In my opinion, you should stay home and take care of yourself. That sounds like a stressful trip. I've had lupus for approx. thirty yrs. and know that overdoing it or being stressed can cause...
I have experienced what you describe except that mine was on my right side underneath ribs. It felt as though I had a tennis ball, or an inflated balloon in there. I had sonogram, etc. to check out...
Just realized I replied to an older post -- written in 2009 - I should've paid more attention when I posted my previous reply. Hopefully, you are feeling much better now....
Mkayla - Sorry you are so sick, and maybe you've seen a doctor by now...hope so ! It sounds to me as though maybe the Pred. pack was not enough and it may take higher doses for a longer period of...
I've had Lupus for many years and never had encountered any bladder or kidney problems. Lately, I've found that when I urinate I have to strain to empty my bladder. Has anyone else had this problem ?...
Recently, I heard on the news that sometime in the near future they may stop manufacturing incandescent light bulbs because the newer fluorescent bulbs last much longer and are more energy efficient....
I've had lupus for about thirty years now and have always taken precautions to avoid the sun as much as possible. When I'm going to be in the car when it is sunny, I always wear long sleeves and...
I'm so sorry your sister is so ill. I, too, was diagnosed with Lupus Cerebritis when I was forty years old. I am seventy-one years old now, so you see - there is hope ! I was treated with high doses...
Tammy - I had "moon face" after having been administered high IV doses of Prednisone for about a week, and then tapered down (w/ pills) at home for 6 mos. It saved my life and I am so thankful for...
I think I am experiencing in my left leg what you are describing. I have CNS lupus. Just this morning I had a vascular test performed on both my legs but won't get the results for a couple more days....
Marji - Just wanted to add my two cents worth ! In 1981, I was diagnosed with Lupus Cerebritis (and vasculitis). At that time, I was experiencing all the classic Lupus symtoms such as arthritis in my...
Johnny - I believe I had the underlying predisposition to Lupus, but that it was triggered by the Swine Flu shot which I received in the late 1970s. I began experiencing autoimmune type symtoms after...
I can hardly believe it myself when I write that I am now seventy years old , just this last Sept. Some days I feel my age and some days I don't ! One thing I've learned, though, is to enjoy the...
thanks, all ! After just five days of 40 mg. Prednisone, my itching has almost completely stopped and the rash is drying / clearing up. I think my body just extremely overreacts to things like insect...
Thank you all for your suggestions and input. It really helps to hear from people who share this disease. So many people really don't understand Lupus and it's not an easy disease to explain since it...
For the past six weeks, I've had what appear to be tiny bites on my legs which itch badly at times. I've had SLE for thirty years and have always been susceptible to poison ivy and react badly to...
This is such an individual thing. If I had not such a bad reaction to the Swine Flu vaccine way back in the mid to late 70s, which I believe triggered my CNS Lupus, I would probably get the flu...
Thanks for all your comments. It's difficult to know when a symptom is related to Lupus or something else. My ear problem has improved since I took a two week regimen of an antibiotic, so it's...
Thank you all for your replies ! Babs, the ringing is in my left ear also and forgot to mention that I had an "attack" of vertigo a month or so ago and was sick afterward. Fortunately, that hasn't...
If this worrying happens in the middle of night, as it frequently does with me...I get up, fix myself cocoa and crackers, sometimes take a hot bath because this relaxes me, take an Aspirin , go back...
Has anyone else had trouble with their ears?...as in, rushing, roaring sound in one ear or both and a full feeling in ears which interferes with hearing? I have CNS lupus and have experienced this...
I could be totally wrong, but I believe it is the dark permanent dye which causes problems. There was a study done years ago about hair dye and lupus. It said that the dye could cause a flare in...
I have CNS Lupus and have been in flare since March, although it is somewhat better now. Previous to this flare, I had been very fortunate to have been in pretty good health for the past 20 yrs. with...
I am in the same boat. I say I live in my "bat cave". When I coffee with my friends, I always want to pull down the shades in the coffee shop, and usually wear a hat. Still, I always end up with a...
RIT makes a good product which you put in your washing machine. Very inexpensive and it lasts for twenty or so washes. It's called "Sun Guard" and can be found in some stores which carry Rit Dye, or...
I am extremely sun sensitive so have to be very careful. www.solumbra.com is a reputable company that sells sun protective clothing. It is very pricey, though. Another one is Coolibar.com. There is...