Hi Jenny. Sorry to hear things aren't working out with your job. I'm starting to realize myself that the world is a very unfair place. I work at not a very serious job. It's just a part time desk...
Wow Lynwood, I'm glad that cellcept is helping you with that. I'm taking it for nephritis as well lupus fighter. My doctor told me about the alternatives for cellcept and the side effects are awful,...
I'm happy to see that you're keeping things upbeat Rebecca. Enjoy your time with your family and don't worry about your friend. Hopefully he'll come around soon enough....
Hi lupus fighter, I started with 60mg of prednisone a day, and now I'm down to 5. I should be completely finished with it soon (yay!). The prednisone drop didn't make any changes in my hair though....
Hi MellyMel (thats one of my nicknames!) I hope you're feeling better and your doctor is getting you some answers. I'm not sure how to answer your question because I'm not sure exactly sure when my...
Hang in there Rebecca. When I have bad joint pains, my mom got me this lotion thing with emu oil. They say emu oil is a good anti-inflammatory. It helped me out, so maybe you can try it. Take care....
Steph, that's good to know. I'm having a bit of hair trouble myself and I was wondering if it was the cellcept. I've always kept my hair shortish and recently I decided to grow it out. It's nice and...
Rebecca, I know how you feel. I have no insurance at the moment either and I have to pay for medicines and specialists out of pocket as well. My parents are helping me out with that and I feel like I...
Hi Everyone. Recently, I've been doing better compared to where I was a couple months ago. I'm not exactly an outgoing person, but I like to go places. I would constantly go to the movies, museums,...
Koola, that sounds horrible. I'm on cellcept myself, 3g a day for three months so far, and honestly what you just said is scaring me. But isn't it better to have crappy skin and thinning hair than...
I just got my flu shot last week... I hate shots. My arm ached for a few days after and I had a slight fever. Other than that it was okay. Last year was pretty much the same thing. I was a little...
Prednisone made my blood pressure really high, but my dad was on it for a little while. He took 10mg for a short while and then tapered away. It had his blood pressure low, and also lowered his blood...
I feel the same way about House starzphalling! I always get a "Hey they mentioned lupus again on House and I thought of you!" from friends, so thats another plus side to me. Those people on that...
Hi Gidget. I'm sorry you have to go through all of this. I'm very lucky that my parents are doing a good job of making sure I don't have to do much other than roll from my bed to the bathroom. I do...
That really sucks. I always think it's so unfair that on top of being so sick and the problems with it that you have to deal with all this red tape too! I don't have insurance either and I'm waiting...
Thanks Rosie. It makes sense now. Good luck to your son....
I don't think it's offensive actually. I really enjoy watching House. He usually takes on cases that are not typical. Most of the time, it's not about an actual condition but about the patient lying...
This may sound like a stupid question... But I've always wondered how walks raise money. Once my friends did a walk for breast cancer, and they said they just walked. I know it raises awareness, but...
Anyone here watches the TV show "House"? Wikipedia says: A running joke in the series is that Lupus is suggested as a cause of the patient's symptoms in many episodes, although invariably this is...
I love fish too! There's something that always happens with me and my fishes though. I'd buy a bunch of pretty fishes and have the aquarium set up nicely. Then there's always one fish that kills all...
Thanks for the replies everyone. I guess I'll just have to see them as my battle scars as well. It's not that I'm one to show off skin anyway, but I'm basically a tanned zebra now too....
Hi everyone, hope you're all doing ok. My first post here I talked about how I got all swollen and basically looked like I was pregnant. Well, good news, I'm losing the weight. My kidney doctor says...
I was actually talking to my boyfriend about this (I showed him the spoon theory story as well), and he said that he doesn't understand why healthy people have a hard time understanding people who...
Thanks for the replies everyone! I think I will contact my old rheumy and try to see him or someone he recommends. I'm in the middle of flare right now and seeing a renal doctor that works along with...
Hi everyone. I'm sorry that some of you have these issues to deal with your families. On top of feeling sick, it's worse to have to deal with all of that. I have a lot of issues with my parents (but...
I noticed from most of posts on the board that you guys do have a hard time in the summer. I was actually telling my boyfriend about it, because for me the bad months are the cold ones. I always get...
Hi Hope. Sorry to hear about your diagnosis. In one of my flares I got red itchy patches. They would just start off as itchy and then form into little red spots, or big puffy spots. It was hives. No...
Love them? Hate them? We certainly can't live without them! I had a child rheumy since I was diagnosed. He was the nicest sweetest and smartest doctor I've come across. He always explained things...
Thats a good question peachy. When I wasn't in a flare, I would get joint pains and fatigue every once in a while. It would depend on the weather and what exposure I had. With some rest and a change...
I actually asked my rheumy about this at my last visit. I had two flares so far, and they started off the same (with joint pains). I pretty much assumed that for me joint pains were the signs of a...
I've starting doing a similar thing Rosie. I'm keeping this little journal where I'm putting down everything that happens to me and everything the doctor says. I think it's a good idea. I've realized...
Hey Everyone, I'm still hanging in there. Saw doctors yesterday and they basically told me to be patient, much help that was. I have been feeling a bit better though and getting used to these body...
Hi Peachy. It was really interesting to read your post. I was in the hospital a few days ago and it seemed like my life had turned upside down. Even now I'm trying to deal with how life will be...
Thanks for the welcome everyone. I took Audrey's advice and went to see a movie. I'm also going to go shopping tomorrow because it turns out I'm having a real wardrobe problem now. My stomach has...
Good question. I was just put on both prednisone and cellcept. My doctor said good things about cellcept. The only thing he said that is bad is that you just can't absolutely get pregnant on it. His...
Within the next two weeks my taper of prednisone will be down to 40mg a day. The doctors said they'll take it from there seeing as how I do. I've read other good things about cellcept and I hope that...
Thanks for the response. It is comforting to know that people deal with this all the time and I suppose thats one of the things I wanted to hear. I've been out of the hospital for a day now, and I...
Hey everyone. New here, just found this place while looking for people with lupus stories to help me get through mine. I was diagnosed with SLE when I was 16, and now 5 years later it turns out I...