Thank you for the responses! My PCP is out on a two week vacation but my rheumy emailed me to check in this morning so I sent him the EKG results and asked his opinion, hopefully I will hear back...
Hi All, I went in for a physical last week and my EKG says it detected a right ventricular hypertrophy. I haven't spoken with my doctor yet and definitely wish they hadn't sent me the test results...
Hi All, I've been flaring this week as a result of trying to wean off prednisone. I'm used to joint pain but starting yesterday a more stabbing type of pain started in my hands/legs/feet, along with...
Hmm I would definitely get a second opinion leapyear. It seems odd to me that your rheumy didn't even talk to you about fibromyalgia with your symptoms. I don't know how your symptoms fit into the 11...
I don't think that Rheumatologists like to just go straight out and diagnose Lupus. I started with my rhuemy in October and he said that I have an "autoimmune connective tissue disease" and my...
Hi All, I'm trying to figure out whether I have the malar rash or not, last time I mentioned it to my rheumy he said that it doesn't last long enough to be considered a malar rash (he says they...
That could be it, it is definitely worth letting your rheumatologist's office call. Mine usually encourages me to call with any symptom changes. I don't know anything about ulnar nerve entrapment,...
Thanks guys! Needed the extra reassurance that I DO know what is happening in my own body. Also, my Rheumy wants me to start on either Arava or MTX soon to get the flares under control and get me off...
Ahh thank you Lynnwood, that makes more sense! Still so new to all of this. And yes, good catch! My rheumy is the one who said the inflammation was high because of this, but my primary doc told me it...
I seem to have a certain soreness/tightness in my chest that lasts a few hours in the mornings. I haven't figured out what it is yet but I'm no longer alarmed about it. I had really bad chest/rib...
Hi Everyone, My primary care doctor called me in today to go over some blood work. I was worried something was really wrong but it turned out my vitamin D was just high. My doctor then proceeded to...
Hi Everyone, I am just coming out of a bad flare and was surprised to get my blood work back from my doctor and see that my sed rate and CRP both came back normal. Come to think of it, I've never...
Lynnwood- great point! My my Prednisone dosage is completely supervised by my Rheumatologist- I have tried weaning off 2.5 mg at a time but my symptoms tend to come back within a few days. But, my...
rockthecasbah121, I've been on 15 mg since October. I've tried to wean off it a few times but I haven't been successful. It is definitely worth asking your doctor if you can start at a low dose. I...
I have UCTD too- or at least that's what my forms officially say. I love what you say about every rheumy appointment being like opening a cereal box acquiesce! That is exactly how I feel. I was...
I know I've been told my stomach problems are separate from Lupus, even though I know they get worse when I have a flare. I have horrible distention too and I've found the best thing for me...
Hello All, I'm not sure if this is the right place to post but wasn't sure where else to go! My rheumatologist seemed on track to diagnose me with Lupus but in my follow up yesterday he diagnosed me...
Hi Everyone, I think I got my first Malar rash about 3 weeks ago (pre-diagnosis) and I think it popped back up again yesterday morning, but it is pretty light, it just looks like I'm flushed like...
Hi Everyone, I've been lurking around here for a few days and there is some really helpful stuff, I'm very happy to have found it! So, I'm 23 and I've been trying to figure out what is going on with...
Lysine has been a HUGE help to me with mouth ulcers. When I get them they multiply to 20+ at a time on my tongue, cheek, roof of my mouth, and tonsils. The lysine takes a day or two to kick in so I...
Hi Everyone! I'm new here and have a few questions. I recently started working with a naturopath mainly to solve some stomach issues, but he's been doing a lot of additional testing on me. I just got...