Hi peacesoul..... I would love to order a few of those shirts myself!!! I work in a small office and people are always asking "Do you feel ok?", "You don't look so good...." They just don't...
Chaya..... I know hearing the diagnosis can be bittersweet. It is a relief to have someone validate the fact that you truly are sick but then comes the dealing with it.... I know what that is like....
Hi Chaya... I am from NE PA... I would be willing to talk via phone. I have a ton of cell phone minutes. If you are interested email me @ [email protected] or [email protected]...
I went to see my Rheumy on Friday. We have determined that the Cellcept may not be working. I am still running almost constant low grade fevers. He has increased me to 4 pills a day and I return for...
Barb, I am sorry to hear all that you are going through. I am thankful that they found the clot.... I threw a clot to my lung several years ago and am thankful to still be here!! Be sure when they...
I have increased my Cellcept up to 3 (500mg) per day and I am having horrible brain fog!!! I just can't seem to focus... not a good thing for me at work. I have to go the the Rheumy on Friday. I am...
I can understand the frustration in getting a diagnosis. It took a long time and many tests before I got a diagnosis and found a great doctor. Most people, except here of course, do not understand...
I have been running fevers of over 101+ for a long time. It does zap your strength. I would also mention this to your Rheumy. They have tried me on several medications, but initially the Plaquenil...
Thanks for your replies. I have been plagued with fevers of 101+ for over a year, even on Plaquenil. I can only take 2 tylenol per week due to taking coumadin. I have felt really good and yesterday...
I started Cellcept two weeks ago.... After the first few doses I felt great... hardly slept but felt wonderful! Yesterday I was having fevers up and down and just feeling ugly. Today I am no better....
Sariah, I work full time and have wonderful coverage through my husbands job. It is hard to find employment when you are feeling ill. Did you think about going for disability? That would give you the...
Patty, Sorry to hear about your reaction to Imuran.. It almost killed me! I was taking it for 6 weeks and then had a severe reaction. Lots of vomiting. I dehydrated in 45 minutes. Had to call the...
Diane.... Sorry to hear you are so upset. I can only wish to have that bloodwork. Mine is always off the charts!!! My last white count (taken 1.5 wks ago) 17.9 with all sorts of other stuff out of...
Hope you are feeling better. I don't have any experience with steroids. But I sure do know about having a flare and overdoing it! It is hard not to try and get some things done. But I am sure you...
I think it is possible to flare on any medication. I continued to flare while taking plaquenil and methotrexate as well as plaquenil and Imuran. I hope it is not a reoccurance for you....
Thanks to all for your warm welcome. I agree it is hard to find people who truly understand what we go through on a daily basis. I have a person at work who can be very callus. I keep thinking she...
Thank you for the warm welcome. I started taking the Cellcept on Sunday. I have been flying high since the second dose! I feel like I have a burst of energy. I haven't had that feeling in years! I...
Hi.... My name is Michelle and I was dianosed with SLE about 4-1/2 years ago. I have been in a horrible flare for about a year or so. I have tried several medications. Imuran almost killed me. I am...