Yes, Desiree, they are....
For the past few days I have been getting a rash all over my body, except for my face. It looks eerily similar to the one I used to get on my face, but haven't had for 10 years. It usually shows up...
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Jennifer, The prednisone doesn't help me sleep at night. When I take it in the morning, it has all day to build up and by evening it has me wired. When I take it at bedtime, it has all night to build...
Marji, I have never had this happen to me, or ever heard of it happening to anyone else. I'd ask my doctor about this one....
Hi alex, I started at 60mg and tapered down to 5mg. I have been at 5 for a couple of years after going one year not being on it at all. I swelled up like Jerry Lewis did as well, but it was a...
Hi joan, You'll find lots of people here have trouble sleeping at night. Do you take prednisone? If so, what time of day do you take it? When I was taking mine in the morning I had a horrible time...
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Hi Maenad, Getting the flu when you have lupus is horrible. Getting sick with anything when you have lupus is horrible. I am currently getting over bronchitis, and it sucks big time. The good news...
Oh Donna (((hugs))), Last weekend, I fell at my SIL house. My sweats got caught on the bottom of a cuboard door. As I turned to walk out of the kitchen I fell forward, and fell flat on my face....
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Hi kitkat, I used to work retail, and I had to quit 4 years ago because it was tearing my body apart. I only worked 4 hours a day, but after being on my feet the whole time I would come home...
Hi Audrey, It seems as though this is just regular old hot flashes. I get them like this when I run out of my hrt and can't fill them for a week. Maybe your cream just isn't strong enough anymore....
Carol, I usually double my dose and then lay down for a long nap; by the time I wake up I am feeling better. I just do that for the weekend and call my doctor monday morning. I hope you feel better...
Yeah, Carol!!! I'm so glad you got such good news! /community/emoticons/smilewinkgrin.gif ...
Chaya, I'm so glad you are feeling better. /community/emoticons/smilewinkgrin.gif Thanks for the update. Take care!...
Chaya, When the pleurisy kicks in, it starts out as a bad cough, and as it progresses my chest starts feeling tighter. By the point it reaches painful, I can hardly breath (no deep breaths possible),...
redrose, Have you checked to make sure you don't have any little leaks anywhere? I agree with Fitzy, you need to be able to see an actual bill detailing your water usage. If the park won't give you a...
Hi Chaya, I have never been given a shot when I go through pleurisy. My doctor has always just put me on a 21pack with some celebrex and pain meds. With all that, I usually start to feel better...
Oh Carol, You are so sweet. Thank you. I hope you start to feel better soon, and good luck with your appt. on Tuesday. prayers...
Hi Jennifer, I had AVN of both of my hips caused by the prednisone. When the AVN first started I had debilitating hip pain, first in just my left and a few months my right startd in. I had x-rays and...
I wish you the best of luck Carol, and I will keep you in my prayers. (((hugs)))...
Hi Steph, I agree with Ginny and redrose of all they offered you. Don't be afraid of the plaquenil, it can be extremely helpful with the fatigue and the blah feeling. Are you taking anything for your...
Ginny, My doctor increased my prednisone for my surgery as well, but by the time I was home from the hospital is was already being tapered down. The docs just do that to keep the immune system from...
domanique, I agree with hippimom, it sounds like side effects from tapering down the prednisone. I went through it myself, as have many others here. You also need to let your doctor know how much the...
Hi Ginny, I had a total hysterectomy while being treated for lupus. It wasn't by laporoscopy, though, so I have a nice 3 inch long scar to go along with my stretch marks. I was very nervous about it,...
Alex, For me, colds last longer than most peoples do. Bruises will stick around for a couple of months, but cuts heal just fine. It all depends on the person, how suppressed their immune system is,...
Alex, I do everything I can think of to avoid getting sick. I get a flu shot every year, which is recommended by our rheumies, I avoid sick people, I wash my hands constantly...after bathroom, after...
Hi Carol, What part of Arizona are you moving to? I just recently moved from there, and I had a great rheumy in the Phoenix metro area. If you have not found one there yet, I would like to suggest to...
Hi Carol, Yes, I get breast discomfort all the time. Sometimes it's a stabbing pain, and sometimes it's a dull ache. I have never had a mamo to see if I have fibroids, I'm only 36, but I also have...
(((((Carol))))) I'm sorry you are going through this. I will keep you in my prayers. /community/emoticons/sad.gif ...
Hi Roberts, First of all, welcome. We are all glad you found us. If the blockage is not bad, the similasan will dissolve the wax and it will just drain out. It has worked for me and my kids in the...
(((lucy))) You are not paranoid. I have had problems with my left ear since about a year after I was diagnosed. I, too, get those sharp pains. My outer ear feels hard and hurts to touch it, but no...
Lucy, Yes, they became a solid patch. Sometimes, when I spend a little too much time in the sun, I will get just the bumps and then they go away after a few days. It doesn't take long for me to be in...
Hi Lucy, That's exactly how my malar rash always starts out. The very first time I had it my rheumy told me it was not, but a few days later I saw her again and the bumps had spread open. She took...
Welcome, My daughter is 11, and tested with a positive ANA when she was 9. (Her ANA was just barely positive.) She feels sick often, has achy joints often, and for a while was getting chronic sore...
oldhippie, It sounds like you need to call your primary doctor and see if you can get in sooner than later. Blood pressure that high can be dangerous. Any number of things can be going on;...
Hi firebabe, I've had pleurisy three times so far in the past nine years. Everytime, my doctor upped my prednisone dose for two weeks and put me on celebrex. I always felt better within 2-3 days. If...
I agree with Judy, starz, If the pain is bad enough that you are taking that much medicine for it, then it's worth getting it checked out. I hope you feel better soon....
(((((((((((((((Carol))))))))))))))) My thoughts and prayers are with you....
OK, I'm back from the doctor. It turned out to be a massive build up of wax in my ear. The chunk of wax the nurse pulled out was the size of a dried up date. As soon as she pulled it a wave of sound...
Will be heading to the doctor this morning. I will update when I get home....
(((jojo))) I know how hard it is to be a mom with a little one to take care of. My kids were all 5 and younger when I was diagnosed. Do you have family and friends that can help you out? I have a...
Rosie, I do show some signs of sjogrens, but have never been officially diagnosed. The only good thing about this is that if I go to sleep on my right side, I don't here any of the traffic noises...
Hi okie, Well, your bro and sil are full of ****. Face swelling can be caused by different things, but just laying around is not one of them. It could be fluid retention. I had that problem when I...
Thank you Pat, hippi I will keep you guys updated. Yes, Pat, my doctor told me about the similasan the last time this happened. It is actually homeopathic so you can buy otc....
For the past week I have barely been able to hear out of my left ear. This has happened before after a really bad sinus infection, my ear became completely clogged by wax. I used similasan wax...
Domanique It sounds like you were going through a bout of pleurisy. I've been through it twice, and had the exact same symptoms as you. I am glad you are feeling better now....
Meeks, I have to go with everyone else here. There really is no solution so far. When I was on that high of a dose, I kept stuffing my face with pbj sandwiches and oatmeal cream pies. Those were the...
smokeyswife, I see that you have thyroid disease. When my thyroid is out of whack I will go without shaving until it gets back to normal. Maybe your synthroid needs to be adjusted? It is a great...