I've had almost all of those things- the headaches, the digestive issues, and hair loss. Before being diagnosed, for years I ended up in the ER with severe vomiting and stomach pain, for absolutely...
I had about 1/2 to 2/3 of my hair fall out over a period of about 7 months. And it just stopped suddenly one day. The new hair is definitely curlier and when I let it dry naturally, the old hair is...
I started with the generic and had SEVERE problems immediately- at both ends- I was taking a lot of phenergen and immodium just to even make it through the work day, and even then I wasn't safe. But...
I was diagnosed with Class IV nephritis last year and obviously had lots of the same symptoms. I was in the hospital for a month- 2, 2 consecutive wk stays while this was all taking place and I think...
Thank you to everyone who wrote such kind words in response to what I wrote before. I always feel silly when I share my stories, and then here myself complain and then hear everyone elses as well. It...
pbjsammich, your post touched me very much. I have felt many of the same things and have gone through many similar things as you in the past year myself, being diagnosed in March '11. I was active in...
I've tried MANY things over the years at one point or another- ambien, lunesta, benzos, benadryl, magnesium, etc. I was sleeping like a rock after being diagnosed (except when on high-dose steroids...
My brain fog DEFINITELY comes and goes. I find it very hard to verbalize the things that I want to say quite often and it's VERY frustrating to say the least. When I first started back to work after...
Hello all- So make an extremely drawn out story short. I've experienced left ankle pain for roughly four months now. Swelling, severe difficulty walking, heat. Xrays normal. Ultrasound for DVT...
So I'm doing the DC Walk for Lupus next weekend and in my email there was a link to a video on youtube about it. After watching that, others popped up...this one "Flare". I had NO words. It is beyond...
I tend to get these "breakouts" across my cheeks after I've been in the sun for an extended time. They look like pimples, but they're not. I look like Raggedy Ann, or like I've face- planted a pin...
My nephrologist prescribed the CellCept and I've been on that dose since March, and have had no noticeable stomach issues with it until now. For my stomach I'm taking Reglan and Protonix daily and...
Hello All, I'm new to this forum and new to the disease. I was diagnosed with lupus nephritis in March of this year and kidney disease in May as a result. I'm having a hard time figuring out when...
I also have been "spilling" RBC and protein. Definitely keep on top of that! My rheumatologist though was not nearly as concerned as my nephrologist, and actually missed a "spike" in the RBC that...