Teddtlove I can totally relate to feeling so sick and weak and not being able to make it to work. One bit of advice to protect you at work is getting your dr to put you on intermittent FMLA. He will...
I usually get them around mouth and inside my mouth but haven't experienced them on scalp although I do get the hair loss. You might want to ask the pharmacist if there is a shampoo that can help!...
I have had a couple of episodes. Like the others usually when I'm extremely fatigued , at work and once or twice after rising in the morning. It usually fades pretty quick. But I'm with the others if...
Dbab, I'm currently on the same meds except for CellCept which is the next med I believe I will be adding to my daily regiment. Dr had wanted me to start Benlysta but the payments are extreme and the...
Gentle hugs sent your way!,, you are truly amazing to be going thru everything and still care about others. Only a true angel has a heart like yours . <3 Love, Lori...
Barbara I know you have really ran the mill being in and out of hospitals, trying all different roads to get relief...my prayers go out to you. From the census I have gotten Benlysta is not all its...
Thank you Butterflake for your response. I will definitely talk to my dr about other Oral meds. I totally agree with you about taking oral as opposed to IV meds. It just becomes so darn frustrating...
Thanks Joy!, Yeah, I also heard several people had no good results. I will run these names by my physician and hopefully we can come up with some other form of treatment.....
Sorry, but I truly need some guidance. After suffering flares about every two weeks my rheumy had wanted me to start Benlysta. Currently taking Placqunil , gabapentin, 20 mg daily prednisone , frolic...
Met with my rheumotologist . In past two months I have seen him five times due to two back to back flares, bacterial bronchitis, several repeats of unbelievable fatigue, rashes, mouth ulcers..etc.....
Hi Butterflake... I can relate to not wanting to take high doses of Predisone ..I like you do not like the side effects..moon face, wt gain..etc...my rheumy ended up putting me on 20 mg daily along...
Barbara..VENT AWAY!,.so sorry you are feeling so awful ..I can totally understand you being over the whole testing/dr thing.. You should spk with your physician prior to your procedure about taking...
Vent away!!:-) I was also on short term disability with FMLA and had to use every last minute of it. Had too beg for dr to write me back on cause I too needed the income. Sometimes I felt like...
Barbara, Sending all my love and prayers to you ....keep the faith and keep fighting....one big prayer has been answered......
I totally feel for you. I too had become very frustrated with drs. It took an entire yr for my diagnosis of Lupus. You are experiencing a lot if not almost all the same signs. Going thru massive amts...
Well returned to Rheumy today. He heard the cough and has started my on zpak for next five days. Told me to hold off with dose of methotrexate today till I have finished antibiotic. Also added back...
Will keep you in my prayers..hoping all goes well and you get the answers and results I know you're hoping forh,...
Thanks for responses. I'll check with dr on weds and hope this passes quickly...... Lynwood, I'm an RN and set to return back to work thurs....
After having worked only three days in past three weeks, gone from one flare right into another, three day iv solumedrol, and changes in meds (taken off Placqunil and put on 15 mg methotrexate , 20...
I took my first dose of MTX last weds. After being on 400 mg og Placqunil for a yr the dr decided it was time to switch because symptoms of Lupus were getting worse and I had a second flare within a...
Thank you Joy!...
Joy, I recently saw a counselor about two weeks ago at the start of my most recent flare up..since it was my first visit with her time was spent basically laying ground work and history. Since then I...
I was diagnosed about a yr ago with Lupus (SLE), auto phospholipid syndrome and lupus anticoagulant. This came as a total shock after dealing about an entire year with major lower extremity weakness,...