My 3 year old grandson is in Children's hospital in an induced coma as the result of status epilepticus. He seized for hours while being life-flighted here. As they attempt to safely bring him from...
We were on the road recently and when we stopped for something to eat, as the clerk was handing us our sandwiches, her arm turned on the card-reader laser. The light his my wife's eyes and instantly...
My spouse just had her first epileptic seizure in a couple of years. It has been a day and a half and she still has that terrible headache that is so common. What is the best treatment for a...
I am curious how many people are/have used Rituximab as a treatment for SLE, particularly neuropsychiatric lupus? How did it work keeping lupus flares at bay and for how long. Traditional...
Kat--I tried to think about the Methotrexate but am just not sure. I think it was a couple of years and as I remember it her dose was just below 20 mgs but she took it as a shot as it was too hard on...
for my wife when the seizures started, she took topamax to help with the seizures. Methotrexate helped a lot until her liver started acting up. She did high dose prednisone for years but is now...
My wife has been having kidney trouble for over 2 months. The IVIG, cellcept, etc are not keeping the disease at bay. During the same time her blood pressure has shot up finally this week reaching...
Probably unknown to many of you, but incredibly influential in the way MS is dealt with. Jimmy Heuga was an Olympic medalist in skiing. MS cut his career short. The thinking at the time when one got...
My wife has a headache most of the time. It began before Lupus was involved and is a function of her similar disease called SREAT. Since her joints got bad last Feb and she began to be told about...
I have a different suggestion you might check out. My wife has systemic lupus but also has SREAT (steroid responsive encephalopathy with autoimmune thyroiditis) This an extremely rare disease that is...
Thank you all for your help. I am very new to understanding lupus as I have been spending most of my time on SREAT over the last few years. Any help to get me up to speed will be appreciated. Amy...
My wife has been flaring a lot for 6 months. Her joints are so bad she has had to use a wheelchair on occasion, and recently she has been hospitalized with a bleeding kidney. But along side of that...
For years we have danced around Lupus. It isn't that different symptomatically or treatment wise to SREAT (steroid responsive ecephalopathy with autoimmune thyroiditus) although it is a lot less...
My wife was hospitalized last week when she was passing blood and a day or 2 later she ended up in a lot of pain in her kidney. After tests they said that it was not a kidney stone and they had no...
for about a year, neuro/psychiatric systemic lupus has been suspected for my wife. Since the methotrexate was discontinued due to bad liver numbers (She takes it for another AI disease), her joints...
i am afraid it is a bit of a chicken and an egg thing there are some articles that suggest that it is instead the Lupus that can be related to the drop in vit D. Some suggest that it is the other way...
So sorry about the acronym. I wasn't thinking. HE stands for Hashimoto's Encephalopathy or as Mayo calls it SREAT (steroid responsive encephalopathy with autoimmune thyroiditis). It is an autoimmune...
My wife has just received a Systemic Lupus diagnosis that is primarily neuropsychiatiric in focus. her arthritis symptoms are currently incapacitating as is the fatigue. This HE interestingly looks...