Anna, Thank you for your suggestions. My urine looks ok so I won't have to go back. My Rhumy was actually who gave the referral, which concerns me. Jenny...
I went to the Nephrologist yesterday for my swelling feet & ankles. I thought this visit would give me answers to the sever swelling & pain I’ve been having for several months. Instead, I...
Can anyone recommend any books about Lupus. I'm gettting 'The Lupus Book' from my library ... but am interested in any other good ones....
Redrose, Thank you for the suggestions. My Rhumy has been trying to get me off Prednisone for the past year, I have resisted due to the results. But when I started getting brittle bones I realized my...
Hello, I've been taking prednisone for the past 2 years (5-10mg per day). The med has damaged my bones, so I get unexplained foot fractures. My gaining weight from increased appetite does not help my...
Anyone have trouble with swelling feet/ankles. Mine are getting terrible anytime I'm out of bed. Cannot even fit my shoes on ... becomes difficult to walk. When to my Rhumy who referred me to a...
PennState71, Thanks for your help. It is difficult being a young person with Lupus. I'm 32, but I went thru the same battles you are facing during my 20's. I 100% relate to your frustration &...
RedRose, I'm 32 years old....
Are most people with Lupus able to hold down a job too? I feel like my full time job is take out any energy I have. It's a battle to get meals cooked & laundry washed at home - everything else...
Hello all, Went to my Rheumy today. BP is 100/50 & my ankles are retaining tons of fluid at end of day (took pics). Being referred to a BP specialist & kidney specialisty that is doing some...
Dawn, I can 100% relate to your posting. I've had Lupus for 10 years & always come to the doc with new symptoms that are just part of Lupus. I'm very much a planner & like to map out my fun...
Hello friends, I've been feeling very alone and depressed these days. I lost both of my parents suddenly during the past 2 years (unexpected deaths & at the mid-50's age). My husband is very...
Hello all, I recently had a fractured foot for no reason - no injury or accident. This freak incident in combination with taking prednisone, my podiatrist ordered a dexascan to determine my bone...
Does anyone have trouble with Lupus Rx related reflux? Each morning I take my Lupus meds with milk & feel very nauseated for about 2 hours afterwards. The only thing that helps is drinking...
Hello All, I took a long weekend to Switzerland - my husband has been working there most of this year while I remain in the USA. I did a TON of walking in 3 days. My feet were achy; but I thought it...
Hello all, I have been experiencing knee pain - thought I had a fracture or a bone spur. But my PCP did a knee x-ray & everything is normal. I'm wondering if this could be Lupus related & a...
Elcamino, I have no experience with these gloves, but they look great! Thanks so much for sharing as I am also a Raynaud's sufferer - & it has been unusually worse with the cold weather. I'm...
As if Lupus isn't enough to deal with, I also battle with anxiety. My PCP has me on 5mg of Lexapro a day which helps, but I really feel I have a disorder or phobia. Is this something as simple as...
Jennifer, I have had Lupus related heart problems - which triggered my Lupus diagnosis in 2001. I was experiencing unbearable chest pains & shortness of breath. Ended up going to the ER &...
I had a recent pap smear come back abnormal. I have since been diagnosed with cervical dysplasia (early stage cervical cancer). My doctor found 3 spots in question – waiting on the biopsy results to...
Misscali, I understand what you are going through. I was diagnosed with Lupus when I was 22 (8 years ago). It was difficult for my friends & family to understand why I was unable to run at the...
Has anyone gone through a divorce as an indirect result of Lupus? I was diagnosed with Lupus after getting married. As you all know, Lupus is a process of being 'reborn'. It seems as though...
Just wondering how others maintain work/life balance while dealing with Lupus? I work a full-time job & have a husband. We have no children. I was diagnosed with Lupus after we married & now...
How do you understand your bloodwork results? My doc sometimes rattles off a few acronyms, but generally says the results look fine. How do other folks in this forum know specifics? Do you request a...
For those of you who've had a hysterectomy, did the procedure make a difference in your Lupus symptoms? I often experience a flare around my menstral cycle due to the changing hormones. My gyno has...
