I've gotten this from time to time through the years, but I've noticed the past 6-8 weeks it's been happening more frequently. Hands might go for an hour or two, esp when I'm working. Head & face...
My friendly neighborhood Sam's Club gave me a freebie!...
I had a horrible reaction when I took it so I'm on prednisone, imuran and plaquenil....
That's nothing ... I was as high as 80mg of prednisone and I went from a size 6 to a size 20 in 8 weeks. It took four years to get the weight off. A lot of it was water retention. Check with your...
My husband says he read someplace that if you freeze the fish oil tablets they don't have the fishy aftertaste....
Forehead sweating is the worst! That's where I sweat most post-lupus....
I was going to say the same thing @ Reynauds. Have your doctor prescribe amlodopine or norvasc, that should help....
Hey room! It's been a while! I read someplace that low doses of DHEA and Flaxseed are helpful in the treatment of Lupus. Has anyone had any experience with them? I also had someone tell me that...
I've been at my wits end the past few weeks too. Maybe its a full moon??...
Ok. This post is probably more like a blog of what happens when you skip your meds. Two nights ago I was out with friends and I got spacy dizzy. I ended up getting to a hotel and slept. I finally...
You should feel like the king of the world in about an hour!...
This thread is very inspiring. It speaks to just about everything I've been dealing with during the past few weeks. No one is a fortress and everyone has strong times and times of weakness. No one...
I was on cellcept for 24 hrs. It made my blood pressure skyrocket, I got really bad heartburn and couldn't breathe. They took me off it, but that reaction is rare. Just be aware of any reactions to...
I've gone three days without meds. My joints are a little stiff but that's it. I know long term its not a solution and I'm going to start them again today. Maybe its just my way of rebelling. This...
It's been a while since I've been on the boards. But I really need to vent. Do you just ever get tired of having lupus? I am tired of having huge bruises all over me that just show up the day afer...
have you or your doctor looked into [color=#0000cc>Raynauds]Phenomenon? [/u] I have that and my fingers get numb and blue from time to time. They put me on a calcium blocker (amildopine) and it...
have you thought about getting a national reporter involved? I saw a story on TV about someone who was clearly not accommodated at work and was able to get the help he needed because of the news...
Drink lots of water. Fruit 2 0 and ice cold water, iced tea -- that's pretty much all I ever drink. Milk gives me gas (a problem I never had prelupus)....
wow -- that's awesome! That's my resolution this year -- to drop 50 pounds. Heck, I'll be happy with 40 pounds! It will be a lifestyle adjustment though -- I've decided to start doing smaller...
Have you ever tried the spray on kind of sunscreen? I love it! I started wearing the kids coppertone (in a turquiose bottle) last summer and I had more clients compliment my on my new perfume. Who...
I have the same problem. I don't know what I'd do without my PDA -- anytime someone tells me something I write it down or I'll forget! I think it's from all the meds. For a while, I was taking...
I had no idea about the signature ... sorry about that! I fixed it. I didn't know her dad had AIDS until after he died. My fear is that she will have this fear of loss if I lose my battle with lupus....
Hey everyone -- This is peachy reminding you to keep it real... Yesterday, my little sister from Big Brothers Big Sisters lost her father, who was 38, to complications with AIDS. He died unexpectedly...
What ended up happening with this? I can't believe an employer would be so dumb to do this during lupus awareness month. It is illegal -- I asked my hubby who has a legal background....
I've pretty much given up on shorts -- I wear capris in the summer. I'll tell ya though -- Bare Minerals is GREAT for hiding the stretch marks if tanning doesn't work and you really want to wear...
I'll tell ya, cellulite is the least of my worries. I have so many bruises on my legs that I'd much rather get rid of those! I look like I'm either a battered wife or a total klutz!...
I have them, they're everywhere! Under my arms, my belly, inside of my legs, my hips, even under my knees. Nothing has worked to get rid of them, and it doesn't help that I have really pale skin....
THat's awesome! I hope we can get something like this done in SW Ohio. I've been in touch with the Cleveland chapter about getting more stuff going on down here. (Although they are in the state,...
I've been on Imuran for about two years now, and it's been wonderful. Combined with the prednisone and the plaqanel, my lupus has been quiet and manageable for the most part. I think the only side...
I have a question ... for those of you without health insurance, how do you pay for your lupus meds and doctor visits? What is it costing you per month? It seems like most insurance plans won't cover...
The stretch marks will fade, but you're stuck with them. Two years later they're still noticable under my arms, breasts, on my legs and my lower abdomen. Who in this room made the comment she looked...
What are boils? It's not shingles, is it?...
I used to get those during the year prior to my lupus diagnosis. They were the worst -- I'd get them in the corner of my mouth, they'd crack, etc! I used a combination of cold sore medicine and...
I had the same issue with my potassium being really low. My rhummy didn't catch it -- my kidney doctor did. He runs that test on the urinalysis and caught it. He put me on a horse pill of potassium...
This may seem like a silly question ... but what is the difference between flaring and just experiencing the everyday effects of lupus? For example ... I get the butterfly rash a lot. My joints get...
Prednisone definitely helps you feel better. Just don't be tempted to snack and eat whatever you like .... it's tough to get the weight off!...
what pain killers did your doc give you? are they still helping?...
I didn't sweat until I had lupus, so I have attributed it to the prednisone and the weight gain. It sucks on wedding days though -- between running outside and upstairs, my hair and face are...
You're lucky -- mine is SOOOO heavy now. It used to be light to normal. I'm wearing the heaviest tampon and a pad just to prevent accidents! It seems like I'm always on the rag since I've had lupus...
I was lucky -- I didn't get facial hair. I did lose some hair on my head, though!...
My mom has RA; my dad's aunt has lupus; and my sister, mom, and grandma had breast cancer. My sister's was fatal....
My hubby and I decided it wasn't worth the risk to have kids. My sister died of breast cancer, which she developed while she was pregnant. I am also on medication to prevent blood clots and my...
It's not a flare, is it? When I am flaring, my knees and joints get really stiff. Is it an ongoing thing?...
Cetaphil is a godsend -- my face cleared up thanks to that. Sometimes the tramadol makes my skin itch. Have you tried a massage oil?...
how did the new MRI turn out? you're in my thoughts & prayers....
Check with your doctor before taking anything ... that's my rule of thumb .... any free samples I get I take to my doctor to see what his thoughts are first. He got me well, so I trust his medical...
Ever since I've had lupus, it seems like the weight has taken on a mind of its own. The body weight shifts all over the place, and even though I have gone from a size 18 to a 14, I still weigh the...
Hey everyone -- I'm so glad my midnight revelation helped some people get perspective! It certainly helped me. Sharentriles hit the nail on the head ... "I can about promise you that no one else...
chaya -- my first rhummy did the same thing. She took a conservative approach with only 5 mg of prednisone and plaqanel. two weeks later, I was in the hospital on my death bed! If you are in an...
what will they let you take? if the pain is unbearable you can always go to the ER for some morphene or something else....