Hi, It is scary and unless you have lived it, it will be hard for others to relate. I think the constant crummy feeling and FATIGUE are the worse. During this last flare I have 35lbs. People now...
I have something similar. It kind of feels like little tingly and a little bit itchy down one side of my body. It hurts and is so annoying. When you look at my arm you cannot see anything. I went to...
I am not a dr. but from what I read when you taper down from prednose. You have to go real slow so that the body can start making more cortisol. When your adrenal glands are over worked you can get...
Hi, See your dr and let them know what is going on. Some of that sounds like lupus. It is different for everyone. I had the spins for 6 weeks!!!! I was so sick. I am 41 and have been sick on and off...
LUPUS SUCKS!!! The first time my dr said that she thought my issues were lupus, I thought that she was wrong. But as time went on and I become sicker and sicker and the blood test came back positive...
I have lupus and fluid filled cysts in my breast. In the mamo they looked white but an ultra sound was needed to make sure. It was stressful until I found out. The tech is trained not to respond to...
Hi, I am not sure how surgery will effect your body but stress plays a role in flareups and surgery is stressful! I am not a dr. but you may want to look into supplements to stop any further bone...
I do my own b12 shots in rump. I was doing weekly but now that my number 900 I do it once a month....
PJ555, I know its hard but hold on to the little things that make you happy. Many of us have been there or are starting to recover from there. (((hugs))))...
They say it can take months before you notice a difference. I notice it in a gradual kind of way. I am a little better everyday (almost everyday). I am however having a sun burn feeling on my arms...
I have been waking up four times a night for about a year. (same time flare started) Had many kidney and urine checks so far it all looks good. I thought it was just a middle aged thing. I will be...
Vanessa, Do not let fear keep you from getting the help you need and deserve. Knowing what is wrong does not change that something is or is not wrong. I too was afraid to know. I got so sick that not...
Does anyone know what normal is? I wake up at night at least four times. I have to go at least once every two hours....
Sorry about the pain. Glad to hear about the up coming appointment....
I was scared to take it also. I let it sit on my night stand for about two weeks before I finally started to take it. At that point, I could barley function and thought how much worse can it get. I...
Sorry for you loss! (((hug))...
The Vitamin D thing is an issue! My dr flipped out at my 30. You are at a 9!!! Check with dr but mine put me on 5000 IU until blood levels rise up. I was b12 200 now with shots 900. So check that as...
You know your life is odd when you are excited that it raining and over cast so that you can run errands in the middle of the day. I live in SUNNY florida but Seattle is looking better all the time....
Hi, I was just reading an interesting book about a women who had panic attack and vertigo as her primary Lupus issues. It is nice to not be the only one. I do miss my old self but I think I can move...
Hi, The 14th is not that far away. If it is Lupus then you are going to the right specialist. Bring a list of your concerns and questions and then right down what they say. The rhumy will order all...
It sucks to be sick. No matter the name the dr's give it, you know something in your body is not right. Teaching is a demanding job and you may come to the conclusion that you would rather spend your...
Does anyone have panic issues? I was feeling ok (ish) and went to do the weekly shopping. (Im not hungry but my family is.) The entire time I am in the market I am in a state of anxiety. I was...
Me too! I thought it was just because I was with my husband and felt safe. The worse part is trying to work. You never know if you will be up to task at hand from moment to moment. Most people get...
Thanks, I needed that encouragement. Sometimes I feel strong emotionally and sometimes I feel weak. The worse part is that when I feel weak I get weepy and it is hard to hide it. I want to try and...
I am trying to keep a positive outlook but it is difficult. I have a great husband and two teenage children that are supportive. I also have a great set of work friends that have made my daily work...
This was an up lifting post. I needed it!...
Having a chronic illness sorts out your friends. The real ones rise to the top the others just fade away. Family, support is also helpful. Sometimes they just need to know how to help you and they...
I get the shakes too. When it is really bad and then stops out of the blue i will just lay there afraid to move because I do not want them to come back. Dr's still do not know why? The last time it...
Now that I have been diagnosed with lupus, I can see where I may have been having flare-ups and not put all the pieces together. They lasted a few months and Dr could not explain why or what was...
Once a week I put my meds in a weekly meds box. So I can see if I took the required meds (and vitamins) for the day. I also place one of my PRN in each day. I do not always take it but if I do I know...
I went to the opthamologist BEFORE taking the medication to get a baseline. I just started the meds but plan on seeing her every 4 months. The Dr. has seen Plaquinil TX in people before and knows...
I too have no appetite. Before I became this ill I was a happy 198lbs food lover. I now weight 169. NONE of my clothes fit and at the moment I do not have the energy to go clothes shopping. I did not...