I guess what I mean is that I know what I want my fingers to do but they don't do it, especially my left hand. I've always been very good at sight-reading but, lately, I feel like it's so difficult...
Thank you Lynnwood! I will bring it up to my doctor at my next visit...
Does anyone on here that has uctd play the piano? I am having issues playing and I've played it my whole life. I don't know if it's because of decreased cognitive function or if it's a disconnect...
I don't think I have spider veins or varicose veins, Joy. I had thought that maybe it was from the sun but I had been in the sun quite frequently for the prior two weeks and didn't see any spots....
Well I was able to contact my rheumy and he suggested starting me on neurotin-he thought it could be neuropathy. I took my first pill last night and it seems like I don't have as much numbness but I...
Thank you so much! I haven't been started on any meds yet but if it helps with the issues i'm having, I am for it!...
Sometimes I feel like a hypochondriac but I definitely know when something is not right with my body. Thank you for your input, I will try to contact my rheumy today and see what they suggest. 😊...
Hello all! I was diagnosed with uctd a couple years ago and, thankfully, it seems to be staying simply uctd. But, that being said, I do experience symptoms that I am not sure are related to it or to...
That is very encouraging Bill!! I was worried I would have to move out of Michigan! I love winters here and the snowmobiling I don't think I could leave it. Thanks....
Thank you Barbara!! :)...
Well I pray the best for you!...
Thank you flower! I will make my rheumy aware and try to keep my digits warm!! :)...
I think I might have Raynauds. Yesterday my fingers were so cold that my middle finger turned white and felt numb. I did a search on the internet and it seemed to match the issues with my finger. Now...
I don't want to sound like I know a lot but have you tried any holistic treatments? I'm just wondering if there are any out there that might work. Acupressure? I hope you are able to get some relief...
Thanks Bill. I see a cardiologist on a regular basis for my pacemaker. They did check my blood pressure in er but it was normal to high. I am not on any meds at this point and haven't been taking any...
At least I feel like I am a medical mystery! I went to the emergency room this week and the doctor couldn't figure out what was wrong with me. Although this isn't really new to me since I had a...
So is the overwhelming fatigue from the uctd/lupus or from the lack of sleep? That is what I can't figure out right now....
I am going to try a few things for restless legs and I plan to take my list of questions to my rheumy next week. Thank you all for your advice and insight!...
Well it's nice to hear that others can relate Melaine! I wouldn't wish this on anyone but it is good to be able to talk about it! Thank you...
After reviewing some of the posts on here, I am now wondering if my sleep issues are related to my uctd. About 10 years ago I started having something along the lines of restless leg syndrome when I...
I haven't been given any treatment as of yet. I will follow up with th gi specialist to see if he wants to do more. I see my rheumy in a month so all of these questions will definitely be addressed!...
I will try the biotin-i would rather not be as bald as my husband. As far as the swallowing, I've had an upper gi and they didn't find anything wrong but that was a little while ago so I may have to...
I have uctd and I have been having difficulty initiating a swallow for a few years. It is not constant and most of the time there is no problem. I am just wondering if this is related to the uctd and...
Thank you! I have heard that the longer I am undiagnosed, or diagnosed as UCTD, that it is less likely that it will turn into any of the differential diagnoses....
Thank you, Lynnwood. Being newly diagnosed, it's nice to be able to discuss what is going on and get a first-hand opinion of what is 'normal'....
Is fatigue an issue with uctd? I know it is with lupus but I am 47 and it's difficult to differentiate whether the tiredness I am feeling is from uctd or just age. I get tired so easily anymore. I do...
Yes I was thinking I may need to talk to the eye doctor, just dreading that he may tell me no more contacts. thank you!!...
my eye will normally take two or three days to clear up. i'm thinking that my contacts might play a part in it too. i don't wear them when my eyes are red....
Just wondering, again....I have been having one red eye every week--not usually the same eye. I am not sure if it is related to the UCTD or if I need to see my doctor about antibiotic eye drops or if...
yes I have been trying to figure out whether all my changes are from pre-menopause too--things are changing and I don't think the doctors can always tell me what is related to what! guess it's a...
Thank you everyone!!...
I know the doctors say that lupus affects mostly the small joints, but does anyone have it affecting any of the larger joints or the spine?...
LOL! I know what you mean--something is always popping up!...
Thank you Lynnwood!!...
I'm just wondering if anyone else has had changes in the color of their cheeks. I don't have the butterfly rash but right below my cheekbones my skin is very blotchy. When my face gets red, the areas...
thank you for the information! it is very enlightening and i wish you well...
Thanks Joy! I will look for the gel. /community/emoticons/turn.gif ...
Lucy, The pain was constant? Was it all joint-related? As far as the sleeping issue, I have had that problem for a few years so I thought maybe it was related to hormones, since I am 47. I was...
Thank you Joy!! /community/emoticons/smile.gif ...
Thank you, Lucy! So far the Rheumatologist is not offering any treatment because I am not experiencing much pain. In fact I feel very healthy for the most part. Yes I did have more blood tests that...
I have just been diagnosed with UCTD and would appreciate any info anyone could give me. I did google it and found out the basics. Please let me know any issues that you may have. So far my biggest...
Thank you for your post, Chartreux! I will try to see my Optometrist as soon as possible!...
just wondering how everyone was diagnosed with sjogrens. i have been having low platelets and low wbc for over a year now. it seem every time they do a cbc the platelets get lower. my ana came back...