After a year and a half here in Savannah and some of the worst treatment I have ever received I had to go to the Hospital on Mothers day this year and finally got diagnosed.....I have SPHINCTER OF...
I had a surgery on June 1st that was to be completely routine and it was anything but routine. It has been a tragedy of errors that has left my life and health in ruins but I am trying to move on...
I love love love so many of the things people say: "Well it could be worse!" Well thanks a freakin lot now I can add guilt to the way I feel because I should be feeling sorry for someone else in...
I have had thyroid issues all my life and there are these things called parathyroids you mights want to have checked. They have a lot to do with the calcium in your body. Are you drinking enough????...
Golly what I wouldn't give for Saliva.....just one day. I feel like I am eating a steady diet of razor blades most of the time. I mean I am sure slobberinig and showering isn't a cake walk either...
I work for my PCP and he is amazing, I use him as my doc to and he has been super helpful. I did try me on the Savella.....OMGoodness I thought Celebrex made me sick as a dog.....it doesn't even...
I am super low in Vit D and high in Calcium....Due to severe complications and surgeon errors I almost died in June from what was to be a routine gallbladder surg that just didn't go as planned I was...
Also I don't know your age but....I am just throwing this out there because it happened to me it happens to me when I wake up with hotflashes (who knew you could sweat behind your knees even????) LOL...
It is odd for me I have had symptoms for years and only had a positive ANA one time when I was pregnant. I have AI problems for life and some does my entire family, My mom has thyroid disease, her...
REALLY!!!!!!!!!!!!!!!!!!!!! how about I have about a zillion symptoms to support Lupus and Autoimmune hepatitis and I had all of that before this surgery that was supposed to be minor, just out a...
Welll honey I am on the two month mark with Plaquenil and doing pretty good, the up and down I experience is with the steroid dose. I also have a HUGE problem with the Dr ego and getting them to...
It is all just freaking me out. I guess if it just hadn't hit me out of daggone nowhere. I was supposed to have a simple little surgery be out of work a week and go back to life as usual, and THIS my...
Mine seems to be on my neck and under my chin the worst. I do have it on my right arm a little but my neck has taken a direct hit with this. I hope this isn't inappropriate but I was also bathing and...
Thanks you all. I am going to go to the hairdresser next week I think....yup I have a valium I just checked hahahahahaha this is just super distressing to me along with all the other things going...
Are you FRIGGIN kidding me. It is so weird, I have been waking up looking like I got into a cat fight or something, or I very lightly scratch and I get a full blown raised up welt. I have scratched...
I recently started Plaquenil and was on a 3 wk taper down on prednisone. I was within 5 days stiff like the tin man the mouth dryness is so bad and painful and I have to put eyedrops in my eyes every...
Miss Perfect it is funny you said that,"usually we do not look sick!" I have been ill for a while because of what was supposed to be a minor gallbladder removal changed into a near fatal problem I...
I had a positive ANA when I was pregnant with my first child 21 years ago. Nothing was really done about it though. My whole family is an autoimmune mess, my son type 1 diab with thyroid disease, my...
I think it is the Biotin stuff I did try that but I seemed to get diarrhea so badly, I may give it another try if I can get some other things calmed down. It is just freaking me out! Thanks you all....
Thanks you all! I did go see my Internist today and he said that I was NOT on the Prednisone long enough. He said I should actually be on it probably for about a year low dose all the time. He looked...
I should have some answers today. Wednesday night all my results weren't in and we were off a long weekend. My daughter was in the hospital for 9 days and I have to get her today but I am gonna...
I did homework homework homework! My daughter had a manic meltdown about 9 days ago and she is impatient a little over an hour away from us so it has been stressful and I am still only about 40%...
WHAT IN THE HEC!!!!!!!!!!!!!!!!!!!!!!!! Really.....Honestly......why won't it stop. I don't want to be bald and I only wish I was exaggerating I am going to be bald very very soon. I try and not...
I am super prematurely grey A curse I can thank my father for and I guess thyroid disease. I have to take a valium now just to do anything to my hair because it is still falling out so so badly.....I...
