Just call Benlysta or the infusion nurse if you want a quick confirmation on what your Mom told you. I wouldn't want your belly button getting infected. It surely would, most piercings do. The...
I start Benlysta tomorrow. My rheumie has one of the nurses involved in the clinical trials working for him now. She says I have nothing to worry about, but that has not sopped me! Ann...
Oh my, of course you need to vent! I'm glad you did. I have 3 children, before Lupus. I had ITP first also. I had that in 2002, and was diagnosed with SLE in 2008. The plaquenil took 6months to work...
If you hv up to two years, why the rush to decide?...
If I don't take Vitamin D, I notice fatigue creepinng in after a week. Lupus universally affects vitamin D processing by the body. Try it and see if you don't feel much less tired. Ask your doc first...
I had C 4-5 and C 6-7 fusion a little over two years ago. I encourage you to get a second opinion. You might have a little trouble getting one, as there may not be many neurosurgeons near you that...
I have had this, eczema, most of my life. Doctors treat symptoms, and I was advised 30+ years ago to use cortisone cream, way before lupus diagnosis. I have learned to leave it alone, and have never...
Maybe your Doc will let you take prednisone, less for awhile, if he/she knows you need to work? To be able to pay bills, including doctor bills! Try having an atty file SSD foryou? Just few quick...
Hi, Niki, sorry about your frustration. I have stopped prednisone suddenly twice. The first time, I spent 8 days in a mental health hospital and was misdiagnosed with paranoid schizophrenia........
Humira, and other meds in tthe same category, can cause a"lupus-like syndromee." I would suggest you contact the pharmacy that shipped the humira or contact the humira help line. I found both of...
I have had trouble swallowing, too. After much testing, I was diagnosed with Nutcracker Esophagus. The doc is treating it with Procardia. That is a heart medication, but one of the side effectts is...