Hi there everyone I was the young 17 year old with lupus who was losing her hair like crazy the one who wrote this post. However now I'm 19 and have taken the illness on the chin and I can say my...
Today was sunny but abit chilly but the sun seems to have gotten to me quite abit bringing me pain and feeling sick with headaches. Now i have to stick it out and wait for it to go away....
Funny that theres a few friends like almost best friends that i havent told about my Lupus diagnosis and they havent noticed any differnece i had hair loss but i changed and put it up so it looked...
For the hair loss and growth i havent been using anything apart from nioxin system 4 kit it seemed to stop my hair falling out made new growth form and makes it appear quite thick on the top of my...
Hello Ms Niah Welcome to you, im 18 diagnosed last year at 17 i had an episode of hair loss between july to late october before i started using nioxin shampoo its stopped falling out and new hai...
Laura, Its me Danielle How did the appointment go i sent an email but you musnt of checked it yet let me no Danielle...
Currently i started taking cystitis sachets the burning has definatly stopped and so has the urinating alot but its still really itchy down there i just dont think i have enough symtoms like it being...
this is not a topic to talk about but its really annoying It started monday morning being mildly itchy around the private area then i seem tobe urinating alot today and the itching is getting alot...
I got started on plaquenil straight away its a malaria tablet helps control our lupus and helps with the rashes the erythematosus part causing the redness it seems to help the rashes keep at bay alot...
Thanks you both alot nah is not my menstrual cycle at all i no what thats like this is different sometimes when someone gets me angry i want to actually murder them LOL Im not too keen on going on...
Yeah, but i used to take 20mg now im only at 5mg...
Ok so i WAS feeling on top of the world but now im feeling depressed and kind of alone my mum works and so does my fiance its really lonely just looking at 4 walls and i just found out that he wont...
Ahh before we start check your email i sent you Cortizone shots i have heard of but not experienced and thats only for really severe hair loss like alopecia type bald patches and that trust me...
Hello Rose Nice Of you to join us as mentioned noone is perfect when it comes to writing if im typing for intense and i forget to spell something i just blame it the way im typing at least it hasnt...
You no just coming on here talking to others who have what i have is helpful im 18 was diagnosed last year at 17 and it was the worst time of my life i wont lie but god listened the way my tablets...
If your on about the leave in conditioner it says to use it everyday but i dont aim to do that and i find overall the product still works. At the moment when you wash again aim to use it on towel...
Thanks so much i should be staying on 5mg anyway its good to know that ididnt no i had to be referred to physio for exercise but thanks shall do that at my next rheumy appointment...
Ok iv never gone beyond 20mg on prednisolone and am currently on between 5mg to 7.5mg with minor knee pains (great to handle) im currently 9 stone and 5 pounds have always been that weight but my mum...
Home remedie idea here: Mix castor oil and olive oil set in your hair from roots to ends for half and hour rinse and shampoo your hair will shine brilliantly and be silky to touch but the loreal...
i know this one oil that iv started using for my own hair gives a great sheen and lasts all day and continues each time i use it. Its called loreal extrodinary oil but im not sure if you can buy it...
you can use it on dry hair to i do it still is ok...
Its called sunsense and can be doctor prescribed but sick of sulphates sent me some as a sort of trial. The leave in conditioner i apply it to the scalp just on top of my head and scrunch it into the...
10mg a week tapered did you say im no expert but i taper 2.5mg every 2 weeks my doctor tells me to do this i would think 10mg is to much in a week...
This is just a thought but i suffer tingling and numbness in toes and fingers due to Antiphospholipid syndrome i get numbness in upper thighs too but mostly fingers and toes because my blood is too...
Sickofsulpahte; Yes its great iv been using it for my neck and face i somethimes get a rash around the neck and it tends to make it go away when i roll that on its much more easier to apply no greasy...
Thats fine try whats best i have knowlegde that whatever sytem you chose it will definatly stop hair from falling out normally im told 30 to 45 days you shall see noticeable results could be sooner...
My hair is extremly thin at the ends but used to be thick try even though your hair might not be thin you said it will be once your hair falls out more most people thats hair is falling out and quite...
i Agree its better to use the system 4 this is also for noticeably thining hair and chemically treated hair like using straightners curlers etc. so its quite good trust in me it has worked for many...
By the way system 5 and 6 is for people who colour hair to much causing the hair to thin or break system 1 and 2 is for normal hair thats ready to thin and sytem 3 and 4 are for hair noticeably...
I used system 4 the kit so i use the shampoo and leave it on say 2 minutes then rinse then put conditioner leave for a further 2 minutes then rinse pat my hair dry and put the leave in conditoner on...
I use system 4 it really helps i used to wash my hair once a week as the amount of hair that fell out was bad but since starting this product in late september iv gone from my whole hair down the...
I suffered alot with hair loss used to be terrible i came here for help too. But i also used a product called nioxin i used this continuously since september and from then on my hair has got extremly...
Today it seems to have dissapeared which is a good sign i no my body doesnt have sjogrens syndrome i do get dry mouth but have always had that really but thanks for the help...
Its an all of a sudden thing really but as you said hopefully it will die down after a few days Sjogrens Syndrome does cause dryu eyes yes what other symptoms may it cause?...
So today i woke with an eye that kept watery i wiped it and it seemed to carry on is there a tear in my eye causing it to water or something else?...
Thanks guys, at least i know im not heading for dementia, i guess your right im so wrapped up in my illness at the mo im forgetting small things i guess its not so bad until i forget people then...
Its ok if you think im losing it when i write because i think i seriously am im quite worried cause it seems to me its just started happening i push it to the back of my head but think im seriously...
Thanks guys for the response i was more like stuck on what to do after reading what you said i checked my bp, pulse and temp with my bp monitor and that OMGOSH my temp was 101 (38.5) pulse was 139...
This started last night i woke up to a severe pain just above my bellybutton it was quite immense then boom i was sick sick sick and even more sick i cant keep anything down not even water iv tried...
Paul, Thanks very much for the sunsense i cant say how much i appreciate it thanks for giving 2 as well wasnt expecting that it came quite quick too it feels good on as well have tried it even though...
IS MY CONSULTANT what a coincidence anyway thanks for the sunsense thats so generous of you Danielle...
ST THOMASES IS WHERE IM REGISTERED!!!! They have a special lupus unit i go to there appointments, they made my diagnosis there are truly wonderful there. Ps. what more do you no about antiphospholid...
Depression is something which anyone can suffer with even those without illnesses but the ones with illnesses strikes out the most I used to get those days where i thought "god why am i here" now...
You know that would be wonderful which part of the uk do you live in though and only if your sure cheers My address ...
Iv searched for the product online google it seems if i can also buy it online....
Cheers Thanks I shall try to get him to prescribe it for me. And thanks if theres anything else then i shall ask. Danielle...
Sickofsulphates, Really no actually i wasnt i need to check it out is it good you say because i havent heard of it yet its good if its based in the uk as thats where i am....
Yes, Sickofsulphates is right i do the same SPF 50 is great for the face and it does help in the sun currently i use garnier sun lotion spf 50 it helps whatever the weather really and doesnt cause...
Thanks Lillash, i feel the same there are people who die instantly with worse conditions it just worries me with the way you suffered. People dont no i have lupus unless i tell them even my hair dont...