As of last week, my rheumatologist has diagnosed me with primary Lupus and secondary Fibromyalgia. I thought, for sure, I was in a Lupus flare. So my rheumatologist did blood work. My numbers were...
Hello! I'm officially diagnosed with primary Lupus (SLE) and secondary Fibromyalgia. I thought for sure I was in a Lupus flare.... labs came back good... rheumatologist said he was officially...
I'm diagnosed with primary Lupus (SLE) and secondary Fibromyalgia. YES, symptoms can overlap. I thought for sure, 100%, I was in a lupus flare. My rheumatologist drew labs on me of course and they...
I am diagnosed with primary Lupus and secondary Fibromyalgia as my rheumatologist says. An ANA isn't enough to diagnose something alone. An ANA is just kind of like a place to start when people start...
Today I had an appointment with a perinatologist for a preconception appointment because my husband and I are deciding to have another baby or not. It was a long, drawn out appointment. He had all my...
Wow! I seriously wish you the best of luck. This disease is completely unpredictable. I hope they can get you back to being well controlled....
Sherrine... Your guess is as good as mine when it comes to my Lupus diagnosis. I am ANA+ (DS DNA), I have had knee swelling (what they're counting as arthritis), painless mouth ulcers and...
Hello! I'm newly diagnosed with Lupus in the last few months but just from last week Internal Medicine is suspecting I may have Fibromyalgia too. I will speak to my rheumatologist in July when I have...
My rheumatologist told me either I'm at the very beginning of Lupus or I have "mild" Lupus. I have no organ involvement. I've been on Plaquenil since January. Do you guys know if mild Lupus tends to...
I have all sorts of pain! Muscle aches, sore joints, burning pain in feet and hands, random sharp shooting pains, muscle twitching. I also have been having trouble sleeping through the night due to...
I've personally never had that. I get the textbook painless ulcers. But with Lupus I'm learning anything can happen! Haha I hope you find answers!...
I can understand the not feeling well and feeling like your body is "failing" you. I personally felt that way in the beginning and hard days right now. But Lupus takes a while to diagnose. You need...
I was taken off Prednisone about a month ago and I've been in a lot of pain since then (but of course my inflammatory labs are normal! :rolleyes:) Internal medicine wants me to try Gabapentin. I've...
I've never actually blacked out but I do get dizziness spells almost daily. I went through excessive dizziness testing (inner ears and everything) they couldn't find anything. I've always just...
I'm a newbie but I do have somewhat of an answer. I was asking my rheumatologist a million lab questions last appointment. He said 1-5% of SLE patients can have a negative ANA. So it's obviously rare...
I feel very ill when it's coming on... I almost get shakey and cold similar to the flu... then comes the joint/muscle pain. I try to rest when I can but I work and I have a 5 and 3 year old. Resting...
I'm recently diagnosed with Lupus and I've been having a hard time with the diagnosis/working on new treatments. I'm not as educated as the rest but I do know that an ANA can go positive for more...
Also... do you guys have any tips for telling the rheumatologist I'm not feeling well? I called 8 days after I was taken off Pred and all they said was "Take Tylenol. Take Advil. We will see you in...
Wow! You guys both are just so full of knowledge! I am just blown away. Thank you guys so much. This has been the most helpful website thus far. My rheumatologist has mentioned Imuran very briefly a...
Bill, I will talk to my rheumatologist but from what I have heard him say he has a few patients with Lupus. So I hope he knows what he's talking about. Rheumatologist are scarce where I live and hard...
Mary Ann- Thank you. I got diagnosed in March and it's been really hard. I've been on Plaquenil since Jan! You think it would of "kicked in" by now! Haha. Thank you for the kind words. Lynnwood- I...
I just recently got diagnosed with SLE after being sick for a year. I have joint pain, muscle pain, small painless mouth ulcers, fatigue, shortness of breath, constantly feel ill. I'm currently on...