Dear Kelly! I am going share and cry too. For what is said and for what goes unsaid. I have ache for all this suffering herein too. I have an identical twin sister, Meshelle, she is loved with a love...
Hi! Seriously dry skin described here! I don't know where everyone's is from;but here in Canada we have an over the counter product available at any pharmacy. It is called "Udder Butter". Yes, it...
Hello! For anyone who is feeling better... I think I hear music! Hallelujah! Hallelujah! Hallelujah! Hallelujah! Yes, even more music... Rejoice! Rejoice! Rejoice! Rejoice! Just too awesome for...
Hello To the Lupus Loop in the know! Yeah You Guys! I just read something SUPER EXCITING in another post. (Do I mention the post and or contributor??? Secondly, I seriously didn't want this getting...
Hi Eden, I just want to comment on your insurance situation. I can't believe that the Wonderful USA, one of the richest countries won't/ doesn't/ can't ... provide free medical care for everyone! &...
Hi Eden! Very interesting post! WILL RESPONDERS STATE HOW OLD THEY WERE TOO? I was 4 years old. I would wake with extreme weakness in my hands. I couldn't make a fist. I would try and try. I would...
For me the fatigue crazy! I can sleep 16 hours and wake exhausted. I think stress is our very worst enemy. It is my belief that stress the cause of flare. It could just be what I have observed with...
Hi Melody, (Beautiful name!) I have "Lupus" and SKIN LUPUS. Apparently, one can have only skin lupus which is reported milder than actually Lupus. I have had Rash on my arms and scalp. Arms have...
Hello Barbara! Obviously, we don't know one another... Just reading post. Felt compassion, You are in my thoughts and prayers! God Bless You! Melaine...
Hi! You seem like a wonderful BF, what everyone needs! You have got some pretty fantastic support here. Firstly, please ensure you are taking care of you...drinking is not a solution. I know you know...
Hello Akkami! I am very new here so I don't know if this has been discussed. Apparently one can have only "Skin Lupus", which Dr's, claim is milder, less problematic and fewer flares. (Yeah Right)...
Cheers for PattyLatty! Love your post! This is very uplifting with awesome advice too. When your whole world is falling apart you have got to have your wits about ya! That is what they say. It is...
Sorry, that I don't something amazingly insightful to offer. I am up and down all night too. Perhaps, we should meet here at 2, 3 or 4 am. LOL! Seriously, it really is horrid feeling exhausted all...
Yeah What she said! Carolynmcg, I think this is great reply. Quote: Lyme has over 100+ symptoms and is the great mimicker. Also what about :Seasonal Affective Disorder too? I don't know much about it...
Hello! My Darling Husbands (the man is a saint) gets at least 3 colds a year every year for 14 years I have seen this. He gets very sick too. Shockingly so! NEVER do I get them... In 14 years this...
I can feel the agony of it all! I am so sorry you are having such a hard night/day. I hope you someone to help you out this evening. That is a loooooong tough day! Sending Luv Melaine...
Greetings... I need you to know: I am new here, seems to be a few "newbies". My name is actually Melaine. (no not Melanie... Melaine) ; ) Reading your posts to each other you all are informed, kind...
Melodie, I am new here too. We are going threw a lot. We know to expect normal reactions to this horrid situation. Some days will be better than other's. Just do the very best you each day. Be kind...
Hi! I am new here too. We never wanted this illness but sure are delighted to find this place of support and understanding. I wake about 3 times a week with swelling. Just recently, on the web I read...
Hello! I used to get mouth sores ALL THE TIME...Sometimes it's just one more thing. Our mouths are full of yucky bacteria. Seems a lot of us have had this issue. (Hmmm) I use Lysterine, pour out...
Hi! I am new here, thrilled to know that you had HW community being so very supportive. Wonderful! You are still on the mend, but well on your way! Fabulous, feels so good. Of course my prayers will...
Hello Hiawatha! I am certain that stress can/will/ and does reek havoc! We have some of the same concerns too... anyway! Do you have any concerns with your skin? Do you sometimes feel better and...
Sick of being sick! All these flares and "mystery viruses". It's my heart, my liver, my pain... Like everyone here... horrid news, but now you know and can clearly say this is the symptom and the...
Hi! Yes, I really understand how bad back pain be! I will save you all the gory details for another time. Let's talk about your issue: You could get an MRI done, maybe you have had some obvious...
Hey I'll join in too! Great news! Yeah!...
Hello one and all! Sometimes I find myself just saying it would be great to talk to someone who really understands. I hope to be both supportive and friendly. So many illnesses over the years... Felt...
YES! Speak with your doctor first thing. Sometime the Pharmacy can be very helpful too. What you are saying can be very typical side effects. I don't want to say something stupid... give yourself a...