not worried but my...
Hi Jenny When I first was diagnosed with Lupus I had to leave my job and find a job which paid as much but was not as stressful. Currently I hold a full-time job and take full advantage of my sick...
I had a breast reduction (G to C) done just when I was diagnosed with Lupus. I had decided on this years before and had decided I would do it after having my children. The surgery and recovery did...
The Lupus Trust will be giving out information to the public. I guess its such an unknown quantity and thus educating everyone is a good approach....
Hi Redrose Sorry to hear about all thats going on in your life. I find yoga and mediationa great form of relaxing. My compulsory dose is once a week and it works Honey...
I see on of our local shopping malls has this on their calendar for next saturday - how cool is this in a small country like ours (New Zealand)...
Stacey It is scary being diagnosed with something you don't understand and than be asked to take medicine which may have adverse effect on you. I was in the same position some years ago. I am now...
Debbie Thanks for your feed back I have told my boss about lupus and also have registered my meds at work for health and safety purposes. SO far he has treated me normal but I feel that there is no...
Hi Sunny I too suffered for a number of years before diagnosis. One doctor even went to the extent of telling me it was in my mind. I was blessed to have changed town and thus doctor who on the first...
I am so glad have found this forum and all you brave people. Thanks for sharing. Pat we are all different with different resilience levels. I have been through a dark patch just after my diagnosis in...
Dear Suetoo Thank you for the spoon theory -it makes so much sense. Cheers Honey...
Thank you all for your response. I am so glad you took the time to share. I am still working full time but am afraid that very soon I will either have to give it up or be made to give it up. I am on...
I would like to hear from people who have diagnosed SLE and are still working. I am interested in finding out how you cope and manage with the demands of a working life. And how your family copes?...