Have had funny heads for awhile now but until recently had never experienced a full blown Lupus Fog. What an experience. Couldn't remember any of our internet banking passwords etc, where I had put...
Hi I have been diagnosed with sle,curtaneous lupus, sjogrens,fibro and raynauds. I have heard that the medication Evoxac can help with retaining some saliva but does anyone know if it actually helps...
Hi have been on predisone for some time now and Cellcept has been recommended by my Rheumy as the next step. As it is only used for trials in Australia at the moment I am waiting to be accepted into...
Have exactly the same problem as you do, red sore, gritty, dry eyes. I find the best drops to use are the lubricating ones or gels and use them as often as possible. Mine seem to last for a few days...
Hi, been suffering from a flare and brain fog for nearly four weeks now on Imuran,plaquenil,predisone(50mg a day) plus pain meds how long can I expect this to go on? Have the Doctors got it wrong?...
Your rash sounds just like mine does what it likes whenever it wants to and no you're not mad but it is hard to understand how things can change so quickly. Find a good gp and keep well...
Hi, i've been diagnosed with sle,curtaneous lupus, sjogrens syd,raynauds syd and fibro I've been managing quiet well until twelve months ago then everything seemed to fall apart. I had to give up my...
VIEW IMAGE Lynnwood, I read your article The Spoon Theory and just want to say thank you, it brought tears to my eyes. I have tried for years to explain to family and friends what it is like to have...
sorry to hear things aren't going well, but was pleased to read I'm not loosing my mind. Been getting the fog and developing a terrible memory a bit hard to take when at work I was overseeing one...
sorry to hear you're suffering like you are must be terrifying. I have had similar experiences but mine differ, I find if I can force myself to go back to sleep I can wake up ok don't know if it all...
/community/emoticons/mad.gif Hi Mkayla, sorry to hear things aren't going so well for you. Unfortunately I'm experiencing similar to you at the moment. I'm waiting to start on a trial with Cellcept,...