yeah,I know it works wildly.Finally diagnosed after almost 5 years of hell.But ya know, ya just dont know what to believe as Ive looked online and all the reports say its puts your immune system back...
has anyone used coconut oil for lupus or oregano oil?im on plaquenil,so if it increases your immune system,isnt that a contradiction..?...
that's very true-all I know is I haven't been right since I started taking it....
I dunno.All I know is they dont do enough research on meds before they hand them out.Wellbutrin also causes insomnia,which I didnt have till after Id been taking it.Go figure-...
Was just wondering if any of you were on wellbutrin before you had your first lupus flare?I have read that sometimes it will bring it on.I was on it,then about 3 months later...inflammation in the...
well went to the rhummies and she says the ana was negative after 3 years of positive.so she didnt do any tests-and says she will see me in 6 months.shouldnt she do blood tests again...as they were...
what are you taking Lynn?...
hey tater!thats so wild.Ive been taking it as the doc recommended it,said it would be ok when I mentioned it.I take 5mg too.And Ive been feeling rotten!major fog and I dont think Ive felt as bad in 3...
I have fibro,cfs,hashimotos,and lots of deficiencies.For the last 4 years I have had a run around,my ana has been positive,and I have been on almost all the meds.I am on plaquenil for the past...
I feel the same aimsgirl.I used to be a trainer,but its all I can do to get all the housework done now.I consider it my exercise...especially the stairs!If I even do crunches like I used to..I hurt...
hey Joy-just a question.How much plaq are you on?I have been on it a year,and the first 8 months were better..now Im feelin kinda crappy again,alot of heart palpatation etc.Im on 400 a day(lol,not...
hi.I have the same problem.I never really knew how bad it was till I went to the sleep clinic.They said I was getting about 3 hours real sleep a nite,and I was waking up cause my heart would stop.So...
I find it does help with pain.Its not as bad,but when I flare-Im out of commission!Just had a bad bout.Sinus infection with 2 weeks strong antibiotics...then I was so weak I didnt do anything for 5...
hello luv!I was negative for atheritis(thats doesnt look right)anyway,I have so much in my knee from an injury they wouldnt operate(had a tear).But my sister has lupus ,Ive had lesions,rash,hair...
hi everyone.I was diagnosed with cfs and fibro about 4 years ago.Now theyre thinkin lupus maybe ana is posistive.But was wondering if any of you guys get alot of swelling in your joints.I get it so...
hey! my fibro started away back....but I didnt realize it till I thought I was having a stroke at work.Gradually got confused,very weak,and couldnt sleep.I always assumed the pain was from workin too...
hi phoenixlady-you sound exactly like me!I get b12 shots every other week,vitd,s low...thyroid doesnt work tho.Im in canada..and I guess they like to go by all the other old testing.Nevermind its in...
I have a hard time to breathe...feels like Im actually going to faint..then it passes.the hard to breathe thing tho has been pretty constant.Have a wedding to go to in a couple weeks,very important...
Ive had this feeling,but Im not on prednisone.Was on amtriph,but been off for awhile.But the last few days have been like you describe..even wondering if its my heart as a heavy feling and hurts rite...
Im surprised they havent sent you to a sleep clinic after you said you were falling asleep driving.Maybe you should ask about it....
wow Janie!I sure feel for you.poor thing.I have sinus problems too,and major headaches.My right eye feels like its guun pop and the vein above it on the corner of my head sticks out like a worm.Only...
Hey Roch! its so hard when people look at you like youre whining or making it all up.I was a meatcutter at a major grocery chain,had a total meltdown at work and could not return.They said fibro and...
I have 3 little shihtzu.PenniLane,Matilda,and Chewbacca.We had 3 litters but I just wanted to keep them all...so were not breeding anymore....
huh.Kidney stone.I thought they could zap those babies now.Sorry to hear youre sick...you taking iron eh?make sure you dont get anemic.Gotta keep your strenght up girl!Ya,I had a cat,well the kids...
wow,thats bad.I have really bad eye pain ,but when I bring it up ,they just ignore me.I have had really dry mouth..so dry I couldnt swallow ....but I think the plaquenil has helped.Although my eyes...
nice to know we have "additives" in our meds eh?how ya doin Joy?Do you have b12 shots at all?I also take a big dose of vitd once a week....
