Okay guys. I have a question, it may be kinda stupid but I get mixed answer from non-lupies and always manage to fail to ask my rheumy while I'm there. Alot of foods and beverages have things in them...
This won't really help, but it is related. For several year I have had my cycle every 3-4 months, usually fairly short and light. Almost 2 1/2 years ago I was diagnosed with Polycystic ovarian...
Re: Patty's comment--"Hippi, when I was on a high dose of prednisone I had long blond hairs all over my cheeks, upper lip and especially around my ears and jaw line. Since I've lowered my dose, the...
Hey everyone! I know it's been forever since I've been on here, but when I signed on tonight I once again remembered what a great place this is for understanding. I always feel like nobody ever...
Heidi- I get alot of bruises too and I'm just 24. I was in the hospital from the 12th to the 17th and I had like 7 IV sites, each one of them is still a visible bruise on me. I'm not sure about the...
I have a question relating to this. Lately I have been getting several of what I thought to be just really bad "canker sores" that have been quite a bit worse since I started getting thrush from all...
Ever since I got sick I have noticed that my temps are usually low grade(96-97), but when I'm not feeling well, they spike up ther pretty high(over 100). I know something is really wrong when in 24...
butterflake- Good luck with the Imuran, I hope it works for you. I'm really hoping the solu-medrol will kick a little @$$ on my behalf now, lol. monkeyme- I'm new here myself, and have just found the...
Thanks for all the good input ladies. I am so surprised I actually slept quite well after I did get to sleep. And I got the data I needed so they can justify sending me home with oxygen. I just...
Hi guys- I've got some interesting news. My docs pow-wowed today, I know, there is a first time for everything, lol. They have decided that we are hands down looking at pulmonary hemorrhage, my...
Update again: Sorry it's been a few days since I wrote. I started to write you ladies back in response the other day, but I was feeling very sick and don't know that I ever got it sent out. I am back...
Jen- My lupus problems at this point are strictly related to my lungs and breathing. I have shortness of breath, lupus pneumonitis and pulmonary hemorrhage. I think that when there are any...
I just wanted to come let everyone know what the doctors said yesterday and today. Pulmonologist- my respiration is sounding a bit better and stats are appearing a little better than the recent past....
Update- I called my pulm today and she told me to take 60mg of Prednisone again today, tomorrow and Sunday. I will call her on Monday to let her know how it's going. If not better I see her on...
Thanks so much for the suggestions you guys. I feel like I'm just having a hard time getting my doctors to communicate period. I feel like the middle man in the situation and I have enough on my mind...
Sorry, didn't mean to post that other one yet, I had a moment! Let's try this again. I guess I'm wondering how everyone else got thru the process of getting on to the immunosuppressant, and weened...
Hippi- I just wanted to stop by and say that I hope the rest of your week goes well. As busy as you are, take some time for yourself, and breathe. We all know how important not doing too much is....
I will definitely be talking to my rheumy tomorrow about how I've been feeling as well as bringing up my concerns about treatment. I am also thinking about going to the health sciences university to...
This is the most pred I've been on outside the hospital. I'm struggling most because my pulm. doesn't think that my lungs appear to be improving, she just bumped me from 20mgs which I've been on...
Thank You all for making me feel so welcome. Honestly I've been pretty scared and very confused about what to think about the current diagnosis. I went through several long hospitalizations on...
[color=purple>Hi. ] open lung biopsy after recently having a bronchoscopy that ended with a colapsed lung. My doctors informed me that treatment would be the same either way so I figured at this...