I just wanted to let all who responded to my post which is now locked that my feelings are not hurt. I did not take anything personally at all because it is not about me. Monkeyme it is not your...
Thanks for all your help.. I'm understanding a lot more, I'll try to remember to let you know what my doc say. But you helped A LOT... I'm sure I'll have more questions for you in the future. Stay...
Hi Bill... I've seen your posts several times stating that MCTD is SLE/PM/&Scleroderma. I'm confused because sometimes my doctor uses the term lupus sometimes uses the term MCTD. On my medical record...
Welcome... I have MCTD. My knowledge about it is limited... it's so confusing to me. I just take my medicine and go on with life as much as I can. I've realized the doctors don't know much about...
VERY healthy, VERY active and athletic my whole life, then WHAM, crippled!!! Honestly, I believe it's dormant in all us lupies until something kicks it into gear. With me I truly wonder if it was a...
Hi.. I just wanted to put in my 2cents here. I've read a lot about DHEA and it seems that it does help Lupus patients. The thing is you have to take a lot. Some people are very leery of it though...
Hi bella.. I have polymyositis which is VERY similar to dermatomyositis. I'm sorry to hear about your dx. I was told when I first was diagnosed about dermatomyositis because I had a slight rash on my...
Ok... thank you so much for your responses. You were all very informative. My sister is married to a cardiologist I think I will just give him a call. I know he'd see me in a heart beat (pun...
Hi.. I was wondering if anyone has experienced any strange heart sensations. At least I think it's my heart. What happens is I get some flutters but not light flutters. Almost contracting but not...