I used to have trouble when I was only diagnosed with hypothyroid.I still get it from time to time and it really makes me panic.Especially when Im in a restaurant...and french onion soup is the...
I have to get b12 shots bi-weekly,and lately Ive been getting itchy bumps after the shots,like even days after.My one arm is getting lumpy from scar tissue,so she gave it to me in the other one..and...
yeah,I too,have a very active bladder.I can go 6 times in a nite,try to stay away from coffee as I dont need a diuretic.Sometimes its ok,but other times its embarrassing.If Im at someones home and...
well Ive been on melotonin for 4 days..I dont know whether Im sleeping or just resting.I now have majoe eye pain and sinus hurt.My eyes burn so bad they water.Yeah,I had to go get a coupkle things...
can ya give her my list of questions too Joy?heeeeeeeee...
well,she said it could be lupus...its been positive for 2 years now.says shes gunna do blood tests.I told her my friends markers never showed till later,and I have almost all the symptoms,so she...
my thoughts exactly Joy!thanks........
Ive been on it since 10 months,and my prescriptions run out the day I see her.humph!I dont know my levels all I know is its always been positive since I got sick-since the inflammation showed up.They...
I know when Ive looked up drugs for fibro,none of the sites say plaq.Although all the sites for lupus say its given often.So..what do ya think I should say to her?should I question her and tell her...
yeah maybe.Shes such a hard egg!thats the thing..is docs will say stuff..but they dont want to argue or challenge another doc eh.Its good being on plaquenil,and yeah Im happy with it..but long term...
thats great!hope everything works out,its great to finally put a name to it!...
welcome.I have been on plaquenil for 10 months now..and its been good.Im not 100% of course..but at least Im not down all the time.Have you been diagnosed with lupus??...
Well,I usually just watch and read and learn more about our problems,but I need some advice.Im in canada..for 3 years Ive had speckled positive ana,been anemic,b12 shots,hypothyroid,rashes,sleep...
thanks so much for your reply.today I am suffering from the worst cold!came on like gangbusters and its like in my head,chest eyes everywhere!yeah,I get it about the plaq...sometimes I think Im...
Well.thats weird.Cause the doc gave me a note.weird eh..?I dont know that I see a differenc e yet..and its been 5 months.Still swollen.I dont know what to think.I know that I am positive for...
my dentist told me it was an immune suppressant and would not touch my teeth without a note from my doc....
I get so much swelling in my feet and hands.Actually all over.I see this rhumy once..he walked in and took 1 look and said "youre all swlled up! were gunna give you a couple shots of...
well,the rhumy put me on plaquenil,jumped up my amtriphaline.She says I dont have lupus,although my tests say positive.I do have alot of symtoms of lupus,and sis has it.I have thyroid disease,along...
hey.I was on lyrica.gained 50pounds in 3 months.then I changed to gaba after a year,was on that for 8 months.thinkin I would lose the weight..ha!went off it...bad...withdrawal,have to wean off...
thats cool.kay,Im on plaquenil,which suppresses the immune system,are you on it ,cause I had to get a docs note just to get my teeth cleaned....
yeah,they have an opinion before they even see ya!...
Hey-sorry it was caps.just started that way so I was too lazy to change it.my typing is not great,to put it mildly.Im in Canada and you have to be referred to another doc...and they can turn you down...
i KNOW EH.MY RHUMY WANTS ME TO GO SEE THIS DUDE TO GIVE ME THESE INJECTIONS.AND WHAT IF I REFUSE?DO THEY TREAT ME UNFAIRLY BECAUSE I QUESTION IT?i QUESTIONED A DOC BEFORE..TURNED OUT I WAS RITE.BOY...
OK...i HAVE BEEN DIAGNOSED WITH FIBRO,CFS,RESTLESS LEG,HYPOTHYROID...HUMMM..WHAT ELSE..OH,SLEEP APNEA,B12 DEFICIENCY&VITD.bUT i AM TESTING POSITIVE FOR LUPUS,HAVE THE RASH SIS HAS IT,HAVE ALOT OF...