I tried Benlysta for 6 months but had to stop. I developed infections and received antibiotics for treatment. My lupus flared. By the end of the 3rd week post infusion I felt I was running out of gas...
Sun exposure triggers fatigue and joint pain for me. When I do gardening I do it late in the afternoon or when it's cloudy. I don't like pain so I try to avoid triggers as best I can....
I agree with you Denita. I have to stay away from the sun or it's instant flare up for me. Every individual is different....
Sylvia I can't believe that your son's doctors can't do anything more for him. I think he needs to go find someone who can help him. It's not like he has terminal cancer that has spread so much that...
Hi lupusnewbie! I suggest you email Amy if you have not done so. She shared the same info with me and it was a big help. I am going for my 4th infusion of Benlysta on Sept 6th. The third treatment...
I'm glad it worked for you Penn1023 and that you are feeling better. I continue to take cranberry capsules as I am susceptible to UTI due to medicines that lower my immunity. Unsweetened cranberry...
As always we have to consult the docs first. Take care Joy feel better....
When I had any type of infection including UTI, my lupus would flare up. I end up taking antibiotics and to control the lupus double the dosage of prednisone. Methotrexate didn't work for me. My...
I used to get UTI a lot. I took one antibiotic after another. I have included cranberry extract in my supplements. One capsule 3x daily. I also drink lots of fluids esp water. It has actually helped...
I used to get oral thrush a lot when my lupus was very active. I take antibiotics often and prednisone everyday and these medicines can cause the fungus candida to grow out of hand. Also if you have...
I also have GERD due to the medicines I take for lupus. With GERD it is possible to get viral or fungal infection especially with low immune system. I had Candidiasis and was treated with Diflucan by...
I'm happy for you AZ. I would suggest get someone to give you a ride on your first treatment because I felt weak and tired after infusion. I just learned there are other people who also had the same...
Thanks aimsgirl and bigsanfer for your response. I will be on my 3rd treatment next week. My normal BP ranges 90-100/60-70. When I go for the treatment my BP goes down. On the first treatment they...
I started Benlysta 3 weeks ago. It is the new drug approved in March to treat lupus. Is there anyone in this community who is presently on it? I would appreciate feedback....
I think we all respond to medications differently. When I was on Methotrexate I had frequent upper respiratory infection including pneumonia. Doctor stopped it and put me back on prednisone. Before I...