Stacie, I totally understand what you are going through. Last year I took a 3 month leave from work due to a terrible flare. That time gave me a chance to think through the decision to work or not....
Mimik81, My Mom has Crohns & I have Lupus - how weird is that. The doc's don't know how either on of us got these diseases, but since they are both autoimmune diseses that they are related. I feel...
Sly, I have the same experience after taking a warm, morning shower. In fact, I've been taking evening baths so that I go straight to bed afterward to recover. Sounds silly, but bathing at night &...
Yes, I have had experience with night sweats too. My doc thinks it has to do with the Prednisone - I currently take 5mg a day. Since my last flare has passed, the night sweats have too. Hope you get...
Paula, I have Raynaud's - discoloration in hands/feet from lack of blood circulation. My hands are worse, but the same thing can happen to your feet. I was later on diagnosed with Lupus --- kind of a...
Roni, about 9 month ago, I had a similar bruise on the top part of my foot & toes ... turned out to be a burst blood vessel. As a precaution, I had X-rays done & nothing was broken. The...
Ti, I was disagnosed with Lupus in 2001, but didn't start having the extreme fatigue and constant flares until 2007. At that time my Rhumey put me on 10mg Prednizone a day. Now I've tapered down to a...
Hello all, I have been away from the forum for a few months ... late last year I was being discriminated by my employer for Lupus related work restrictions. As a result, I took FMLA leave &...
Hello all, I am new to this forum as I suffer from what appears to be social anxiety (but I've never been formally dx)... The overactive anxiety causes my Raynaud's to go into full force. This...
Hello all, I have always battled with anxiety ... but now it causes my Raynaud's to go into full force. This happens whenever I'm in a social setting of people I do not know. My hands get all purple...
Judy, You are absolutly right --- I too battle with the ER issue. I have chest pain here & there, my Rhumy & family doc both tell me to go to the ER each time that happens. The problem is I'd be in...
Hello all, I hope everyone had a happy & safe new year. :) My father passed away on Dec. 26 at the age of 57 from a heart attack. I've been doing my best to comfort my Mom who is taking all of...
Ginny, Thanks for your suggestions. Recently, I went off birth control pills since it was interfering with my Lupus. So far, no problems with the periods. I'll ask my family do to check out the...
Okie, I also get chest pain similar to what you've described. It seems to come & go - will have it for weeks & then it will go away for a month or more. I find myself breathing very shallow during...
Hello all, Recently I've been breaking out in cold sweats despite having Rhynaud's. When getting ready to start the day (after showering & while dressing) I always break out in a cold sweat ---...
Mamarose, Welcome to the group! So sorry to hear about your problems with Lupus & Pred. I too have gained weight due to prolonged use of the med. I do not know anything about the gastrobypass surgery...
Bill & Hippimom, Your encouraging words brought many smiles to my face ... thanks! It's not 'a day in the park' having Lupus, but the blessing in disguise is that I've come to realize what...
Carol, Thanks for your encouraging words. I was denied for disability - I'm not technically disabled, just unable to meet my employer's demands. Luckily, my hubby is working & can take care of us....
Chaya, My rhumy puts me on 10mg of pred during a flare ... I've been taking 5mg as maintenance (about 2 years now). The higher dosage helps my health in general, but the side affects are the down...
Hello all, The past 3 months I've been battling discrimination with my employer --- they are demanding I work overtime, so I took FMLA to recover from a flare-up & now I'm close to being...
Gidget, The story you described in the initial post is similar to a situation I had with my sister. I can relate 100% & sympathize with what you are feeling. Unfortunately, I had to cut off all...
Audrey, I wish I lived in a warm climate! :) But I'm not too far from you --- central Ohio. Guess it's time to go shopping for more pants!...
I've been experiencing some bruising that won't heal - they don't bother me or hurt, just unpleasant to look at. I've done some research and the symptom could be related to Lupus, steroid treatment,...
Is accupuncture something that you seek on your own, or did your Rheumy reccomend it? I've been in a flare for months now & am willing to try anything that will get me back on track. Thanks!...
Kookla - Your post made me feel on top of the world! Thanks! I can totally relate to the situations you've had at work. Keep your chin up. :) Gloryroad - My employer does not know that I have an...