Another thing i noticed in your original post was wondering if u should drink water or cough when u r choking. If u have lung issues u should always try to cough to protect yout airway. i am pretty...
I used to be a speech pathologist before i got dx with CNS lupus. For your swallowing problems u might want to have a modified barium swallow study done. it needs to be ordered by a dr. Hopefully the...
The first symptom of CNS lupus for me was a seizure. I had several MRI's but it was actually the spinal tap which actually dx me 18 mths later. I would definitely pursue both. Good luck...
I was diagnosed with CNS lupus after 18 months, I initially had a seizure which showed a lesion which suprisingly got bigger. At first they thought I had a brain tumor than they dx with...
I am still on 20 mg prednisone,my seizure medications, and plaquenil until my RBC go up enough to put me back on one of these drugs (Imuran, cellcept or rituxan). thanks for the replys...
I have also been on prednisonse since july but it took me over a 1 1/2 yrs to get dx/d. the first time i started with grand mal seizures in 1/08 and after multilplr mris they came up with a dx of...
i an new to this forum and have beeb diagnosed with CNS lupus since july '09. They put me on cytoxan with mild side effects until my RBC,WBC, hematocrit and hemoglobin all went down the tube, they...