Hello Tykebaby, I had that problem also. Mine was thin dark lines in mine, I can't remember what the doctor called them blood vessels or something that had todo with that were rupturing under the...
Hi tsmall, I have discoid, have just healed from a two year battle with it. i had it on my face, head, arms, and chest. I wondered the same thing. Mine are still scarred. My arms have the sunk in...
Wow, Den2010. I will pray for you and your wife. God Bless you for being such a wonderful support for her, even with all the stress. I am currently on cellcep also. was on 40 mg of prednisone a day....
I have a neighbor with lupus also and she had lost all of her fingers and toes, had kidney prblems and heart problems and she was denied twice and had to get an attourney so dont' give up. i think...
Thank you both for you responses. I will definatley let my doctor know. It sure takes no prisoners when it comes to the weight thing. Pugpuppy I hope everything gets much easier for you. God Bless...
I was on 40 mg of prednisone for about 3 mths. they started me on cellcept to try to get me off the prednisone. I am down to 25 mg. I have the moonface and the sweeling in the stomach but my question...
I also have good ins., so i too have a copay. So, I'm not sure how expensive it is. I've been on cellcept for approx. a month and half. At first I was so afraid of taking it after reading all of the...
Bless your heart, I agree. I hope your able to find a doctor that's not like that. Keep looking. their not all like that. Is he your rhumatologist or is he your pc?...
I would ask my doctor to check you for sjogrens. I have it along with the sle, the run together alot. It causes me that problem with my eyes. That would be my guess. Hope you find some releif soon....
I definately feel worse since being diagnosed. I have some good days and alot of bad. I'm on more medicine. Praying for it to go dormant. I spend alot of time in bed these days. Would love to be able...
Oh Bless her heart. i dont' have any info for you but you did touch my heart. I will pray for her that life takes a good turn for her. please keep us posted on what happens with her doctors. May God...
I also have sjogrens and when i was diagnosed with lupus they checked for the sjogrens and i definatley have it but have had no symptoms up to this point. I have been on plaquinel for about 4 yrs...
Wow, no I have'n't but that's very iinteresting. That's some really good info and an option I haven't heard of, definately much better than some of the other crazy meds that have to be taken. Soo,...
I would definately go with her to her Dr. appt. and talk with the Dr. . He can probalby help to resolve some of the issues by working with her on her med. maybe changing them around until they find...
My nose gives me alot of problems but mine is from the ulcers inside both nostrils. Haven't found anything to help with them. Hope you find something to give you releif....
I have the acute cutaneous and have been in a flare with that and the systemic for about a year and half. My rash was horrible, my face, arms,chest, back and legs. I have used soo many creams to no...
I would definately take the prednisone. It can be a lifesaver with flares. Your rhumy may use that for you also. But if it's not his choice he can manage that when you see him. I don't know what I...
I'm glad you have a rhumy you may like. I also have one that on my first appt. told me all about his family, kids, brothers and parents. I at first thought hmm. not sure. but then he was very...
I will certainly be praying for a speedy recovery. May God keep you safe....
It definately sounds to me like it's a flare. I have had that pain in my knee about a week ago but it was in both of mine. It has settled now though. I hope yours does soon too. Does your doctor have...
Welcome Pugpuppy. You will find alot of support on here....
Welcome Xerond. You definately will find alot of support and help from this sit. It has been a blessing for me. I've taken plaquinel for about 3 yrs now. I haven't had any problems with it. You have...
i also had a reaction from imuran.. Maybe I will have good luck. still a little nervous of the side effects but just praying it doesnt bother me. Thank you all soo soo much....
Linnwood and nancilee thank you both for you info. I pray it works for me. It would be great to feel semi normal again. I will continue to post as I try this. I pray for you all that you have good...
Well Suetoo, I will pray that it works for you. Keep me informed on how you do with it and I will do the same....
My Rhumy has just started me on cellcept to try to get me off prednisone. Has anyone had any experience with this medicine as reading about it has made me a little nervous. Thanks in advance....
Sorry, haven't been on in a couple of days. I hope Barb is much better. I will def keep her in my prayers. God Bless you all....
Welcome Ashley, You will find alot of help and support here. I am still new here but have used this site alot. sometimes I just come and read. I thank God for all of you that post and answer posts on...
I was tested for lupus for 10 yrs prior to getting a positive reading in my bloodwork. It finally showed it's self by my discoid breaking out on my face. I've been diagnosed for 4 yrs and never had...
I think it was completely irrational for him to have not given you the meds. It's clear that he has no understanding of lupus and the pain that a flare can inflict on your body. You should have told...
Hang in there Justjess. I know it's not easy. Maybe you should talk with your doctor about possibly talking to your family for you and letting them know how badly you need support right now. Maybe he...
I've thought of ordering the lupus recovery diet. I dont' want to spend my money on it if it's not something to invest my time into. If you don't mind my asking Butterflake what about the book made...
I have discoid, acute cutaneous, sle, cutaneous vasculitis and sjogrins. My reason for putting those is I've had a really bad day today. Alot of pain in my stomach. My stomach seems to be bloated and...
I have discoid and systemic and it also sounds to me like you really should see a rheumatologist . There is probably more going on than just discoid....
Hello Suetoo, Thank for your reply. I am soo sorry that your health is so difficult. I don't think anyone without a chronic disease understands what a toll it takes on your entire life. It changes...
Went to the dr. yesterday and he has increased my prednisone to 40 mg. per day. I have been on 20 for a while in an effort to get my systemic and skin under control. I have had alot of kidney pain...
aimsgirl16 Thank you for your input. I didn't think that is was anything to even mention to the dr. Just an aggrivation for me. After reading your post i will make sure to mention it to the dr. next...
I think the prednisone will really be helpful for. Just from my experience with lupus and meds. The best things that have helped me is a combination of mobic twice daily and ultram 2 tabs 4 times...
Hello Kim. I am going through almost an identical problem but my rash is everywhere except my stomach and i only have a few spots there. They have been trying for atleast a year and half to get it...
Hi Lawchick. sorry to hear about your pain. The doctors had tested me for 10 years for lupus and it was always negative until I have a very bad flare and then they finally got the confirmation in my...
will do. thank you very much....
Thanks to you all. I will call the Dr. God Bless you all!! I will post what they say. Thanks again....
I've had sle for about 5 yrs. I have been on prednisone among others for approx. 4 wks. I have developed a nagging sore throat. Not to where I can't swallow or anything but just aching and nagging....
the doctor done blood work for the dermatomyositis, I had the rash and some muscle weakness, but that came back ok. he said my ck levels were ok. I have sle, discoid, sjogrins and acute vasculitis....
When I originally got it 5 yrs ago the dr. did a biopsy and it was discoid lupus. That's how they found out all the other issues with me. He may do another the next time I go in because he is having...
What does your rash look like? I have had one for approx. a year and half that the doctors have been trying to get rid of but can't. They know mine is lupus but now success so far. They have tried...
I have had lupus for about 5 yrs now and iit's has been quite a journey. For the past year and half i have been battling the skin issues. I have been broke out in what looks like hives for this time...
I have had these several times although not to that extent. I am soo sorry for you and I like you say there really is nothing painless about it. I agree the smaller ones not so bad but the more you...
I do this everyday but the worse time for me is at night. I have to go atleast 7 to 10 times before i can go to sleep. it's really a pain. I haven't mentioned it to the dr. I thought it was just me....
I have really enjoyed reading all of your posts. I have huge issues with the sun due to my lupus, I really miss being outside. It's comforting to see that i'm not the only one. Thank you all for...