I have been on Plaquenil for a month right now and I did a round of Prednisone that was a taper down and I have been off the Prednisone for a week now and my symptoms that had decreased in severity...
I just recently got diagnosed with Lupus and it was put on Plaquenil and a round of Prednisone for three weeks. I did the Prednisone that was in a taper down dose and now I have been off of it for a...
Ok, here goes, I have always have autoimmune issues, I had hashimoto's and had my thyroid removed, I had a positive ANA when I was pregnant 22 years ago and have always had some sort of symptoms of...
I agree, just to be able to justify myself to myself right now is helpful. I got my ANA test through rolled eyes of my physician, because evidentally me being sick was annoying her for some reason...
OMGoodness It is horrible to get so stuck trying to think of a word. I used to have a memory people envied but now I have to write everything down and I mean from here to the other room sometimes, I...
I am just cranky more than anything. I am on Prednisone as well though and I never do well on that. I haven't noticed a lot of help with the fatigue but I am on Vyvanse for daytime sleepiness and the...
1:80 I don't think is super high but it isn't normal and I was 10 when my whole auto immune issues began. I was always a skinny little child and out of no where I became HUGE! I was discovered to...
Honey I feel so badly for you I wish I could give you a big ole hug. I have been treated so crappy you wouldn't even believe it. I had a surgery in June that was to be really simple and it went way...
Honey there is one thing that you absolutely do everyday so whatever that one thing is is when you need to take that pill! So,,,,go get your pill put it next to "that thing" and tomorrow you are all...
I tell you my sense of smell went all haywire after gastric bypass 9 years ago. It was oober sensitive, it almost made me cranky actually especially towards unpleasant things like people who thought...
I did want to mention I washed my hair today which has been quite traumatic for me lately as I have lost over half my hair since this entire ordeal has began. It is still coming out but it was not in...
I just started mine last Tuesday so hopefully I will have success too! I was so hopeful for my visit with hin an dhe did start it. The fatigue is unbarable, my PCP has me on Adderrall but it is being...
I have had an enormous amount of trouble lately actually for years but I had a very traumatic surgery in June that was supposed to be super simple back to work in a week and that was to be that....
Well I did go to the Rheumatologist on Tues and I do not have autoimmune hepatitis which he was afraid of with the low vit d low calcium and elevated liver enzymes. However with the 100% symptomatic...
I have had auto immune problems since I was at least 10. I had a very major surgery in June that had severe complications I almot died. I have had all of the underlying symptoms of Lupus or some sort...
Well update on me. I saw Rheum yesterday and I don't have AIH. He said I am such a complicated case because of the severe trauma I suffered with the surgery in June and the malnutrition and now I am...
Well I had severe malnutrition as a complication of a surgery in June so it could be from that so it is unclear right now as to why I am losing hair like this. If I have autoimmune hepatitis I have...
Connie, No one yet knows what is making anything happen. My hair could be falling out because of AIH but that dx is not confirmed right now. It could be because of the severe malnutrition that I...
Sorry I did ramble up there.....as for problems, I am not getting much relief right now. I take Percocets and I can take up to 5 a day but I am not getting relief. She has offered me Oxycontin but I...
I can't believe that there is a place that I can say I AM IN SO MUCH PAIN I CAN'T STAND IT AND I COULDN'T MAKE IT A DAY WITHOUT PAIN MEDICATION and not look like a med seeker or a crimminal. I worked...
Hey everyone! They just started me on 50,000 IU vit D twice a week and did more blood work to check for the AIH and parathyroid stuff. I did have the positive ANA 1:320 but whatever panel they run...
Wow I am in the middle of about the same thing as you. I have had an extended illness after a surgery with super bad complications. I have always had auto immune problems so has my family and it is...
Oddly enough I was to have a routine gallbladder removal that went super different for me. I got very ill before it happened and started to swell. When he got in there my gallbladder was 4xs its...
I will keep you up to date. They just drew the new blood tests today they did a calcium INI, magnesium some sort of smooth muscle thing and CPK. I finally contacted my brother (I wasn't raised with...