Hi sue, Did you ever get your first treatment? I had mine two days ago, and while I'm better than yesterday it triggered a small flare. At least I hope it's small!...
Thanks Melissa! I had my first dose yesterday, and it went off with out a hitch. I don't feel so hot today, so I'm taking it easy. I have joined a Facebook group called benlysta buddies, and have had...
Are you on prednisone? I have really bad shaking with the roid... Not just one finger, but my hands shake so bad that ice jingles when I drink!...
Hi, I know it's kind of personal, but what kinds of birth control are you all taking? With these toxic medicines my family planning has been put on the back burner for now. My doctors told me to stop...
Thanks Melissa! I will be going to my rheumatologist office for the infusions, because they have a room as well. I will ask about putting the medicine in juice. I asked about splitting up the dose...
My temp also runs low, about 96.8 on the regular. I try to tell doctors that I feel feverish at 98.6 and higher but they just brush it off. Who made up the hard rule that every single person should...
Hello, I'm about to have my first Benlysta infusion this week. My major question that I can't find an answer too is how do I take my other medicines, specifically my methotrexate shot. Right now, I...