Thank you! I just went back to the ER again with a close friend of mine who is very motherly. She had called in advance and told them that she was disgusted with the treatment I had received and she...
My family doctor told me Friday that she thinks I have MS. I am having a second "attack" of whatever this thing is since last year. It started a month after my first and only child was born last...
Thank you Loretta! I did tell them about the pain, and the ER saw that I could not turn sideways, and my husband had to carry me everywhere. They would not even give me a bedpan! I had to wait almost...
Well... for those of you who remember me, I have been very sick for some time. Today I have not been able to even turn my head or get up (my husband had to carry me into the MRI, then into the ER,...
Thank you Straydog!!! I am so concerned about the steroids too, which is why I wish I could get a doctor to try the plaquenil or something else to see if it would help in the same way where I can get...
Thinking of you Barbara. I am sorry you are going through so much! Gentle hugs! Nicki...
Hi AdamDoubleyoo, I also don't have a clear diagnosis, but it sounds to me as if it were autoimmune of some sort what you are going through with light sensitivity rashes and feeling pain in your...
Hi Rhondamac! I also haven't been on here in a couple weeks, but I just wanted to tell you I am SO sorry for the loss of your mother and want to send some real gentle (((HUGS)))!!! I have had similar...
Screaming Eagle... are you out there? I was wondering if you might have any advice for me at this point? My RF is elevated pretty significantly, my lymphnodes are very swollen, and the two things...
Thank you Trudy! I see my family doctor on Friday and will ask her what I need to do at this point. If I am not satisfied, then I will ask the specialist I saw yesterday what to do. She seemed to be...
Thank you Sandi! I was very grateful for my doctor today to give me at least a "differential diagnosis" of lymphoma versus autoimmune disorder. It at least gives a name to one of the two...
I had a good visit with my IC (interstitial cystitis) doctor today who said that having an autoimmune disorder would VERY much explain my symptoms and that IC usually goes hand in hand with...
Thank you Blondie! I just got back from my interstitial cystitis doctor and she gave me a note for school! I was so grateful! She said that usually IC goes hand in hand with autoimmune disorders and...
Thank you Chartreux for the suggestion. I did actually see an endocrinologist because I have had a pituitary tumor for years now and that was their obvious first concern with my symptoms but she...
Hi Suesueky!!!! I missed you too! I had so much going on for a bit (with feeling so GREAT) that I was trying hard to get caught up with my classes and all--but did not mean to stay away this long...
Thank you Lynnwood! It is so good to see you again! I will see if I can get a referal from my doctor I see today who specializes in the Interstitial Cystitis I have. My neck is really swollen today...
I have unfortunately had the same experience for the most part here in my local small town, but when I have gone up to the larger hospital of Atlanta it was a little better (at least they treated...
Thank you everyone! I really appreciate the advice. I did not realize that it was so serious to stop the prednisone that quickly as I thought that was what I would have to do (thank you Lynnwood!) I...
Thank you everyone for your support!!! My doctor is doing a "cervical MRI" to look at the swollen lymph nodes in my neck. They are getting fairly painful (not real painful like my bones feel in my...
I have not been online in a couple weeks... been really frustrated about things. I don't know if anyone remembers me from before, but I have had swollen lymph nodes, high RF factor, severe pain in my...
could very well be... I am glad they are trying to get to the bottom of it! hope you are having a low pain day! Nicki...
Thank you Christina! I agree with you -- let the rheumy do what he does best and get a pain management doctor to do what they do best--manage the pain! I am hoping once we get a good regime of...
Thank you EVERYONE!!! :yeah: I had a very good visit today with the doctor on everything except the "pain issue"... He was extremely kind, sympathetic seeming, very listening and took his time with...
Lynnwood, I am so sorry to hear that!!! I am sending lots of big bear hugs (but gently of course so they don't hurt you!) your way! I feel so bad that someone as special as you has to go through such...
Thank you Lynnwood! How are you today? I hope well! Nicki...
