ESLDNeen, I am so sorry you are having to go through this. Believe it or not, I can sympathize somewhat. I have been a chronic pain patient for over six years, and have developed liver disease in the...
Hi Gabby, I am so sorry you are having so much pain. I would assume that you are probably also having a problem with nausea/vommiting. I have Gastropareis as well...very severly. Have you had to have...
Hi Helen! Its Heidi from Ohio. Remember me?? I've missed you, and have thought of you often. I read the post you made a month or so ago, and was sorry for your additional pain. I can relate, because...
Hi CRPS, I just thought I'd let you know that I had the EXACT same problem with Zanaflex. In fact, it was so bad, that I had to discontinue taking the medication. I tried it for months, and it never...
Barbara, I'm so sorry about all that you have had to go through, and appreciate you and everyone else taking the time to reply to me. I just had blood cultures done yesterday, so it doesn't appear...
Emmie, Thanks for the care and concern. Very sweet! I am glad that I described it half way decently. Unfortunately, there isn't much they can do. Sometimes they put people on an Ace Inhibitor {a type...
Thanks Bill, I wish I could go on an Ace Inhibitor, but I have a heart condition that requires a beta blocker. So, I have to stay on that, and will be on that for the rest of my life. I had a kidney...
Thanks Stacie. I'm definately going to call the nephrologist's office tomorrow to obtain a script for a 24 hour urine. As far as finding a new dr., it seems like finding a good nephrologist is very...
Carol, Its so unfortunate that so many things get blown off in regards to health {or lack thereof}. Cysts are kind of common, but they can still cause pain. Did you say you were on pain medication?...
Carol, I'm so sorry you are having a rough time! Usually, I don't think that the pain from LPHS migrates much, but I'm sure it could be differen't in some cases. For me, its usually in the kidneys,...
Thanks Jan, I see my nephrologist in a couple of weeks, and am going to call tomorrow to see if he will go ahead and order my regular 24 hour urine. Its been awhile since he has done this. I am happy...
Hi Emmie! Well, its been a long day, and I have some serious brain fog going on, so I don't know how well I will be able to explain Loin Pain Hematuria Syndrome. The basics are, its a really rare...
Hi Stacie! Thanks for writing back to my post! That was pretty fast service! :) I'm not on any "kidney" drugs per say, but I am on Plaquenil for the lupus, just got off high doses of prednisone...
Hi Everyone, I hope that everyone is able to get some rest tonight. I just got done making a post about proteinuria, and then remembered that I wanted to bring up Loin Pain Hematuria Syndrome. I see...
Hi Everyone, I've written here a couple times before in search of some information. Anyway, today I went to see one of my dr.'s, and found out that I am spilling 30+ of protein in my urine. This...