Thank you for explaining it so well! Jamie...
I have another question, sorry I am so full of them; this is a very confusing diagnosis. Are the weakened immune system issues from the lupus itself, or from the steroids to control it? I am on...
My rheumy was thinking about using it for me, but couldn't because I am allergic to asprin and its in the same class. So I am on high doses of ibuprofen instead--blah! Jamie...
I use an IUD with progesterone, and have for over 5 years now. Other then pain when got it put in/changed I do well with it. I wanted to use the one without hormones, but since I have endometriosis I...
Nope, no Ambien or other sleep aid. I (luckily) rarely have trouble falling asleep or staying asleep (I feel like that's all I do on weekends) but I don't get restful/refreshing sleep and never...
I am sorry to hear you fell, I'm not even diagnosed with the stupid disease yet and I can already agree that it sucks! I hope you recover quickly! Jamie...
Ok, this is probably really strange but has anyone else had weird sleep issue with plaquenil. I used to talk and walk a lot on my sleep but it calmed way down after I had my daughter 7 years ago....
Thank you to all :) I actually have a neuro apt on Monday so I will mention it to him. I have seen him for several years due to "atypical migraines". He is the only one who believed my autoimmune...
Just a quick question....is loss of balance part of lupus? I have never had good balance by any stretch of the imagination, but the last couple weeks have been terrible (especially at night). Last...
Hi, I hope everyone is having a good evening. I have been on here off and on, while my doctors searched for a cause for my symptoms. I saw my rheumy again today and she said I have a "lupus-like...
Thanks Joy :) I did take a look at the list. I have 4 out of the 11 indicators---but all symptom related none of the blood work ones. I am not sure about a 5th one- I do have a lot of joint pain but...
I am going through the same thing. Based on the criteria I have 5 of the 11 indicators and normal blood work (except for slightly elevated C reactive protein). (I am wondering if that and my sed rate...
Hi all, I posted on here a while ago when lupus was first brought up as a apossibility and appreciated all the advice and support (so I am back /community/emoticons/smile.gif ). I got to see a rheumy...
Good evening to all. I am currently waiting on a diagnosis of Lupus, but they are thinking that's what I have. Reading posts on this board has been so helpful and comforting on this journey, I am...
Hi all, I have been having health issues for a couple of years now and was recently diagnosed with chronic fatigue syndrome. Last week I began having eye pain, and in the course of trying to find out...
Thank you for the welcome, and I am a girl :)...
I have had so many tests done...ugh! I can't remember them all but I know my thyroid, adrenals, and lyme tests all came back fine. My blood counts and electrolytes were fine. Kidney/liver panels...
More or less just venting, so frustrated: I thought I had a better handle on this push-crash thing, but yesterday I felt good and pushed too hard apparently b/c I feel like I have been hit by a truck...
Hi Olivia, I didn't see your response until after I wrote my monolaurin post! Ooops! I am currently only on the monolaurin once a day :( Do you take it with food? Jamie...
Is anyone taking monolaurin to help with CFS? I am having a terrible time tolerating it (sever stomach cramps). Does anyone else have this problem and do you know anything that might help? Jamie...
yes, the HHV-6 came back with the blood test, but she didn't say anything about re-testing (but now I will ask!). She tested me for a few chronic viruses (EBV, HHV, etc.) and that one came back...
Olivia- I am currently on monolaurin (my stomach is not tolerating it well at all) and may have to start Valtrex soon if the supplements don't help. Did your symptoms ever get better? Jamie...
Thank you both for your advice, and sorry it took me so long to respond. I have now been officially diagnosed with CFS and tested positive for a chronic virus (HHV-6). Apparently it is something all...
Thanks Denise. I learned about the crash the hard way about 2 weeks ago. I pushed myself even though I was tired to get our two upstairs rooms cleaned (we had company coming) and the next day I woke...
Hi to all, It looks like I am about to be diagnosed with CFS. I have been going through extensive testing, and it has all come back normal. The last testing I had was for food intolerances, and if...