Hi Amy, I tried to go to the website you sent me several time and also copied and pasted it into the browser with no luck... I would love to still see it if you have any suggestions how to get there....
Amy, thank you so much for letting me know that. I had no idea it was even that serious! I just knew it "sounded bad" when she said to tell my doctors this, but I don't have any this morning--I guess...
Hi everyone. I haven't said hello in a couple days as it has been pretty rough, but I go to the doctor tomorrow at 1:40 pm. I filled out a self-report on mine and my family's medical history and...
Hi Everyone! I wanted to let you know that I managed to finish typing up a Family Medical History of everything today and used a template from MS Word for it that really helped listing out all...
Thank you White Beard! You are an amazing support to me!!! I cannot thank you enough. I think you have a lot of wisdom in suggesting the Mayo Clinic and other. I will see how this goes tomorrow and...
Thank you so much Straydog! I will call them now to make sure they do have all that stuff. Also, the endocrinologist wants to talk to them about the adrenal thing to make sure they keep me on that...
Screaming Eagle said... Hello Niki! I took the evening off to spend some time with my wife, and was headed to bed, when I thought I would take one last pass and take a peek at the forum here. As I...
I know a lot of you have been so supportive to me over the past week especially with all I have been through. I am yet undiagnosed with an autoimmune disorder of "unknown etiology" and see a...
YES! Do it. that was what i was talking about for guianne-barres syndrome or CIDP too. it showed i didn't have it--but that helps to figure out what is wrong if not too....
[b][i]NikiS [b][i]You know I agree with mrsm123 see if you can get in to see your rheumy earlier, and don't wait around for your GP to make you referrals. I do not like the sounds of what everything...
Thank you! I will call them tomorrow. The medication the ER doctor gave me is helping tremendously (upped my steroid dose to 40 mg instead of 10 mg) but really weak still today but not too bad on...
One more thing, Jimm. They never saw any thing on tests for me until more recently when I went into a full blown flare--and I have had the severe abdominal pain. Have they ultrasounded your liver?...
Hi Jimm, I am no doctor or nothing, but I went through something similar after my son was born. My arms and legs went numb and I had a bad prickling feeling and burning sensation at times in them....
9yrschronicpain said... Oh Nicki. I'm so very sorry that you're in such agonizing pain. I really feel for you. I would like to say welcome to the forum too. I certainly hope that you can find some...
kim9807 said... welcome Nikis,I am sorry you havent had good luck with dr's.FP arent good with treating chronic pain. You may want to ask your fp to refer you to a pain dr. thank you. i am going to....
White Beard said... NikiS What you have said does not sound good at all, and I sure don't understand why your doctor is not being more aggressive in trying to get to the bottom of all this. You may...
Thank you so much! I think I will wait until after the rheumy visit friday to see how that goes to both get rid of my fam doctor and find another. I am scared to "rock the boat" before this visit...
Thank you Suesueky! I will certainly be thinking of you Friday too and give you an update when it is all over. My apt is at 1:40 pm around 30 minutes from here... I guess as you said there is no...
My husband finally said last night that whether or not we had the gas money to go, he was calling an ambulance and someone needed to see me. They took me to the local ER although he told the...
Thank you so much. We didn't have the money in the end. so much pain right now--unreal. tried to tell my husband i need him to stick up for me and tell doctors. he doesn't understand why i can't tell...
/community/emoticons/smurf.gif Thank you White Beard! I think you would like GA. Which state are you coming from? It is hot here! Been over 90's most days lately which doesn't help with one's energy...
I'm sorry she had to go through that. I went ahead and took some today because the pain has just been unreal let alone any withdrawal. My husband is trying to see if he can scrape up enough gas money...
Thank you NiNi53! I am in so much pain right now my husband is trying to see if he can scrape up enough pennies for gas to get me up to the teaching hospital in Atlanta to go to the ER... I can't...
Thank you Denita! I am already experiencing that. I wonder why the doctor did not offer me anything in its place either? It is the only form of pain control I have and in just outright agony right...