I have had slightly more oral mucas this week than usual. Then last night suddenly started getting hoarse for no known reason. By this morning I had severe laryngitis. Since I do volunteer work with...
I am curious as to how many of you Lupus patients have used LIMU and if so how it has affected your Lupus symptoms, blood pressure, cholesterol levels, blood sugar, creatinine score, etc. I just...
My chiropractor told me today that Fish Oil with the Omega 3s is better for Lupus than Flaxseed. So I am going to try dropping the Flaxseed and see if I notice any change....
Raven 212, I can relate to on again/off again symptoms and Drs not being able to figure them out. I can also relate to doctors disagreeing on what is causing the symptoms and what to do about them,...
Wow! My heart goes out to you, Sarasota Girl. I have not had the burning hands or elbows nor the sensation of mosquito bites. The other things you mentioned I have experienced. My advice would be to...
I went to the dentist today and needed to get a crown since so much of the tooth had broken off. He does not believe the problem to be related to Lupus, Hypothroid, or Prednizone. He had personally...
I would go to whichever Dr will more likely guarantee you the signature and report you need for your disability insurance. If you go to that family doctor, who hasn't seen you very often and is not...
Thanks for the information and suggestions. I go see my dentist later today. This morning I asked my pharmacist about Prednizone as a possible cause and he has never heard of that before. He thinks I...
I have been experiencing crumbling teeth. Could it be from my Lupus, Hypothyroid, and/or Prednizone? Chunks of my back molar have been breaking off yesterday and today. Any way to stop it?...
Thanks, Everyone! I will try to find an ENT doctor. I don't think there is one in my area....
I have sung in choirs for over 30 years, but singing is painful now. After a few minutes of singing I experience increasing pain in my ears, chest, and head. My vocal range is much more limited than...
It is great to finally get a diagnosis after years of symptoms and medical questions. I recommend you keep a daily log of your various symptoms and what you do to manage them (ex. rest, exercise,...
You might want to do some research on the internet about Discoid Lupus, while you wait. Make sure you have copies of your past lab work for the new Dr to see and compare when he/she orders new tests...
I am so sorry you are going through all of this without the right Dr, medicine, diagnoses, etc. Getting your name on the cancellation list for an appt with the new Dr is a good idea. If that doesn't...
I recommend that you make a list of all the various health problems you have been experiencing for the past few years, compile all of your lab work, medicines currently on and taken in the past, and...
My faith has helped me battle Lupus for the past 25 years. No, I haven't been cured of SLE, OA, chronic pain and fatigue, memory problems, PKD, or PKD, etc., but God has given me what I need to...
I really recommend contacting a Social Security Disability law firm that knows how to get "denied" people on disability. You wont' have to pay a dime in attorney fees. The attorney will be paid by...
Thanks for sharing your stories. It sure sounds like surgeries can trigger SLE, especially for those with genetic links to SLE. Good luck living with yours. Each day has its challenges, but I just...
My lab work was so good this week that my family doctor had me reduce the dosage to 1/2 pill a day. I haven't noticed any problems with that reduction, so far. I too have experienced the weight gain,...
Thank you! Best wishes to you, LupusMomma as you battle Lupus....
That sounds like a symptom of Lupus that I read about on the Lupus Foundation web site, and is different from the familiar butterfly rash. You might want to check out this link:...
Make sure you have copies of everything you fill out and mail to Social Security Administration, plus post office verification it was delivered to the addressees. My forms got lost more than once so...
My family doctor and I were both pleasantly surprised with this week's Lupus-related lab work results. There was so much improvement, since November, that my daily Prednisone dosage has been cut in...
Did you have long term care insurance through your job? You might want to check with a disability law firm that could help you appeal to your employer/insurance company and/or apply for Social...
Thanks, Bill, for the info and link!...
Thanks for the feedback! It is interesting that others have also wondered if Lupus started following a surgical procedure or illness. After my new family Dr diagnosed me with Lupus, I dropped my...
Twenty-five years ago, at age 30, I had a hysterectomy to end a long and painful battle with Endometriosis. While still in the hospital recovering from that surgery, I started experiencing surgical...
My doctors have not mentioned either of them to me yet, and I have not yet researched them. Every medicine, prescription or over the counter, has side effects. That makes it so hard knowing which...
I feel for you but have no sure fire remedy. I've battled chronic pain for 25 years due to OA, FMS, Lupus, etc. and am never pain free no matter what meds I try. I would suggest trying one or more of...
I am on Lyrica, Tramadol, and Prednizone to deal with inflammation and chronic pain from OA, FMS, and Lupus. Due to Polycystic Kidney and Liver Disease my options are limited....
Does anyone know what to do when intense, head-to-toe body aches set in and make you want to just scream in agony? This is happening to me more frequently. The intensity and duration vary each time....
Polycystic Kidney Disease was a big surprise to me and my sister back in 2004. We'd never heard of it and have found no member of our family that has/had it, but we were both diagnosed with it after...